Problem‐solving skills, parent–adolescent communication, dyadic functioning, and distress among adolescents with cancer

Viola, Adrienne; Taggi-Pinto, Alison; Sahler, Olle Jane Z.; Alderfer, Melissa A.; Devine, Katie A.

doi:10.1002/pbc.26951

Cited by 9 publications

(14 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The age range of patients was broad, from 3 to 24 years old, with a majority of the participants identifying as White [ 8 , 26 , 32 , 33 , 34 , 35 ]. Nine out of ten studies provided demographic information about child/adolescents’ biological sex [ 8 , 26 , 32 , 33 , 34 , 35 , 36 , 37 , 38 ]. The majority of studies included a slightly higher number of male participants [ 32 , 33 , 35 , 36 , 37 ].…”

Section: Resultsmentioning

confidence: 99%

“…Nine out of ten studies provided demographic information about child/adolescents’ biological sex [ 8 , 26 , 32 , 33 , 34 , 35 , 36 , 37 , 38 ]. The majority of studies included a slightly higher number of male participants [ 32 , 33 , 35 , 36 , 37 ]. However, no influence of sex differences on parent–child communication was reported.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Therapeutic Parent–Child Communication and Health Outcomes in the Childhood Cancer Context: A Scoping Review

Son,

Kim

2024

Cancers

View full text Add to dashboard Cite

Family communication has been thought to be an important area to support children’s adjustment to a cancer diagnosis. However, the characteristics of therapeutic parent–child communication that contribute to better patient outcomes and the specific patient health outcomes have been less explored. This current review explored the characteristics of therapeutic parent–child communication and its physical and psychological health outcomes. A total of 5034 articles were initially identified, and only 10 articles remained for inclusion in this review after application of the exclusion criteria. Most studies used a cross-sectional design and measured verbal communication characteristics and its psychological outcomes, but no physical outcomes. The characteristics of therapeutic verbal communication (openness, maternal validation, quality of information shared, etc.) and nonverbal communication (eye contact, close physical distance, and acknowledging behaviors) were identified. The psychological health outcomes included less distress, a lower level of PTSS, less internalizing and externalizing of symptoms, increased levels of social emotional competencies, better peer relationships, and more cooperation during the procedure at the individual level. Increased family cohesion and family adaptation were family-level outcomes. Longitudinal studies are needed to identify what qualities of communication predict better psychological outcomes so that interventions can be developed and tested. In addition, physical outcomes should be evaluated.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Therapeutic Parent–Child Communication and Health Outcomes in the Childhood Cancer Context: A Scoping Review

Son,

Kim

2024

Cancers

View full text Add to dashboard Cite

show abstract

“…The lack of open communication between parents, adolescent and healthcare professionals about living with illness has consistently been reported by several studies [6][7][8][9][10][11], while adolescents have the desire and ability to share their values, beliefs and preferences of treatment [6,12,13] and parents indicate that they find it important to communicate about these themes [6]. Talking about cancer with their child has been designated as one of the most significant sources of stress during treatment [14], especially talking about what to do if the adolescent's health should get significantly worse [11].…”

Section: Introductionmentioning

confidence: 99%

The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility

et al. 2022

View full text Add to dashboard Cite

Background Although advance care planning (ACP) has been widely recommended to support patient and family engagement in understanding the patient’s values, preferences and goals of care, there are only a few models in paediatric oncology that capture ACP as a process of behaviour change. We aimed to develop and test the acceptability and feasibility of BOOST pACP (Benefits of Obtaining Ownership Systematically Together in paediatric Advance Care Planning) – an intervention to improve ACP in adolescents with cancer, their parents and paediatric oncologists. Methods Several methods informed the intervention development process: 1) Problem identification: interviews with 11 healthcare professionals working in paediatric oncology; 2) Identification of evidence: literature review of existing pACP tools and barriers and facilitators in performing pACP; 3) Logic model and 4) Intervention design: collaborative expert meetings with researchers and professionals in pACP; 5a) Acceptability test of the materials: interviews with nine healthcare professionals, four adolescents and young adults with cancer and six parents; 5b) Feasibility test of core intervention components with three families, including interviews about their experiences. Results The BOOST pACP intervention was iteratively developed and adapted, based on feedback from families, healthcare professionals, and pACP experts (e.g., components were changed, deleted, and added; formulation of themes and associated questions were amended to enhance acceptability). The core components of the BOOST pACP intervention include: four ACP conversation sessions with the adolescent and/or parent(s) provided by a trained facilitator, structured by interactive conversation cards covering different ACP themes, followed by a transfer of information from the intervention facilitator to the paediatric oncologist. Core intervention components were deemed feasible by all participating families. Conclusion The BOOST pACP intervention was developed by close involvement of both adolescent patients and their parents, healthcare professionals and pACP experts. The final intervention and supporting materials are considered appropriate and feasible. Its effectiveness in improving parent-adolescent communication on ACP themes is currently being tested in a multi-centre randomised controlled trial. Researchers aiming to develop a complex psychosocial intervention for a vulnerable target group could use the step-by-step approach described in this paper.

