Profiling Modifiable Psychosocial Factors Among Children With Chronic Pain: A Person-Centered Methodology

Richardson, Patricia A.; Birnie, Kathryn A.; Harrison, Lauren E.; Rajagopalan, Adithi; Bhandari, Rashmi

doi:10.1016/j.jpain.2019.08.015

Cited by 7 publications

(6 citation statements)

References 66 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Study procedures were approved by the university’s institutional review board as a retrospective patient chart review, and informed consent was not required as the information collected was within standard clinical care. Other publications have utilized Peds-CHOIR data to explore research questions 19–30 . Data were extracted retrospectively from Peds-CHOIR and patient medical charts.…”

Section: Methodsmentioning

confidence: 99%

Bridging Access to Pediatric Pain Care

Sepsey,

Sokol,

Huestis

et al. 2023

The Clinical Journal of Pain

Self Cite

View full text Add to dashboard Cite

Objectives: To evaluate subsequent shifts to patient access to tertiary pain management care following shelter-in-place (SIP) and increased telehealth during the COVID-19 pandemic. Materials and Methods: Retrospective naturalistic design was used. Data for this study were extracted from a retrospective review of the Pediatric-Collaborative Health Outcomes Information Registry, with additional demographic information collected using chart review. Participants were 906 youth who received an initial evaluation either in-person (n=472) within the 18 months before SIP or through telehealth (n=434) within the 18 months after SIP during the COVID-19 pandemic. Patient variables to assess access included geographic distance from the clinic, ethnic and racial diversity, and patient’s insurance type. Descriptive characteristics for each group were analyzed using χ2 test, percentage change, and t-test analyses. Results: Data indicated that transitioning to telehealth resulted in maintained access rates between groups as measured by race and ethnic diversity as well as distance traveled from the clinic. A trend toward increase in government-funded insurance was found, though no statistically significant differences were identified between telehealth and in-person visits. Though the majority of participants (in-person: 52.75%; telehealth 55.81%) lived within 50 miles of the clinic, results indicated that telehealth allowed for a statistically significant increase in evaluation access for families living further from the clinic within a 50-mile radius. Discussion: Overall, accessibility to pediatric pain management through telehealth during SIP was maintained despite significant declines in overall access to health care, with some trends in increased accessibility for patients with government insurance.

show abstract

Section: Methodsmentioning

confidence: 99%

Bridging Access to Pediatric Pain Care

Sepsey,

Sokol,

Huestis

et al. 2023

The Clinical Journal of Pain

Self Cite

View full text Add to dashboard Cite

show abstract

“…Other publications have used Peds-CHOIR data to investigate research questions. 5,6,8,21,22,[59][60][61]63,77…”

Section: Data Sourcementioning

confidence: 99%

Comparison of pain and psychosocial correlates among Hispanic and Non-Hispanic White youth with chronic pain

Arce

Richardson

Tran

et al. 2022

PR9

Self Cite

View full text Add to dashboard Cite

Introduction: Despite well-documented pain disparities among adults from non-White and Hispanic groups, less is known about pain disparities in non-White and Hispanic pediatric populations. Objectives: We compare pain and related psychosocial factors at the individual (pain intensity, pain interference, pain catastrophizing, co-occurring symptoms), social (peer relations), and systemic (health insurance) levels among Hispanic and Non-Hispanic White (NHW) youth with chronic pain. Methods: Eight hundred thirty-seven (71.4% female) Hispanic (n 5 268, 32%) and NHW (n 5 569, 68%) youth ages 8 to 17 years (M 5 14.00; SD 5 2.54) completed a survey at their initial visit to a pain clinic. Independent sample t tests investigated mean differences in psychosocial factors at the individual and social levels. Chi-squared tests investigated differences at the systemic level. Bivariate correlations for each group were compared using Fisher r-to-z transformations. Results:. Hispanic youth reported higher levels of pain intensity (t[811] 5 22.75, P 5 0.006). Groups did not differ in reports of other individual or social factors. Non-Hispanic White youth were more likely to have private insurance (OR, 5.66). All examined variables were significantly correlated among NHW youth. Correlations were weaker or nonsignificant among Hispanic youth. Fisher r-to-z transformations revealed these group differences to be significant. Conclusion: Hispanic youth report higher pain levels than NHW counterparts and lower likelihood of having private insurance. Pain and psychosocial factors correlate differently among the 2 groups highlighting a need to better understand the chronic pain experiences of diverse youth because models derived primarily from NHW populations may not generalize across ethnic and racial groups.

show abstract

“…One clinical pediatric chronic pain registry is the Pediatric Collaborative Health Outcomes Registry (Peds-CHOIR) at Stanford University [22]. Peds-CHOIR is an opensource clinical registry with flexible web-based interface and graphical capabilities to inform point of care decisions and generate patient-oriented research [23][24][25][26][27][28][29]. Peds-CHOIR incorporates classical testing theory-based measures and item-response theory measures administered via computer adaptive testing, including PROMIS [21].…”

Section: Clinical Health Registriesmentioning

confidence: 99%

Evaluating Telehealth Implementation in the Context of Pediatric Chronic Pain Treatment during COVID-19

Richardson

Parker

Chavez³

et al. 2021

Children

Self Cite

View full text Add to dashboard Cite

Telehealth has emerged as a promising healthcare delivery modality due to its ability to ameliorate traditional access-level barriers to treatment. In response to the onset of the novel coronavirus (COVID-19) pandemic, multidisciplinary pain clinics either rapidly built telehealth infrastructure from the ground up or ramped up existing services. As the use of telehealth increases, it is critical to develop data collection frameworks that guide implementation. This applied review provides a theoretically-based approach to capitalize on existing data sources and collect novel data to inform virtually delivered care in the context of pediatric pain care. Reviewed multisource data are (1) healthcare administrative data; (2) electronic chart review; (3) clinical health registries; and (4) stakeholder feedback. Preliminary telehealth data from an interdisciplinary pediatric chronic pain management clinic (PPMC) serving youth ages 8–17 years are presented to illustrate how relevant implementation outcomes can be extracted from multisource data. Multiple implementation outcomes were assessed, including telehealth adoption rates, patient clinical symptoms, and mixed-method patient-report telehealth satisfaction. This manuscript provides an applied roadmap to leverage existing data sources and incorporate stakeholder feedback to guide the implementation of telehealth in pediatric chronic pain settings through and beyond COVID-19. Strengths and limitations of the modeled data collection approach are discussed within the broader context of implementation science.

show abstract

Profiling Modifiable Psychosocial Factors Among Children With Chronic Pain: A Person-Centered Methodology

Cited by 7 publications

References 66 publications

Bridging Access to Pediatric Pain Care

Bridging Access to Pediatric Pain Care

Comparison of pain and psychosocial correlates among Hispanic and Non-Hispanic White youth with chronic pain

Evaluating Telehealth Implementation in the Context of Pediatric Chronic Pain Treatment during COVID-19

Contact Info

Product

Resources

About