Prevalence, Trends and Custody Among Children of Parents with Intellectual Disabilities in Norway

Tøssebro, Jan; Midjo, Turid; Paulsen, Veronika; Berg, Berit

doi:10.1111/jar.12304

Cited by 39 publications

(33 citation statements)

References 14 publications

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“…12 -14, 19 Most studies were restricted to high-risk samples from court documents 12,13,19 or social service agency records. 14 In addition, although 1 study suggested that younger child age was associated with increased odds of court applications for guardianship orders, 19 only 2 studies specifically examined custody loss directly after delivery. 15,16 The only other population-based study revealed that, among 53 565 women in Manitoba, Canada, of whom 69 had an IDD, IDD status was associated with 6.54 greater odds of having an infant taken into care at birth, 16 consistent with our aRR of 8.10.…”

Section: Discussionmentioning

confidence: 99%

“…15, 17 -20 However, only 2 studies have been focused on the newborn period, 15,16 with authors of most studies failing to consider age at removal. 12 -14, 17, 18 Other than 1 population-based study, 16 data are primarily from court documents 12, 13, 18 -20 and social service agency records, 14,15,17 which are used to capture high-risk groups. Also, many studies do not have comparison groups without IDDs or with IDDs but no custody loss, making it difficult to explain disparities.…”

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confidence: 99%

“…Also, many studies do not have comparison groups without IDDs or with IDDs but no custody loss, making it difficult to explain disparities. 14,15,18 In a population-based cohort in Ontario, Canada, our objectives were to (1) estimate and compare the risk of discharge to child protective services directly from the birth hospitalization in newborns of women with IDDs versus without IDDs and (2) identify risk factors for discharge to child protective services among newborns of women with IDDs.…”

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confidence: 99%

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Maternal Intellectual or Developmental Disability and Newborn Discharge to Protective Services

et al. 2018

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BACKGROUND: Approximately half of women with intellectual and developmental disabilities (IDDs) lose custody of their children at some point in their child's development, but their rates of and risk factors for newborn discharge to child protective services from the birth hospitalization are relatively unknown. METHODS: We conducted a population-based study of newborns of 3845 women with IDDs and 379 834 women without IDDs in Ontario, Canada (2002-2012). We used modified Poisson regression to estimate adjusted relative risks (aRRs) and 95% confidence intervals (CIs) for discharge to child protective services directly from the birth hospitalization (1) comparing newborns of women with and without IDDs and (2) among newborns of women with IDDs according to sociodemographic, health, service, and perinatal characteristics. RESULTS: Approximately 5.7% of newborns of women with IDDs, compared with 0.2% of newborns of women without IDDs, were discharged to child protective services (aRR 8.10; 95% CI 6.51-10.09). Among newborns of women with IDDs, risk factors were maternal psychotic disorder (aRR 2.58; 95% CI 1.90-3.50), social assistance receipt (aRR 2.55; 95% CI 1.87-3.47), failure to receive an ultrasound by 20 weeks' gestation (aRR 1.76; 95% CI 1.32-2.34), and receipt of <4 prenatal visits by 36 weeks' gestation (aRR 1.71; 95% CI 1.05-2.78). CONCLUSIONS: Although women with IDDs are at risk for custody loss immediately postdelivery, certain subgroups are at higher risk than others. Women with vulnerabilities related to comorbid psychotic disorders, poverty, and inadequate prenatal care may benefit from tailored, behavior-based parenting interventions before and during pregnancy to prevent maternal-newborn separations.

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Section: Discussionmentioning

confidence: 99%

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Maternal Intellectual or Developmental Disability and Newborn Discharge to Protective Services

et al. 2018

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“…Most of the research in this area comes from Anglo‐Saxon countries and applies to persons with IDs. According to some research, almost 25% of all child care proceedings may involve parents with IDs (Azar, Maggi, & Proctor, ; Booth & Booth, ; Tøssebro, Midjo, Paulsen, & Berg, ). For this category of parents, there are indications of discrimination in child care proceedings and in courts (Booth, Mcconnell, & Booth, ), in Sweden as elsewhere (Alexius & Hollander, ).…”

Section: Introductionmentioning

confidence: 99%

Experiences of the maternal role and support in mothers with cognitive limitations who have children in placement

Janeslätt

Jöreskog

Lindstedt

et al. 2019

Child & Family Social Work

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In Sweden, when needed, children of mothers with cognitive limitations are placed in foster homes. There is a lack of knowledge about the mothers with cognitive limitations, their experiences of their maternal role, whether they get the support needed to maintain the relationship with their children, and whether the support system is adapted to mothers with cognitive limitations. The aim was to describe the experiences of the maternal role and support given in mothers with cognitive limitations who have children in placement. An explorative and qualitative design was used.Eleven respondents were interviewed with support from a study-specific guide. A model representing the respondents' experiences revealed one theme "Struggling, dependent and frustrated mothers," and three categories: I am a mother, I am dependent on an incomprehensible system, and I reluctantly accept my situation. Mothers with children in placement experience a threat to their identity and experience a need to alter their maternal role. They need adapted support to understand the decisions made and facilitate the cooperation with child protection services and the foster home. Offering service adapted to their cognitive limitations could be helpful for the struggling, dependent, and frustrated mothers.

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“…Six decades later, researchers continue to document high rates of child custody deprivation. In this issue, LaLiberte, Piescher, Mickelson, and Lee (USA), and Tøssebro, Midjo, Paulsen, and Berg (Norway) document disproportionate representation and differentially intrusive outcomes for children of parents with intellectual disabilities caught up in the child welfare system. Analysing large administrative data sets in Norway, Tøssebro et al. find that parental intellectual disability is noted in 20‐25% of all cases in which child welfare services assume custody.…”

Section: Research Impactmentioning

confidence: 99%

Parents and parenting with intellectual disabilities: An expanding field of research

McConnell

Feldman

Aunos

2017

Research Intellect Disabil

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Prevalence, Trends and Custody Among Children of Parents with Intellectual Disabilities in Norway

Abstract: The results show that prevalence depends on the definition of intellectual disability. The decreasing number of children and the need for development of specially adapted family supports are discussed.

Cited by 39 publications

References 14 publications

Maternal Intellectual or Developmental Disability and Newborn Discharge to Protective Services

Maternal Intellectual or Developmental Disability and Newborn Discharge to Protective Services

Experiences of the maternal role and support in mothers with cognitive limitations who have children in placement

Parents and parenting with intellectual disabilities: An expanding field of research

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