show abstract

“…The lack of open communication between parents, adolescent and healthcare professionals about living with illness has consistently been reported by several studies(4-9), while adolescents have the desire and ability to share their values, beliefs and preferences of treatment (4,10,11) and parents indicate that they nd it important to communicate about these themes (4). Talking about cancer with their child has been designated as one of the most signi cant sources of stress during treatment (12), especially talking about what to do if the adolescent's health should get signi cantly worse (9).…”

Section: Introductionmentioning

confidence: 99%

The BOOST Paediatric Advance Care Planning Intervention for Adolescents with Cancer and Their Parents: Development, Acceptability and Feasibility

Driessche

Gilissen

Vleminck

et al. 2022

Preprint

View full text Add to dashboard Cite

Background Although advance care planning (ACP) has been widely recommended to support patient and family engagement in understanding the patient’s values, preferences and goals of care, there are only a few models in paediatric oncology that capture ACP as a process of behaviour change. We aimed to develop and test the acceptability and feasibility of BOOST pACP (Benefits of Obtaining Ownership Systematically Together in paediatric Advance Care Planning) – an intervention to improve ACP in adolescents with cancer, their parents and paediatric oncologists. Methods Several methods informed the intervention development process: 1) Problem identification: interviews with 11 healthcare professionals working in paediatric oncology; 2) Identification of evidence: literature review of existing pACP tools and barriers and facilitators in performing pACP; 3) Logic model and 4) Intervention design: collaborative expert meetings with researchers and professionals in pACP; 5a) Acceptability test of the materials: interviews with 9 healthcare professionals, 4 adolescents and young adults with cancer and 6 parents; 5b) Feasibility test of core intervention components with 3 families, including interviews about their experiences. Results The BOOST pACP intervention was iteratively developed and adapted, based on feedback from families, healthcare professionals, and pACP experts (e.g., components were changed, deleted, and added; formulation of themes and associated questions were amended to enhance acceptability). The core components of the BOOST pACP intervention include: 4 ACP conversation sessions with the adolescent and/or parent(s) provided by a trained facilitator, structured by interactive conversation cards covering different ACP themes, followed by a transfer of information from the intervention facilitator to the paediatric oncologist. Core intervention components were deemed feasible by all participating families. Conclusion The BOOST pACP intervention was developed by close involvement of both adolescent patients and their parents, healthcare professionals and pACP experts. The final intervention and supporting materials are considered appropriate and feasible. Its effectiveness in improving parent-adolescent communication on ACP themes is currently being tested in a multi-centre randomised controlled trial. Researchers aiming to develop a complex psychosocial intervention for a vulnerable target group could use the step-by-step approach described in this paper.

show abstract

Problem‐solving skills, parent–adolescent communication, dyadic functioning, and distress among adolescents with cancer

Cited by 9 publications

References 28 publications

Therapeutic Parent–Child Communication and Health Outcomes in the Childhood Cancer Context: A Scoping Review

Therapeutic Parent–Child Communication and Health Outcomes in the Childhood Cancer Context: A Scoping Review

The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility

The BOOST Paediatric Advance Care Planning Intervention for Adolescents with Cancer and Their Parents: Development, Acceptability and Feasibility

Contact Info

Product

Resources

About