Background and Rationale
Many studies have reported that socio-demographics influence individuals' illness perceptions, health beliefs and behaviors, and communication with healthcare service providers. However, studies that have examined the roles of socio-demographics on cancer patients' concerns over understanding the diagnosis and treatment plan are few.
Methods
A total of 973 cancer patients completed an information needs assessment questionnaire prior to starting treatment at 20 geographically distinct clinical sites within the University of Rochester Community Clinical Oncology Program (URCC CCOP) network. Written informed consent was obtained from all participants.
Results
The sample was analyzed according to racial group (White, N = 904; Non-White, N = 69). Preliminary analyses showed no differences between these groups in education (some college vs. no college) and occupation (professional vs. non-professional). The results, however, revealed statistically significant differences between Whites and Non-Whites in concerns over understanding the diagnosis and treatment plan for cancer, even after controlling for gender, age, education, and occupation. A higher proportion of Non-Whites, as compared with Whites, also indicated that more information would have been helpful in dealing with these concerns.
Conclusions
Non-White cancer patients have information needs that are not addressed as well as those of White cancer patients. The findings emphasize the need for oncology professionals to consider and integrate information about patients' socio-demographic and racial backgrounds in their communication with multicultural clienteles.