Preventing without stigmatizing: The complex stakes of information on AIDS

Coppola, Vincent; Camus, Odile

doi:10.1016/j.pec.2007.03.027

Cited by 6 publications

(6 citation statements)

References 29 publications

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“…Previous knowledge and understanding of a disease will also influence reaction to a diagnosis. That media can influence perception and understanding of a disease was shown in a study of HIV/AIDS patients by Coppola and Camus (2007). Gill et al.…”

Section: Discussionmentioning

confidence: 98%

MRSA – global threat and personal disaster: patients' experiences

Andersson

Lindholm

Fossum

2010

International Nursing Review

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ANDERSSON H., LINDHOLM C. & FOSSUM B. (2011) MRSA – global threat and personal disaster: patients' experiences. International Nursing Review58, 47–53 Aim: To ascertain and describe the patients' knowledge, perceptions and experiences of being methicillin‐resistant Staphylococcus aureus (MRSA) positive. Background: Antibiotic resistant bacteria are a serious global threat. MRSA can cause wound infection, pneumonia, septicaemia and mortality. This qualitative study has focused on patients' experiences of living with MRSA. Methods: Fifteen patients with MRSA‐infected wounds were interviewed. All data were transcribed verbatim and analysed according to content analysis. Findings: Information about the MRSA diagnosis often caused a shock‐like reaction. Patients' perception of being MRSA positive was stigmatizing as plague or leprosy; they felt dirty and felt that they were a severe threat to their environment. Fears of infecting someone else and being rejected were commonly expressed. The key findings emerged as a theme: Being exposed to others' shortcomings and being a threat to others' health. Three categories were identified: understanding and emotional reactions, treatment by the healthcare professionals and consequences and expectations. Gaps in both patient and staff knowledge of MRSA led to unnecessary misunderstandings, causing fear, social isolation and suffering. Conclusions: Living with MRSA can be extremely stressful for the patients. Knowledge and empathy from staff involved in their care is crucial to optimize patients' experiences. Staff education to meet patients' demand for information and prevent contamination is essential.

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Section: Discussionmentioning

confidence: 98%

MRSA – global threat and personal disaster: patients' experiences

Andersson

Lindholm

Fossum

2010

International Nursing Review

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“…Finally, at a last stage, there is the occurrence of the AIDS symptoms and of other opportunistic infections. In addition, this stage can last for years and ends with the death of the host [7]. As there exist so many strains of viruses, in order to take into account all of them, without making the model intractable, we distinguish the HIV viruses between "sensitive", (V s ) and "resistant" (V r ) to the therapy.…”

Section: The Modelmentioning

confidence: 99%

HIV vs. the Immune System: A Differential Game

2015

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A differential game is formulated in order to model the interaction between the immune system and the HIV virus. One player is represented by the immune system of a patient subject to a therapeutic treatment and the other player is the HIV virus. The aim of our study is to determine the optimal therapy that allows to prevent viral replication inside the body, so as to reduce the damage caused to the immune system, and allow greater survival and quality of life. We propose a model that considers all the most common classes of antiretroviral drugs taking into account different immune cells dynamics. We validate the model with numerical simulations, and determine optimal structured treatment interruption (STI) schedules for medications.

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“…Priority should be placed on how to most effectively communicate information to mitigate an epidemic [ 3 ], especially by improving social adherence to protective behaviors. Agencies reporting on a disease outbreak face many choices regarding what to report, or what statistics to emphasize, when providing information to the general public [ 4 , 5 ]. For example, should a reporting agency focus on the ultimate outcomes of infection (such as the number of people who have died or are hospitalized), or on the current case burden (such as the number of new cases each day, or the number of current active cases)?…”

Section: Introductionmentioning

confidence: 99%

“…Public-facing health media outlets should tailor communicated information for risk reporting [ 6 ], as risk assessment is influenced by individual perception [ 7 ] and different forms of information can vary in evoking perceived risk [ 6 , 8 ]. The importance of the information (and misinformation) available to people regarding their own personal risk of infection has been demonstrated to have the potential, at the very least, of influencing epidemic outcomes [ 3 , 4 , 9 ]. For reporting agencies, priority should be given to the data most likely to promote responsible and appropriate concern as well as the subsequent adoption of protective behaviors, rather than either incite panic or inadvertently encourage complacency [ 3 , 4 , 10 ].…”

Section: Introductionmentioning

confidence: 99%

“…The importance of the information (and misinformation) available to people regarding their own personal risk of infection has been demonstrated to have the potential, at the very least, of influencing epidemic outcomes [ 3 , 4 , 9 ]. For reporting agencies, priority should be given to the data most likely to promote responsible and appropriate concern as well as the subsequent adoption of protective behaviors, rather than either incite panic or inadvertently encourage complacency [ 3 , 4 , 10 ]. Reporting agencies have the responsibility [ 11 ] and capacity to balance generating concern while lessening irrational fear, which was evident for COVID-19 via panic buying [ 12 ] and across social media [ 13 ]—although the risk of COVID-19 likely greatly outweighed potential damage due to panic [ 14 ].…”

Section: Introductionmentioning

confidence: 99%

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How reported outbreak data can shape individual behavior in a social world

Pritchard

Silk

Carrignon

et al. 2022

J Public Health Pol

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Agencies reporting on disease outbreaks face many choices about what to report and the scale of its dissemination. Reporting impacts an epidemic by influencing individual decisions directly, and the social network in which they are made. We simulated a dynamic multiplex network model—with coupled infection and communication layers—to examine behavioral impacts from the nature and scale of epidemiological information reporting. We explored how adherence to protective behaviors (social distancing) can be facilitated through epidemiological reporting, social construction of perceived risk, and local monitoring of direct connections, but eroded via social reassurance. We varied reported information (total active cases, daily new cases, hospitalizations, hospital capacity exceeded, or deaths) at one of two scales (population level or community level). Total active and new case reporting at the population level were the most effective approaches, relative to the other reporting approaches. Case reporting, which synergizes with test-trace-and-isolate and vaccination policies, should remain a priority throughout an epidemic. Supplementary Information The online version contains supplementary material available at 10.1057/s41271-022-00357-7.

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Preventing without stigmatizing: The complex stakes of information on AIDS

Cited by 6 publications

References 29 publications

MRSA – global threat and personal disaster: patients' experiences

MRSA – global threat and personal disaster: patients' experiences

HIV vs. the Immune System: A Differential Game

How reported outbreak data can shape individual behavior in a social world

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