Primary care nursing and genetics: it isn’t part of your role … is it?

Kirk, Maggie; Tonkin, Emma; Marshall, D. L. Patricia

doi:10.7748/phc.16.7.34.s17

Cited by 2 publications

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“…The need to provide supportive care for individuals and families who have undergone genetic testing has led to new responsibilities and challenges for the nursing profession. 1 A framework for integrating genetics into nursing practice includes a philosophy of care that recognizes when and how genetic factors can play a role in an individual's health. [2][3][4] Nurses must be aware of their responsibilities in handling genetic information and potential ethical considerations such as informed consent and decision making, privacy and confidentiality of genetic information, and access to and justice in health care.…”

Section: Introductionmentioning

confidence: 99%

Ethical Issues Related To BRCA Gene Testing in Orthodox Jewish Women

Mor

Oberle

2008

Nurs Ethics

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Persons exhibiting mutations in two tumor suppressor genes, BRCA1 and BRCA2, have a greatly increased risk of developing breast and/or ovarian cancer. The incidence of BRCA gene mutation is very high in Ashkenazi Jewish women of European descent, and many issues can arise, particularly for observant Orthodox women, because of their genetic status. Their obligations under the Jewish code of ethics, referred to as Jewish law, with respect to the acceptability of various risk-reducing strategies, may be poorly understood. In this article the moral direction that Jewish law gives to women regarding testing, confidentiality, and other issues is explored. The intent is to broaden nurses' knowledge of how a particular religious tradition could impact on decision making around genetics testing, with the aim of enhancing their understanding of culturally sensitive ethical care.

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Section: Introductionmentioning

confidence: 99%

Ethical Issues Related To BRCA Gene Testing in Orthodox Jewish Women

Mor

Oberle

2008

Nurs Ethics

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Working with publishers: a novel approach to ascertaining practitioners' needs in genetics education

Kirk

Tonkin

Birmingham³

2007

Journal of Research in Nursing

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Genetics are becoming increasingly important within healthcare, but the evidence indicates that nurses are not confident in dealing with the genetics needs of their patients, and education provision is often inadequate. An innovative approach has been used to raise awareness of genetics and simultaneously to explore the learning needs of UK nurses. A template article tailored to the readership, followed by a questionnaire, was published in seven specialist nursing journals. The questionnaire sought to establish awareness of, and confidence in, genetics in everyday practice, and its perceived importance, using the seven UK nursing competences in genetics as a guide. Willingness to update knowledge and skills, and perceptions of managerial support were also explored. The competences are not used equally, or viewed with equal importance, and respondents (n ϭ 198) do not have the same confidence in demonstrating them, with deficits in two crucial areas of genetics competence. Post-registration genetics education has a significant influence on the frequency and confidence with which they are used. This study has highlighted that education initiatives need to use accessible, interactive learning approaches and engage support from senior nurses. The relevance and importance of genetics across diverse areas of nursing practice is yet to be fully appreciated.

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Primary care nursing and genetics: it isn’t part of your role … is it?

Cited by 2 publications

References 0 publications

Ethical Issues Related To BRCA Gene Testing in Orthodox Jewish Women

Ethical Issues Related To BRCA Gene Testing in Orthodox Jewish Women

Working with publishers: a novel approach to ascertaining practitioners' needs in genetics education

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