Objective
To identify existing guidelines, standards, or consensus-based
reports for psychosocial care of children with cancer and their
families.
Purpose
Psychosocial standards of care for children with cancer can
systematize the approach to care and create a replicable model that can be
utilized in pediatric hospitals around the world. Determining gaps in
existing standards in pediatric psycho-oncology can guide development of
useful evidence- and consensus-based standards.
Methods
The MEDLINE and PubMed databases were searched by investigators at
two major pediatric oncology centers for existing guidelines,
consensus-based reports, or standards for psychosocial care of pediatric
cancer patients and their families published in peer-reviewed journals in
English between 1980 and 2013.
Results
We located 27 articles about psychosocial care that met inclusion
criteria: 5 set forth standards, 19 guidelines and 3 were consensus-based
reports. None were sufficiently up-to-date, significantly evidence-based,
comprehensive and specific enough to serve as a current standard for
psychosocial care for children with cancer and their families.
Conclusion
Despite calls by a number of international pediatric oncology and
psycho-oncology professional organizations about the urgency of addressing
the psychosocial needs of the child with cancer in order to reduce
suffering, there remains a need for development of a widely acceptable,
evidence- and consensus-based, comprehensive standard of care to guide
provision of essential psychosocial services to all pediatric cancer
patients.