Promoting Best Practice for Perinatal Care of Deaf Women

Hubbard, Lori; D’Andrea, Elizabeth; Carman, Luke A.

doi:10.1016/j.nwh.2018.02.002

Cited by 9 publications

(12 citation statements)

References 15 publications

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“…Consistent with prior studies on the perinatal care experiences of women with IDD [ 22 ] and sensory disabilities [ 24 ], our study shows that effective communication in perinatal care is vital. Similar to Hubbard et al’s study on d/Deaf women in the U.S., we found that access to ASL interpreters was critical for effective communication between providers and d/Deaf patients [ 23 ]. We also identified other factors, including the quality of and familiarity with the interpreter, that must be considered when providing access to ASL interpreters.…”

Section: Discussionsupporting

confidence: 79%

“…What facilitates effective communication may vary according to the population seeking care, such as women with disabilities. The literature on perinatal care experiences of women with disabilities generally [ 17 – 20 ] and of those with intellectual and developmental disabilities (IDD) [ 21 , 22 ] and sensory disabilities specifically [ 23 , 24 ] indicates these groups report poor communication as a barrier to care. A U.K. survey found only 66% of women with IDD felt health care providers spoke to them in a way they could understand compared to 84% of women without disabilities [ 18 ].…”

Section: Introductionmentioning

confidence: 99%

“…A U.K. survey found only 66% of women with IDD felt health care providers spoke to them in a way they could understand compared to 84% of women without disabilities [ 18 ]. Qualitative studies from the U.S. and Poland found health care providers lacked awareness of the disability-related needs of pregnant women with hearing and vision loss, which caused providers to avoid direct communication or ignore their needs [ 23 , 24 ]. In addition to challenges directly related to communication, pregnant and pregnancy-planning women with IDD and sensory disabilities face attitudinal barriers, including health care providers questioning their parenting abilities [ 25 , 26 ].…”

Section: Introductionmentioning

confidence: 99%

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Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities

Saeed

Brown

Lunsky

et al. 2022

BMC Pregnancy Childbirth

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Background Effective provider-patient communication is a key element of quality health care, including perinatal care. What constitutes “effective communication” in perinatal care may vary according to the population seeking care, such as women with intellectual and developmental disabilities (IDD) and sensory disabilities. Research broadly indicates that communication issues are among the barriers to perinatal care experienced by women with disabilities. However, few studies have explicitly explored their communication experiences in this context. The purpose of this study was to understand the communication experiences of birthing people with IDD and/or sensory disabilities in perinatal care. Methods We conducted semi-structured interviews with 17 people with IDD (e.g., autism, cognitive delay) and/or sensory disabilities (e.g., d/Deaf, blind) in Ontario, Canada, who had recently given birth, to explore barriers to and facilitators of effective communication in perinatal care. A combination of deductive and inductive thematic analysis guided data analysis. Results We found that birthing people with IDD and/or sensory disabilities encountered multiple barriers to effective communication in perinatal care, namely, lack of policies and guidelines, lack of provider experience, lack of provider effort, as well as ableism and provider assumptions. Facilitators included knowledgeable, aware, and supportive providers; access to communication aids and services; tailoring information to patients’ disability-related communication needs; empathic communication; and, communication among providers. Conclusion Unmet communication needs may contribute to negative health and social outcomes for birthing people with disabilities and their newborns. Accessibility policy implementation and practice change are needed to meet the communication needs of people with IDD and/or sensory disabilities in perinatal care to ensure positive experiences and outcomes.

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Section: Discussionsupporting

confidence: 79%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities

Saeed

Brown

Lunsky

et al. 2022

BMC Pregnancy Childbirth

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show abstract

“…The most prominent occurrence in this study was that many deaf women did not receive interpreter services in their native language of ASL, which is both illegal and culturally incompetent practice (Barnett, McKee, Smith, & Pearson, 2011;Hoang, LaHousse, Nakaji, & Sadler, 2011;Richardson, 2014). Federal laws mandate equal access and communication in all health care settings for deaf people (Olson & Swabey, 2017), and is it important that health care providers advocate for access to ASL interpreters and understand how to utilize interpreters in practice competently (Hubbard, D'Andrea, & Carman, 2018).…”

Section: Discussionmentioning

confidence: 99%

Experiences of Breastfeeding among Disabled Women

Andrews

Powell

Ayers

2021

Women's Health Issues

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Background: Although breastfeeding has been extensively studied, there remains a paucity of data about the breastfeeding experiences of disabled women. Despite indications of similar pregnancy rates, disabled women seem to breastfeed at lower rates. Emerging research on the intersection of breastfeeding and disability has begun to shed light on how aspects of disability may impact breastfeeding. Methods: This digital and participatory action research study used semistructured video or telephone interviews to evaluate the experiences of breastfeeding among 24 disabled women through descriptive content analysis. The crossdisability sample was composed of women with self-identified intellectual, developmental, physical, sensory, and psychiatric disabilities. Some women had multiple disabilities. Results: Qualitative analysis revealed four themes relating to breastfeeding among disabled women: 1) communication difficulties with lactation consultants, 2) milk supply and latch problems, 3) intense pressure to breastfeed, and 4) positive interactions with health care providers. Conclusions: This study provides new information about the breastfeeding experiences of women with disabilities. Our findings suggest that disabled women should be better supported in their breastfeeding decisions and require greater access to disability-affirmative and informative clinical resources and accessible communication.Published by Elsevier Inc. on behalf of Jacobs Institute of Women's Health.Although women with and without disabilities have comparable rates of pregnancy (Horner-Johnson et al., 2016;Iezzoni, Yu, Wint, Smeltzer, & Ecker, 2013), there is some indication that disabled women breastfeed at lower rates than their nondisabled peers (Mitra, Clements, Zhang, Iezzoni, Smeltzer, & Long-Bellil, 2015;Morton et al., 2013). Scant research, however, has addressed the role of education, support, and expectations for breastfeeding in childbearing women with disabilities. For example, women with physical disabilities may experience

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“…The use of text-based communication solutions cannot be applied to people with hearing-impaired because from birth the language used by them is sign language [22], and consequently, some of them are illiterate [23]. From the analysis that has been done with the needs of the user obtained some requirements that must be owned application to be made.…”

Section: Results Of Needs Analysismentioning

confidence: 99%

Mobile Application Design Emergency Medical Call for the Deaf using UCD Method

Risald

Suyoto

Santoso

2018

Int. J. Interact. Mob. Technol.

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<p>Deaf or hearing loss is a condition of inability to hear something, either totally or partially. Hearing loss greatly affects the life of a person in communicating with the people around him. Deaf people will be very difficult when in a medical emergency, this is because the medical emergency situation requires fast action.</p><p> The Healthy Phone application is a mobile medical emergency call application that can help people with hearing impaired when in emergency situations. With the Healthy Phone application, the user only needs to select an icon that suits the situation encountered in touchscreen mobile device then the message will be sent to the nearest hospital.</p> To search for icons corresponding to emergencies, the User Centered Design (UCD) method is used. This application is very helpful for deaf people because this application does not require audio communication and user location is also sent automatically to the nearest hospital. The results were analyzed using four emergency event scenarios with a total score of 87% and an average user time of less than 0:42 sec indicating that the study was successful in designing a mobile medical emergency call application according to user requirements.

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Promoting Best Practice for Perinatal Care of Deaf Women

Cited by 9 publications

References 15 publications

Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities

Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities

Experiences of Breastfeeding among Disabled Women

Mobile Application Design Emergency Medical Call for the Deaf using UCD Method

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