Problèmes respiratoires des personnes polyhandicapées : le point de vue du médecin de médecine physique et de réadaptation

Gautheron, V.; Mathevon, L.; Bayle, B.; Boulard, C.; Paricio, Carlos Sanz; Seeman, Erik R.; Dohin, B.

doi:10.1016/j.motcer.2015.03.001

Cited by 3 publications

(2 citation statements)

References 3 publications

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“…The mean preoperative scores were 53 (17), 14 (5), and 39 (13) for PSS (/129), coPSS (/69) and abPSS (/60) respectively. For postoperative scores, we found a score of 49 (16) for PSS, a score of 12 (4) for coPSS and a score of 37 (13) for abPSS.…”

Section: Descriptive Datamentioning

confidence: 99%

“…As comorbidities accumulate in patients with PLH throughout their lives, impairments, activity limitations and health-related quality of life (QoL) worsen [4]. Among comorbidities in patients with PLH, scoliosis represents one of the most prevalent conditions with chronic respiratory insufficiency [5][6][7], chronic digestive disorders, or epilepsy [8]. Indeed, Rousseau et al [9] estimated that the prevalence of severe scoliosis (scoliosis with Cobb angle >50˚) prevalence was 60.2%, accounting for a large proportion of deaths induced by respiratory failure.…”

Section: Introductionmentioning

confidence: 99%

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Impact of spinal fusion on severity health status in scoliotic adolescents with polyhandicap

Bessaguet,

Rousseau,

Gautheron

et al. 2024

PLoS ONE

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Background Scoliosis constitutes a prevalent comorbidity in adolescents with polyhandicap and frequently leads to other severe impairments, impacting abilities and requiring complex caregiving strategies. Therefore, spinal fusion surgeries are commonly performed to alleviate pain and provide more comfort. However, spine stabilization has not previously been proven to improve the severity health status of adolescents with polyhandicap according to specific clinical scales. Objective This study describes and compares the severity health status of adolescents with polyhandicap before and after they underwent spinal fusion. Methods A monocentric retrospective observational study was conducted in the university hospital centre of Saint-Etienne, France. We included between 2009 to 2020, 30 scoliotic adolescents with polyhandicap who underwent spinal fusion performed with the same surgical technique and the same surgeon. The main outcome was the variation in the Polyhandicap Severity Scale (PSS) score after surgery. Secondary outcomes were variations in PSS subscores, quality of life scores, fronto-sagittal X-ray parameters, and measures of surgical complication rates and lengths of stay. Results Among 30 adolescents, 27 PSS analyses were performed. We found a significant improvement between pre- and postoperative PSS scores, mainly for pain and respiratory, digestive, and skin disabilities. These improvements were accompanied by significant reductions in pelvic obliquity, in frontal and sagittal curves. The mean hospital length of stay was 45 days. During postoperative period, patients received a personalized postoperative rehabilitation procedure with spasticity and pain treatments, physiotherapy, and verticalization (wheelchair sitting and positioning devices such as contoured seat intended to increase postural stability). The mortality rate was estimated at 7%. At least 1 complication per patient occurred. Conclusions We show that spinal fusion surgeries confer a significant improvement in the severity health status in scoliotic adolescents with polyhandicap.

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Section: Descriptive Datamentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Impact of spinal fusion on severity health status in scoliotic adolescents with polyhandicap

Bessaguet,

Rousseau,

Gautheron

et al. 2024

PLoS ONE

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La santé et ses troubles

2017

Comprendre La Paralysie Cérébrale Et Les Troubles Associés

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Health status of individuals with polyhandicap across a 5-year follow-up period

Rousseau,

Hamouda,

Aim

et al. 2024

Sci Rep

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The present longitudinal study examined a large sample of individuals with PIMD/Polyhandicap to: (i) describe the evolution over time of the health status in terms of severity, (ii) identify the potential predictors of health status change. This study used the data of the French national EVAL-PLH cohort. Inclusion criteria were: individuals with PIMD/Polyhandicap; age > 3 years at the time of inclusion; age at onset of cerebral lesion younger than 3 years old. The definition of the change in health status over the 5-year period was derived from the Polyhandicap Severity Scale. Among the 875 individuals included in 2015–2016, 492 (56.2%) individuals were assessed in 2020–2021. According to the definition, 68.8% ( n = 309), 64.7% ( n = 310), and 80.2% ( n = 368) of the individuals presented with a worsened or stable severity status based on the global score, the abilities score, and the comorbidities score, respectively. Compared with the individuals with a non-worsened health status (global score), the individuals with a stable or worsened health status were more likely to receive care in specialized rehabilitation centres, more likely to have an antenatal or progressive aetiology, and more likely to have a higher dependency level. The current study provides a robust perspective of the worsened health among persons with PIMD/Polyhandicap over time.

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Problèmes respiratoires des personnes polyhandicapées : le point de vue du médecin de médecine physique et de réadaptation

Cited by 3 publications

References 3 publications

Impact of spinal fusion on severity health status in scoliotic adolescents with polyhandicap

Impact of spinal fusion on severity health status in scoliotic adolescents with polyhandicap

La santé et ses troubles

Health status of individuals with polyhandicap across a 5-year follow-up period

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