Prevalence, Severity, and Correlates of Symptoms of Anxiety and Depression at the Very End of Life

Kozlov, Elissa; Phongtankuel, Veerawat; Prigerson, Holly G.; Adelman, Ronald D.; Shalev, Ariel; Czaja, Sara J.; Dignam, Ritchell; Baughn, Rosemary; Reid, M. Carrington

doi:10.1016/j.jpainsymman.2019.04.012

Cited by 40 publications

(30 citation statements)

References 23 publications

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“…When present, it was judged as moderate to severe. This is in line with the study of Kozlov et al, 16 where 47% of the caregivers of patients receiving hospice care at home scored their anxiety as 4 or higher on the Edmonton Symptom Assessment Scale. However, these caregivers were asked to retrospectively fill out the Edmonton Symptom Assessment Scale 2 to 3 weeks after the patient died.…”

Section: Discussionsupporting

confidence: 91%

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Anxiety in Hospice Inpatients With Advanced Cancer, From the Perspective of Their Informal Caregivers

Duijn

Zweers

Kars

et al. 2021

J Hosp Palliat Nurs

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Anxiety is a common symptom in patients with advanced cancer. Early recognition of anxiety is difficult, especially when the physical condition of patients declines and patients are not able to verbally express about their concerns. Under these circumstances, informal caregivers may be a valuable source of information. The aim of this study was to explore anxiety in hospice inpatients with advanced cancer from the perspective of their informal caregivers. Fourteen informal caregivers were interviewed; 64% were women and the median age was 55 years. Informal caregivers assessed patients' anxiety as moderate to severe and identified a negative impact of anxiety on physical, psychological, social, and spiritual dimensions of the patients' lives. They indicated a variety of expressions of anxiety and mentioned physical and mental deterioration as an important source of anxiety. Informal caregivers recognized patients' needs as having a safe environment, presence of people around, and a sense of control over the situation. Although the patients' perspective is the gold standard, informal caregivers can be a valuable source of information in identifying anxiety and providing personalized support. Therefore, informal caregivers should be more involved in the care for anxious patients to improve early recognition of anxiety and to ameliorate anxiety management for this vulnerable patient population.

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Section: Discussionsupporting

confidence: 91%

“…The anxiety of the patient also had an impact on the life of the informal caregivers. This was also found in the study of Kozlov et al 16 They reported that anxiety of the patients who received hospice care at home was associated significantly with a higher caregiver burden.…”

Section: Discussionsupporting

confidence: 76%

Anxiety in Hospice Inpatients With Advanced Cancer, From the Perspective of Their Informal Caregivers

Duijn

Zweers

Kars

et al. 2021

J Hosp Palliat Nurs

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“…About the theme [Care of nurses], nurses with visiting medical treatments worry about the mental health of a patient and caregiver, a visiting nurse proposes mental care. Kozlov, et al [5] showed that home hospice patients experience moderate-to-severe symptoms of anxiety and depression in the last week of life. Since family caregivers worry about the physical and emotional symptoms at the very end of care, support for this point may be important.…”

Section: Perception Of Nurses For Home Hospice By Visiting Medical Trmentioning

confidence: 99%

“…Family caregivers of advanced cancer patients feel distressed along with sadness, sorrow and exhaustion, or anxiety and depression [4]. Family caregivers at home hospice had moderate-tosevere anxiety or similar symptoms [5], and they experienced crisis, such as patient signs and symptoms, emotional distress, and burdens [6]. Also, Reblin, et al [7] showed that caregivers had moderate levels of depression.…”

Section: Introductionmentioning

confidence: 99%

Contents of Care and Perception of Home Hospice Nurses Who Work at Visiting Medical Treatment Hospitals

Ando¹,

Kukihara²,

Yamamoto³

et al. 2019

OJN

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Goal: The aim of this study was to examine the perception of nurses who worked at the clinic which proposed home hospice and contents of care to better understand home hospice and enhance home care. Methods: Six nurses who worked at the clinic where proposed visiting medical treatment participated voluntarily. They received one interview for approximately one hour, in which they narrated their perception of home hospice and content of nursing care. The narrative was recorded by an IC recorder and analyzed as contents analysis. This study was approved by the Ethical Board at St. Mary's College. Results: About the content of nursing care, some categories were selected such as "Understanding a patient as a living person," "Examining if a patient and caregiver live at ease," or "Caring for a caregiver accepting a loved one's death and care given at death." Nurses perceived the theme as "Time and space for listening carefully," the theme as "Feeling of responsibility and attractiveness of work," the theme as the "Economics and manpower to continue home hospice," the as a "Required connection between hospitals and home hospice clinics." Conclusion: Visiting medical treatment nurses understand a patient and a family as living people based on intimate relationships, support them as the disease progresses, and connect to a visiting nurse station. They perceived that "patients can enjoy freedom; the nurses had responsibility and strong relationships. They felt the economic or manpower needs to continue and the requirement of a connection between hospitals and home hospice clinics.

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“…Although patients and caregivers commonly express satisfaction with hospice care, there remain challenges in achieving this aim (Jenkins & Codling, 2013). Although estimates of prevalence vary, a notable number of hospice patients experience depression and anxiety, and there are grounds to think such conditions are underreported (Hayes et al, 2017; Irwin et al, 2008; Kozlov et al, 2019). In addition, loneliness and lack of relational connectedness impact hospice patients’ quality of life (Bale et al, 2016; Rokach, 2016; Sawyer et al, 2019; Untas et al, 2011).…”

Section: Introductionmentioning

confidence: 99%

Understanding Experiences in Hospice: Exploring Temporal, Occupational, and Relational Dimensions Using Pictor Technique

et al. 2020

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Temporality, occupation, and relationships are identified as discrete factors that impact quality of life for individuals at the end of life and those around them. However, scholars, practitioners, and educators require insights regarding whether and how interactions between these factors shape this quality of life. This study is framed by an understanding that meaning is negotiated between people through social interaction and occupational engagement in temporal contexts. We conducted in-depth interviews with 9 patients and 10 family members, incorporating the Pictor visual elicitation technique. Analysis was conducted through an iterative process involving open and selective coding. Findings are described as three main processes: (a) experiences of temporal rupture, (b) diminished significance of clock time, and (c) shifts in occupational priorities. Participants’ perspectives may help carers understand how to foster positive temporal experiences and quality of life for patients and those who love them.

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Prevalence, Severity, and Correlates of Symptoms of Anxiety and Depression at the Very End of Life

Cited by 40 publications

References 23 publications

Anxiety in Hospice Inpatients With Advanced Cancer, From the Perspective of Their Informal Caregivers

Anxiety in Hospice Inpatients With Advanced Cancer, From the Perspective of Their Informal Caregivers

Contents of Care and Perception of Home Hospice Nurses Who Work at Visiting Medical Treatment Hospitals

Understanding Experiences in Hospice: Exploring Temporal, Occupational, and Relational Dimensions Using Pictor Technique

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