Primary Health and Supportive Care Needs of Long-Term Cancer Survivors: A Questionnaire Survey

Harrison, Siân; Watson, Eila; Ward, Alison; Khan, Nada; Turner, Daniel Cross; Adams, Eike; Forman, David; Roche, Monica; Rose, Peter W.

doi:10.1200/jco.2010.32.5167

Cited by 161 publications

(157 citation statements)

References 42 publications

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“…The breast cancer patients in the present study reported lower psychological unmet needs than those reported in Western research (Whelan et al, 1997;Hodgkinson et al, 2007;Armes et al, 2009;Harrison et al, 2011;Lam et al, 2011;Schmid-Büchi et al, 2011). It should be noted that the women in the present study had completed their initial course of treatment and were four to six months post diagnosis.…”

Section: Discussioncontrasting

confidence: 51%

“…This is similar to Asian studies conducted in Taiwan (Liao et al, 2012), Japan (Nakaguchi et al, 2013) and Hong Kong Li et al, 2013) wherein breast cancer patients reported high rates of unmet supportive care needs, particularly in the informational domain. This contrasts with research conducted in Western countries, including Switzerland (Schmid-Büchi et al, 2012), Australia (Hodgkinson et al, 2007;McDowell et al, 2010), Germany (Lam et al, 2011), England (Armes et al, 2009;Harrison et al, 2011) and Canada (Whelan et al, 1997), wherein breast cancer patients have moderate levels of supportive care needs and unmet needs were highest in the psychological domain. Differences in supportive care needs have leaded others to conclude that supportive care needs are culturally dependant (Lam et al, 2011).…”

Section: Discussioncontrasting

confidence: 42%

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Un-met Supportive Care Needs of Iranian Breast Cancer Patients

Abdollahzadeh

Moradi²,

Pakpour³

et al. 2014

Asian Pacific Journal of Cancer Prevention

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Background: Assessment of supportive needs is the requirement to plan any supportive care program for cancer patients. There is no evidence about supportive care needs of Iranian breast cancer patients. So, the aims of present study were to investigate this question and s predictive factors. Materials and Methods: A descriptivecorrelational study was conducted, followed by logistic regression analyses. The Supportive Care Needs Survey was completed by 136 breast cancer patients residing in Iran following their initial treatment. This assessed needs in five domains: psychological, health system and information, physical and daily living, patient care and support, and sexuality. Results: Patient perceived needs were highest in the health systems and information (71%), and physical and daily living (68%) domains. Logistic regression modeling revealed that younger participants have more un-met needs in all domains and those with more children reported fewer un-met needs in patient care and support domains. In addition, married women had more un-met supportive care needs related to sexuality. Conclusions: The high rate of un-met supportive care needs in all domains suggests that supportive care services are desperately required for breast cancer patients in Iran. Moreover, services that address informational needs and physical and daily living needs ought to be the priority, with particular attention paid to younger women. Further research is clearly needed to fully understand supportive care needs in this cultural context.

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Section: Discussioncontrasting

confidence: 51%

Section: Discussioncontrasting

confidence: 42%

Un-met Supportive Care Needs of Iranian Breast Cancer Patients

Abdollahzadeh

Moradi²,

Pakpour³

et al. 2014

Asian Pacific Journal of Cancer Prevention

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“…For our two studies (Kanera, Bolman, Mesters, et al., 2016; Willems et al., 2016a), the validated CaSUN was regarded as the most appropriate general questionnaire to specifically investigate the unmet needs of cancer survivors (Bender et al., 2012; Brennan, Butow, Spillane, & Boyle, 2016; Geller et al., 2014; Harrison et al., 2011; Hodgkinson, Butow, Fuchs, et al., 2007; Hodgkinson, Butow, Hunt, et al., 2007; Rowlands, Janda, McKinnon, Webb, & Beesley, 2015; Smith et al., 2013; Urbaniec, Collins, Denson, & Whitford, 2011). Therefore, the CaSUN was translated into Dutch.…”

