Profile of Arthritis Disability

Verbrugge, Lois M.; Juarez, Lucia

doi:10.1093/phr/116.s1.157

Cited by 27 publications

(27 citation statements)

References 17 publications

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“…Phase Two's distinctive content is transportation, home, and work disabilities; accommodations made for disabilities in those domains; and perceived barriers in those domains. This study extends our prior analyses based on NHIS-D Phase One (39). By integrating results from both surveys, we state a more comprehensive view of arthritis disability.…”

Section: Introductionsupporting

confidence: 52%

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Profile of arthritis disability: II

Verbrugge¹,

Juarez²

2006

Arthritis & Rheumatism

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Objective. Arthritis is the most common chronic condition and the most common cause of disability among older US adults. We studied social participation, disabilities in many life domains, accommodations used (buffers), and accommodations needed (barriers) for US adults with arthritis disability compared with adults with disability from other conditions. Methods. The data source is the National Health Interview Survey Disability Supplement Phase Two. Arthritis-disabled individuals named arthritis as the main cause of >1 disabilities. Other-disabled individuals named only other conditions as causes of their disabilities. We compared outcomes for the groups, taking sample weights and complex variances into account. Results. Arthritis-disabled individuals get out and about less often than other-disabled individuals, but they manage to maintain active social ties. They have more disabilities of all types (personal care, household management, physical tasks, transportation, home, work), and the disabilities often cause fatigue, long task time, and pain. Despite this, arthritis-disabled individuals use less personal assistance than other-disabled individuals; they do use more equipment assistance. Arthritis-disabled individuals report more barriers in getting around outside their home and at their workplace. Conclusion. The distinctive profile of arthritis disability includes extensive and uncomfortable disabilities, yet there are active management strategies to handle these disabilities. Problems away from home and at work should inspire engineers and planners to improve public access and equipment for persons with this high-prevalence disability.

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Section: Introductionsupporting

confidence: 52%

“…The combined results of Phases One (39) and Two demonstrate the far reach of disability for arthritis-disabled individuals in daily life, and their vigorous and extensive efforts to manage those problems. Stated simply, arthritis disability penetrates more aspects of life than does disability from other conditions.…”

Section: Discussionmentioning

confidence: 96%

Profile of arthritis disability: II

Verbrugge¹,

Juarez²

2006

Arthritis & Rheumatism

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“…Focus groups are especially useful for exploratory research that targets the collective opinion from similar participants [15], and the grounded theory approach is well suited to the development of new theory in a previously unexplored area [14]. As in our previous study, psychological impairment was defined according to the conceptual model of Verbrugge and Juarez [16] as a mental or emotional abnormality or loss that relates specifically to the presence of dysphagia [9]. Patients with dysphagia are known to be at greater risk for medical impairments such as pulmonary infection, malnutrition, and dehydration; this study was initiated with this knowledge.…”

Section: Methodsmentioning

confidence: 99%

Perceptions of Psychological Issues Related to Dysphagia Differ in Acute and Chronic Patients

2009

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The objectives of this study were (1) to compare and contrast the psychological issues perceived by patients with oropharyngeal dysphagia and explore if the differences relate to recovery trajectory, and (2) to determine whether patients, caregivers, and clinicians had different perceptions of how psychological issues interacted with the lung and nutrition issues as consequences of dysphagia. Two focus groups (one each of acute and chronic patients) were conducted with a total of 8 participants. Four focus groups (3 with clinicians and 1 with caregivers) were also conducted. Through the constant comparison method of grounded theory, the differences in perceptions between acute and chronic patients with dysphagia as well as clinicians and caregivers were explored using theoretical sampling. Two themes evolved: (1) acute and chronic patients differed on how they perceived and prioritized major psychological dimensions; (2) acute patients, chronic patients, caregivers, and clinicians varied in their perceptions of how psychological issues interacted with lung and nutrition issues. The qualitative methodology was successful in identifying contrasting opinions on psychological issues of dysphagia between acute and chronic patients, which differ from the perspectives of clinicians and caregivers. It is important for treating clinicians to be aware of psychological issues, to address them according to the patients' clinical recovery, and to consider the interplay between psychological and biomedical consequences.

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“…Despite the highest social participation, they reported the most service barriers, especially work-related barriers. Our prior analyses comparing people with arthritis disability with people with disability from other conditions had compatible results (50,51). The OthDisab group here was smaller (94%) because persons with heart disease disability were taken into analysis groups.…”

Section: Discussionmentioning

confidence: 57%

“…The big difference between Phase One and Phase Two questionnaires can also confuse readers. Overall, the questionnaire structure requires painstaking description in analyses (50,51).…”

Section: Discussionmentioning

confidence: 99%

Arthritis disability and heart disease disability

Verbrugge¹,

Juarez²

2008

Arthritis & Rheumatism

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Objective. Arthritis is the most common health condition in midlife and late life, and heart disease is the leading cause of death. This article compares disability impacts of these 2 preeminent health problems. Methods. Using data from the National Health Interview Survey Disability Supplement, we studied specific limitations and disabilities, accommodations used (buffers), and accommodations needed (barriers) for US population groups of adults with arthritis disability, heart disease disability, both arthritis and heart disease disability, and disability due to other conditions. Weights and complex SE adjusted for sample design. We hypothesized that arthritis disability is more extensive and troublesome than heart disease disability. Results. People with arthritis disability had more numerous, longer, and more bothersome disabilities than people with heart disease disability. People with arthritis disability used more equipment and rehabilitation, whereas people with heart disease disability emphasized personal assistance, medications, and medical services. People with arthritis disability experienced more barriers and needs in activities and services. People with disabilities from both arthritis and heart disease were especially disadvantaged, with high levels of limitations and accommodations. People with disability from other conditions had the highest social participation, fewest disabilities, and most tailored accommodations of all groups. Conclusion. Arthritis had higher and more extensive disability impact than heart disease. Both groups had more difficulty, buffers, and barriers in their lives than people disabled by other conditions. Therefore, arthritis and heart disease are premier conditions for disability attention and alleviation in the US population.

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Profile of Arthritis Disability

Cited by 27 publications

References 17 publications

Profile of arthritis disability: II

Profile of arthritis disability: II

Perceptions of Psychological Issues Related to Dysphagia Differ in Acute and Chronic Patients

Arthritis disability and heart disease disability

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