Prioritizing COVID-19 vaccinations for individuals with intellectual and developmental disabilities

Hotez, Emily; Hotez, Peter J.; Rosenau, Kashia A; Kuo, Alice

doi:10.1016/j.eclinm.2021.100749

Cited by 28 publications

(20 citation statements)

References 9 publications

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“…Furthermore, as this review only covered the year 2020, there is no information on vaccination and monitoring of vaccination uptake is required. It is important that the feelings, experiences, awareness and the unique concerns of people with intellectual disability and their families should be prioritised and not overlooked, forgotten or neglected [ 55 , 56 ]. Furthermore, research is needed on strategies of improving the health protection measures for people with intellectual disability during the outbreak [ 57 ] and identify resilience measures [ 58 ].…”

Section: Discussionmentioning

confidence: 99%

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Doody

Keenan

2021

Annals of Medicine

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Background: People with an intellectual disability are a vulnerable group during COVID-19 due to multi-morbidity, frailty, underlying conditions/health problems, social circumstances and limitations in understanding. This place them at greater risk of more severe outcomes from COVID-19. Objective: To chart the evidence of the effects of the COVID-19 pandemic on people with intellectual disability and their carers reported in the research. Methods: A scoping review method was used to review literature published across eight databases in 2020 and included manual searches of reference lists of included articles. Results: Sixteen studies were selected for inclusion. The findings highlight that professionals, people with intellectual disability and their carers were keen to comply with pandemic related public health guidance. However, implementing infection prevention and control measures in certain contexts for people with intellectual disability was challenging. Thereby a rights-based, person-centred approach to care is essential and professionals need to extend their understanding and practice of collaborative working to include people with intellectual disability and their family/carers. The findings highlight that compliance with public health guidance and infection control measures can be difficult for people with intellectual disability to implement. Conclusions: There is limited good quality robust research on COVID-19 and people with intellectual disability and/or their carers experiences.

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Section: Discussionmentioning

confidence: 99%

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Doody

Keenan

2021

Annals of Medicine

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Section: Discussionmentioning

confidence: 99%

“…The fact that the case rate, case-fatality rate, and mortality rate were substantially higher for people with IDD living in residential settings than for New York City overall is consistent with results from prior studies documenting increased COVID-19 risk for people with IDD and emphasizes the urgent need to prioritize vaccination allocation for this population. 44,45 Analysis of risk factors associated with COVID-19 among people with IDD found similarities to and differences from the general population. These results provide critical information needed to ensure the health and safety of people with IDD during the pandemic.…”

Section: Discussionmentioning

confidence: 99%

Risk Factors Associated With COVID-19 Outcomes Among People With Intellectual and Developmental Disabilities Receiving Residential Services

Landes

Turk

Damiani³

et al. 2021

JAMA Netw Open

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Key Points Question What individual and residential characteristics are associated with COVID-19 outcomes for people with intellectual and developmental disabilities receiving residential services? Findings In this cohort study of 543 adults with intellectual and developmental disabilities receiving residential services in New York City, age, larger residential settings, Down syndrome, and chronic kidney disease were associated with COVID-19 diagnosis. Heart disease was associated with COVID-19 mortality. Meaning This study’s findings suggest that risk factors for COVID-19 diagnosis and mortality for people with intellectual and developmental disabilities receiving residential services are similar to (age, preexisting conditions, size of residence) and unique from (Down syndrome) those reported in the general population.

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“…11 However, all persons with IDD have not been similarly prioritized. 12 As vaccine access expands to general and IDD populations, vaccine hesitancy may pose a barrier to population-level immunity. National data suggests that approximately 25–30% of adults are hesitant to receive the COVID-19 vaccine, even if it were available for free.…”

mentioning

confidence: 99%

COVID-19 vaccine perceptions in New York State's intellectual and developmental disabilities community

Iadarola

Siegel

Gao

et al. 2022

Disability and Health Journal

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Background People with intellectual and developmental disabilities (IDD) are at disproportionate risk for severe COVID-19 outcomes, particularly those living in congregate care settings. Yet, there is limited data on vaccine perceptions in the disability community. Objective To explore COVID-19 vaccine perceptions in individuals with IDD, their family members, and those who work with them, to inform a statewide vaccine information and messaging project. Methods A national survey, adapted in five languages for the IDD community, was distributed to a convenience sample of IDD organizations throughout New York State. Constructs included vaccine intention, reasons for vaccine hesitancy, and trusted sources of vaccine information. Zip code data were used to map respondent location and vaccine preferences. Results Of n = 825 respondents, approximately 75% intended to or had received the vaccine across roles (i.e., people with disabilities, family members, direct care workers) and racial/ethnic groups. Greater vaccine hesitancy was reported in younger individuals and those making decisions on behalf of a person with IDD. Concerns included side effects and the swiftness of vaccine development. Black and Hispanic participants had heightened concerns about being an “experiment” for the vaccine. Trusted sources of information included healthcare providers and family members. Respondents who intended to/received the vaccine were dispersed throughout the state. Conclusions Vaccine preferences in this New York State disability community sample align with national data. Identified concerns suggest the need for community education that addresses misperceptions. Age and race differences in perspectives highlight the need for tailored education, delivered by trusted messengers.

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Prioritizing COVID-19 vaccinations for individuals with intellectual and developmental disabilities

Cited by 28 publications

References 9 publications

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Risk Factors Associated With COVID-19 Outcomes Among People With Intellectual and Developmental Disabilities Receiving Residential Services

COVID-19 vaccine perceptions in New York State's intellectual and developmental disabilities community

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