Privacy: a Real-World Problem with Fuzzy Boundaries

Lincoln, Tim

doi:10.1055/s-0038-1635062

Cited by 9 publications

(4 citation statements)

References 1 publication

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“…They are also sensible to the fact that it is possible that undesirable social and economic consequences can happen following a misuse of such data [23]. It is, therefore, necessary to maintain the privacy of information collected during healthcare processes because of significant economic, psychologic, and social harm that can come to individuals when personal health information is disclosed [24,25]. There are multiple definitions of privacy [26,27,28], each one focused on different declinations of the same principle: “the ones right to manage valuable personal information”.…”

Section: Privacymentioning

confidence: 99%

Towards an Architecture to Guarantee Both Data Privacy and Utility in the First Phases of Digital Clinical Trials

Angeletti

Chatzigiannakis

Vitaletti

2018

Sensors

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In the era of the Internet of Things (IoT), drug developers can potentially access a wealth of real-world, participant-generated data that enable better insights and streamlined clinical trial processes. Protection of confidential data is of primary interest when it comes to health data, as medical condition influences daily, professional, and social life. Current approaches in digital trials entail that private user data are provisioned to the trial investigator that is considered a trusted party. The aim of this paper is to present the technical requirements and the research challenges to secure the flow and control of personal data and to protect the interests of all the involved parties during the first phases of a clinical trial, namely the characterization of the potential patients and their possible recruitment. The proposed architecture will let the individuals keep their data private during these phases while providing a useful sketch of their data to the investigator. Proof-of-concept implementations are evaluated in terms of performances achieved in real-world environments.

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Section: Privacymentioning

confidence: 99%

Towards an Architecture to Guarantee Both Data Privacy and Utility in the First Phases of Digital Clinical Trials

Angeletti

Chatzigiannakis

Vitaletti

2018

Sensors

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“…A number of recent, significant papers [91][92][93][94][95][96][97] have focused upon two quite different views of the record which have polarised the Medical Informatics community; these being the gnostic analogue and the information model. We consider both perspectives, seeing in these some parallel with the earlier distinction made between "patient as text" and "clinician as author".…”

Section: Taxonomy For Models Of the Medical Recordmentioning

confidence: 99%

“…Both sets of views are briefly summarised here (in 6.4.1, in 6.4.2, and together in 6.4.3) before a third approach is given which seems to accommodate both perspectives whilst recogmsmg their differences and intrinsic value. For full details, the reader is referred back to the original papers [91][92][93][94][95][96][97].…”

Section: Taxonomy For Models Of the Medical Recordmentioning

confidence: 99%

Medical Records and Other Stories: a Narratological Framework

Kay¹,

Purves²

1996

Methods Inf Med

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A new model of the medical record is introduced which can incorporate context, structure, process and use of the medical record within a single narratological framework. It is claimed that the analysis of narrative and, in particular, the study of the story metaphor can provide a theoretical model which provides coherence within the broad discipline of Medical Informatics. It is argued that this framework maintains different levels of abstraction, is useful for teaching and clinical practice, and that its concepts can be readily understood by those in both lay and technical healthcare professions.

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“…In 1993, Lincoln already expressed his doubts on the subject. 1,2 The topic became even more important with the technological development of smartphones, truly portable computers, accessible every moment, making communication and image sharing easier. They are so accessible that they have already begun to influence medical students in their learning processes.…”

Section: Introductionmentioning

confidence: 99%

Telemedicine inside the Pocket: The Impact of Smartphones on Daily Patients’ Evaluations

Nasr¹,

Abreu²,

Bassani³

et al. 2016

Panamerican Journal of Trauma, Critical Care &Amp; Emergency Surgery

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Objective: To evaluate the perception of doctors, residents, and medical students of smartphone use on daily medical practice. Materials and methods:Cross-sectional study with data collected online by questionnaire on Google Docs ® , with closed multiple-choice questions regarding smartphones use in medical practice and its impact on decision-making and patients' privacy.Results: There were 118 questionnaires, mostly from students (61%), followed by medical residents (31%) and medical preceptors (8%). All preceptors confirmed eventual use of smartphones on clinical cases discussions, 77.8% of whom use it in less than half of the time. Among the residents, 94.6% use theirs smartphones, 77% of them in more than half of the time. On the contrary, 12.5% of the students do not use this kind of resource, and among those that do use it, 50% do so more than half of the time. All preceptors, 94.6% residents and 80.6% of the students believe its use does not expose the patients' privacy.Conclusion: Preceptors and residents use smartphones more often than medical students. Most agree its use helps on daily decision-making and does not jeopardize the patients' privacy.

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Privacy: a Real-World Problem with Fuzzy Boundaries

Abstract: Response to: Kluge E-H W. Advanced patient records: some ethical and legal considerations touching medical information space. Meth Inform Med 1993; 32: 95-103

Cited by 9 publications

References 1 publication

Towards an Architecture to Guarantee Both Data Privacy and Utility in the First Phases of Digital Clinical Trials

Towards an Architecture to Guarantee Both Data Privacy and Utility in the First Phases of Digital Clinical Trials

Medical Records and Other Stories: a Narratological Framework

Telemedicine inside the Pocket: The Impact of Smartphones on Daily Patients’ Evaluations

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