Promoting resilience in individuals aging with multiple sclerosis: Results from a pilot randomized controlled trial.

Alschuler, Kevin N.; Arewasikporn, Anne; Nelson, Ian K; Molton, Ivan; Ehde, Dawn M.

doi:10.1037/rep0000223

Cited by 50 publications

(50 citation statements)

References 65 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…From an interventional perspective, data from animal models 5 highlight the relevance of modifiable developmental, environmental, and psychosocial factors to develop or increase resilience, providing an opportunity for testing resilience-building interventions in MS patients. 6 Finally, in support of Leavitt and Kever’s point of view, comes data from another resilience-like construct, such as cognitive reserve, that has been shown to attenuate the negative impact of structural brain damage on cognitive status of MS patients. 7…”

mentioning

confidence: 88%

Psychological resilience explains functional variability across people with multiple sclerosis – Commentary

Gallo

Bisecco

2020

Mult Scler

View full text Add to dashboard Cite

mentioning

confidence: 88%

Psychological resilience explains functional variability across people with multiple sclerosis – Commentary

Gallo

Bisecco

2020

Mult Scler

View full text Add to dashboard Cite

“…To the best of our knowledge, two studies have evaluated a resilience-specific program for PwMS. 5,6 The Everyday Matters Program, delivered via teleconference, included training on the principles of positive psychology, including courage, social skills, honesty, optimism, perseverance, and hope. The intervention found significant improvements in resilience and satisfaction with social roles, compared with a wait-list control group.…”

Section: Introductionmentioning

confidence: 99%

“… 4 For persons with MS (PwMS), fostering resilience has the potential to improve the long-term management of MS, leading to better adaptation and quality of life. 5 , 6 …”

Section: Introductionmentioning

confidence: 99%

“…4 For persons with MS (PwMS), fostering resilience has the potential to improve the long-term management of MS, leading to better adaptation and quality of life. 5,6 Resilience-building is an increasing focus of both preventative approaches and as a treatment for different disorders. Therefore, interventions targeting resilience focus on building a range of associated protective factors to improve outcomes in mental and physical health.…”

Section: Introductionmentioning

confidence: 99%

“…The intervention found significant improvements in resilience, physical-and mental health-related quality of life, depression, and stress. 6 Other studies exploring resilience in PwMS have identified that social connection, social support, positive emotions, self-efficacy, life meaning, planning ahead, and physical and psychological wellness all contribute to resilience. 7,8 Social support has also been reported to be important for positive adjustment in MS. 9 Higher levels of social support have been found to predict lower levels of anxiety in PwMS.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners

Halstead¹,

Leavitt

Fiore³

et al. 2020

Multiple Sclerosis Journal - Experimental, Translational and Cl

View full text Add to dashboard Cite

Background Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-building dyadic program for persons with MS (PwMS) and their support partners. Objectives To evaluate the feasibility of the resilience intervention. The secondary objective was to assess the benefits of the intervention. Methods Sixty-two participants ( M = 49.5 years, 31 dyads of PwMS) and support partners) were recruited to participate. Out of the 31 dyads, 26 were spouses, 2 were cohabiting partners, and 3 were parent–child dyads. Results The feasibility goals of the intervention were met, as determined by high participant satisfaction and acceptable completion rates. Preliminary outcomes relating to resilience were positive, suggesting that this intervention had a positive impact on participants. Conclusions To the best of our knowledge, this is the first resilience-building intervention delivered via telehealth for both PwMS and their support partners. The study showed an increase in resilience-building skills for addressing the challenges faced by PwMS and their support partners. These skills can be promoted and taught, clinically supported by telehealth, an affordable, accessible healthcare solution. Trial Registration at ClinicalTrials.gov (NCT03555253).

show abstract

The experience of psychological therapies for people with multiple sclerosis: A mixed‐methods study towards a patient‐centred approach to exploring processes of change

Fragkiadaki

Anagnostopoulos

Triliva

2023

Couns and Psychother Res

View full text Add to dashboard Cite

Psychological therapies are effective for managing multiple sclerosis (MS) symptoms such as depression, pain and fatigue. Cognitive behavioural therapy (CBT), mindfulness and other theory-led approaches have been applied and were found to have moderate effects. The present study adopts a patient-led approach to investigate people with MS' (PwMS) experiences of psychological therapies and the change processes they identify. In this naturalistic, mixed-methods design, semistructured interviews were conducted and three questionnaires were administered to 20 PwMS at two different times. Qualitative data collection and analysis followed the interpretative phenomenological analysis (IPA) guidelines, and quantitative data were analysed using paired t tests. Four superordinate themes described the participants' experiences of change as related to their psychological therapy: from despair to relief; from feeling their body as alien to becoming acquainted with an unpredictable new body; from helplessness to empowerment; and from punishment to forgiveness. Quantitative results showed that physical function and general health perception improved, and anxiety was significantly reduced. Despite seeking help from diverse psychological therapy modalities, the analysis revealed common themes that the participants found significant in their therapy stories. Following a patient-centred approach, the development of psychological therapies for PwMS should focus on their relationships, everyday lives, body perception, losses, shame and guilt. PwMS also need to be understood and acknowledged beyond their condition.

show abstract

Promoting resilience in individuals aging with multiple sclerosis: Results from a pilot randomized controlled trial.

Abstract: These results suggest that the Everyday Matters program shows promise for increasing resilience in adults with MS and that a full-scale randomized controlled trial is warranted. (PsycINFO Database Record

Cited by 50 publications

References 65 publications

Psychological resilience explains functional variability across people with multiple sclerosis – Commentary

Psychological resilience explains functional variability across people with multiple sclerosis – Commentary

A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners

The experience of psychological therapies for people with multiple sclerosis: A mixed‐methods study towards a patient‐centred approach to exploring processes of change

Contact Info

Product

Resources

About