Section: Introductionmentioning

confidence: 99%

Psychometric properties of the Dutch extended Cancer Survivors’ Unmet Needs measure (CaSUN-NL)

et al. 2018

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Information and support needs increase emotional distress and can impede cancer survivors’ adjustment. To investigate the information and support needs of Dutch cancer survivors, the Cancer Survivors’ Unmet Needs measure (CaSUN) was translated into Dutch and applied in two Dutch studies with cancer survivors (N = 255; N = 467). The CaSUN‐NL entailed the original five CaSUN scales, extended with respectively a returning to work and lifestyle scale. This study aimed to determine the psychometric properties of the CaSUN‐NL. To assess validity, a maximum likelihood factor analysis was employed. Construct validity was analysed using Pearson's and Spearman's correlation coefficients. To assess reliability, test–retest (Kappa coefficient) and internal consistency (Cronbach's alpha) values were determined. Factor analysis revealed the original five factors. Test–retest reliability was low (r ≤ .15, 93% retest response). Internal consistency values were high (Cronbach's alpha = 0.92–0.94), except for lifestyle. Significant correlations were found between total number of unmet needs with anxiety (r = .55), depression (r = .49), negative adjustment (r = .50), quality of life (r = −.52) and age (r = −.24). The CaSUN‐NL is valid and reliable to investigate the unmet information and support needs of Dutch cancer survivors.

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“…Researchers have reported that breast cancer survivors displayed poorer quality of life than control groups 15,21,[25][26][27] , whereas other authors have not 23,24,26,28,29 .…”

Section: Introductionmentioning

confidence: 99%

Fatigue and quality of life in breast cancer survivors: a comparative study

Kluthcovsky¹,

Urbanetz²

2015

Rev. Bras. Ginecol. Obstet.

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PURPOSE: To assess fatigue and quality of life in disease-free breast cancer survivors in relation to a sample of age-matched women with no cancer history and to explore the relationship between fatigue and quality of life. METHODS: A cross-sectional study was conducted in a sample of 202 consecutive disease-free Brazilian breast cancer survivors, all of whom had completed treatment, treated at 2 large hospitals. The patients were compared to age-matched women with no cancer history attending a primary health care center. The Piper Fatigue Scale-Revised and the World Health Organization Quality of Life Instrument (WHOQOL-BREF) were used to measure the fatigue and quality of life, respectively. Socio-demographic and clinical variables were also obtained. The χ 2 test, generalized linear model, and Spearman correlation coefficient were used for statistical purposes. The adopted level of significance was 5%. RESULTS: Breast cancer survivors experienced significantly greater total and subscale fatigue scores than comparison group (all p-values<0.05). In addition, survivors reported a poorer quality of life in physical (p=0.002), psychological (p=0.03), and social relationships (p=0.03) domains than comparison group. No difference was found for the environmental domain (p=0.08) for both groups. For survivors of breast cancer and for comparison group, the total and subscale fatigue scores were related to lower quality of life (all p-values<0.01). CONCLUSION: The findings of this study highlight the importance of assessing fatigue and quality of life in breast cancer survivors. ResumoOBJETIVO: Avaliar a fadiga e a qualidade de vida de sobreviventes de câncer de mama, livres da doença, em relação a uma amostra de mulheres da mesma idade, sem histórico de câncer, e explorar a relação entre fadiga e qualidade de vida. MÉTODOS: Estudo transversal realizado com uma amostra consecutiva de 202 pacientes brasileiras, sobreviventes de câncer de mama e livres da doença, que haviam completado o tratamento em 2 grandes hospitais. As pacientes foram comparadas com mulheres da mesma idade, sem história de câncer, acompanhadas em uma Unidade Básica de Saúde. A Escala de Fadiga de Piper-Revisada e o World Health Organization Quality of Life Instrument (WHOQOL-BREF) foram usados para avaliar a fadiga e a qualidade de vida, respectivamente. Dados sociodemográficos e clínicos também foram obtidos. O teste do χ 2 , modelo linear generalizado e coeficiente de correlação de Spearman foram utilizados para fins estatísticos. Foi adotado o nível de significância de 5%. RESULTADOS: As sobreviventes de câncer de mama apresentaram significativamente maiores escores de fadiga total e das subescalas do que o grupo controle (todos os valores de p<0,05). Além disso, as sobreviventes relataram pior qualidade de vida nos domínios físico (p=0,002), psicológico (p=0,03) e relações sociais (p=0,03) do que o grupo controle. Nenhuma diferença foi encontrada para o domínio ambiental (p=0,08) entre os 2 grupos. Para as sobreviventes de câncer de mama...

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Primary Health and Supportive Care Needs of Long-Term Cancer Survivors: A Questionnaire Survey

Cited by 161 publications

References 42 publications

Un-met Supportive Care Needs of Iranian Breast Cancer Patients

Un-met Supportive Care Needs of Iranian Breast Cancer Patients

Psychometric properties of the Dutch extended Cancer Survivors’ Unmet Needs measure (CaSUN-NL)

Fatigue and quality of life in breast cancer survivors: a comparative study

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