Progress in Management of Low-risk Prostate Cancer: How Registries May Change the World

Cooperberg, Matthew R.

doi:10.1016/j.eururo.2014.09.008

Cited by 8 publications

(9 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In addition, prospective disease-specific registries collect important data on practice patterns, processes of care, and validated outcomes [3,15,39]. If these data are shared directly with the practices and the results are compared between physicians and hospitals, providers are likely to make substantial efforts to improve their results [39,107]. Knowledge of such comparative performance feedback motivates providers to adopt quality improvement measures that eventually improve patient outcomes.…”

Section: Caesar: Comparative Effectivenessmentioning

confidence: 99%

“…Finally, data from registries can be used as the foundation for quality improvement activities in the management of PCa patients [107]. Population-based studies are valuable in determining the average level of care in a certain geographic region, allowing identification of areas where interventions are needed to improve the quality of care [70,[108][109][110].…”

Section: Caesar: Comparative Effectivenessmentioning

confidence: 99%

“…Finally, although RCTs might be difficult to initiate and complete because of their high costs, substantial expense associated with data collection and quality assurance processes might limit the creation and widespread availability of disease-specific registries [15,38,39,107]. Some registries are currently funded by industry and federal grants.…”

Section: Future Directionsmentioning

confidence: 99%

“…Second, PCa registries should ideally produce reports and data that provide clinicians with comparative performance feedback [39,107]. The availability of such data could motivate many physicians and hospitals to improve their daily clinical practice and foster innovations that yield new knowledge and best practices in the field [ …”

Section: Future Directionsmentioning

confidence: 99%

See 3 more Smart Citations

Prostate Cancer Registries: Current Status and Future Directions

Gandaglia¹,

Bray

Cooperberg

et al. 2016

European Urology

Self Cite

View full text Add to dashboard Cite

Context: Disease-specific registries that enroll a considerable number of patients play a major role in prostate cancer (PCa) research. Objective: To evaluate available registries, describe their strengths and limitations, and discuss the potential future role of PCa registries in outcomes research. Evidence acquisition: We performed a literature review of the Medline, Embase, and Web of Science databases. The search strategy included the terms prostate cancer, outcomes, statistical approaches, population-based cohorts, registries of outcomes, and epidemiological studies, alone or in combination. We limited our search to studies published between January 2005 and January 2015. Evidence synthesis: Several population-based and prospective disease-specific registries are currently available for prostate cancer. Studies performed using these data sources provide important information on incidence and mortality, disease characteristics at presentation, risk factors, trends in utilization of health care services, disparities in access to treatment, quality of care, long-term oncologic and health-related quality of life outcomes, and costs associated with management of the disease. Although data from these registries have some limitations, statistical methods are available that can address certain biases and increase the internal and external validity of such analyses. In the future, improvements in data quality, collection of tissue samples, and the availability of data feedback to health care providers will increase the relevance of studies built on population-based and disease-specific registries. Conclusions: The strengths and limitations of PCa registries should be carefully considered when planning studies using these databases. Although randomized controlled trials still provide the highest level of evidence, large registries play an important and growing role in advancing PCa research and care. Patient summary: Several population-based and prospective disease-specific registries for prostate cancer are currently available. Analyses of data from these registries yield information that is clinically relevant for the management of patients with prostate cancer.

show abstract

Section: Caesar: Comparative Effectivenessmentioning

confidence: 99%

Section: Caesar: Comparative Effectivenessmentioning

confidence: 99%

Section: Future Directionsmentioning

confidence: 99%

Section: Future Directionsmentioning

confidence: 99%

See 2 more Smart Citations

Prostate Cancer Registries: Current Status and Future Directions

Gandaglia¹,

Bray

Cooperberg

et al. 2016

European Urology

Self Cite

View full text Add to dashboard Cite

show abstract

“…In the USA, to date there is no robust source of obesity epidemiological data beyond that gathered by The National Health and Nutrition Examination Survey (NHANES), and the available registries (e.g., The National Weight Control Registry, NWCR) are of limited scope and provide limited actionable information to payers. This is a far cry from some of the data sources available for cancer (e.g., the Surveillance, Epidemiology, and End Results (SEER) program and other data sources [58]), which have been key to guiding the fight against cancer and assessing the impact of the introduction of advances in prevention, screening, and treatment [59,60].…”

Section: Increased Investments To Curb Obesitymentioning

confidence: 99%