Profile of Ovarian Cancer Patients Seeking Information from a Web-Based Decision Support Program

Abstract

Women with ovarian cancer seeking assistance from web-based decision support programs may represent a subgroup with unique clinical features compared with the general patient population.

Factors that influence public engagement with eHealth: A literature review

“…Although contributing factors were not explored in the study on Internet use by Fogel et al [12], respondents with higher levels of income were more likely in this study to be Internet users. This finding is supported by a questionnaire survey of 139 patients attending a multidisciplinary thoracic oncology clinic in a Midwestern University Hospital in the USA [15,16] which found that larger annual incomes, along with higher levels of education, were associated with increased levels of Internet use. Both factors were positively associated with having a computer and Internet access at home.…”

“…In evaluating 10 years of published research relating to CHESS, the Comprehensive Health Enhancement Support System, University of Wisconsin, USA, Gustafson et al [19] noted that bespoke health information sources, such as CHESS, also require a greater level of literacy for optimal access. In 2005, Gray et al conducted 26 focus groups with a total of 157 adolescent students (aged [11][12][13][14][15][16][17][18][19] in diverse geographical and socio-economic settings in the UK and USA to explore health literacy challenges when using the Internet for online health information [20].…”

Recommendations for Enhancing Clinical Trials Education: a Review of the Literature

“…Patient-centered motivators included hope, faith, and the perception of personal benefit [3,21,57,67,78]. Patient-centered barriers included fear, disease stage, distrust, and poor health [7,14,18,28,44,45,63,77]. Six barriers were related to patients' status as racial or ethnic minorities [2,39,41,58,65,77].…”

CA-125 Monitoring in Ovarian Cancer: Patient Survey Responses to the Results of the MRC/EORTC CA-125 Surveillance Trial

“…In an attempt to begin to address this provocative issue, a group of ovarian cancer patients who had previously participated in a proprietary internet-based decision-support program (NexProfiler TM Treatment Option Tools for Cancer) and had agreed to be contacted through this online mechanism [6,7] , were sent an e-mail (approximately 2 weeks after the public presentation of the study results) along with a lay summary of the trial findings and asked how this information might influence their opinion on the utility of routine CA-125 monitoring.…”