Prostate cancer survivorship: Lessons from caring for the uninsured

Chamie, Karim; Connor, Sarah E.; Maliski, Sally L.; Fink, Arlène; Kwan, Lorna; Litwin, Mark S.

doi:10.1016/j.urolonc.2011.09.001

Cited by 11 publications

(10 citation statements)

References 38 publications

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“…Specifically, having less education was associated with perceptions that the information obtained was too hard to understand. Our findings further support other research indicating that disparities in income and education have negative consequences for prostate cancer survivors’ quality of life [5-8]. Rutten Finney and colleagues report that over the past 10 years, older age, less education, and lower income continue to be factors associated with less information seeking, and the authors conclude that health care providers remain important sources of information in cancer survivor populations [21].…”

Section: Discussionsupporting

confidence: 89%

“…Nonetheless, they are faced with a lack of appropriate support and many have decreased quality of life [2-4]. Additionally, racial and socioeconomic disparities exist: prostate cancer survivors from non-white populations, those with lower income and less education tend to have poorer outcomes and quality-of-life, as well as worse survival rates compared with white, better educated and wealthier counterparts [5-8]. …”

Section: Introductionmentioning

confidence: 99%

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Negative information-seeking experiences of long-term prostate cancer survivors

et al. 2016

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Purpose Many prostate cancer survivors have lasting symptoms and disease-related concerns for which they seek information. To understand survivors’ information seeking experiences, we examined the topics of their information searches, their overall perceptions of the search, and perceptions of their health information seeking self-efficacy (i.e., confidence in their ability to obtain information). We hypothesized that negative search experiences and lower health information seeking self-efficacy would be associated with certain survivor characteristics such as non-white race, low income, and less education. Methods This was a retrospective study using data from the Michigan Prostate Cancer Survivor Study (state-based survey of long-term prostate cancer survivor outcomes, N=2,499, response rate = 38%). Participants recalled their last search for information and reported the topics and overall experience. We conducted multivariable regression to examine the association between survivor characteristics and the information-seeking experience. Results Nearly a third (31.7%) of prostate cancer survivors (median age of 76 years and 9 years since diagnosis) reported having negative information seeking experiences when looking for information. However, only 13.4% reported having low health information seeking self-efficacy. Lower income and less education were both significantly associated with negative information seeking experiences. Conclusions Our findings suggest that many long-term prostate cancer survivors have negative experiences when searching for information, and lower income and less education were survivor factors related to negative information seeking experiences. Implications for cancer survivors We advocate for ongoing, information needs assessment at the point-of-care as the survivorship experience progresses to assess and potentially improve survivors’ quality of life.

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Section: Discussionsupporting

confidence: 89%

Section: Introductionmentioning

confidence: 99%

Negative information-seeking experiences of long-term prostate cancer survivors

et al. 2016

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“…However, trends in survival and QOL outcomes continue to vary across socioeconomic, racial, and ethnic boundaries. Prostate cancer survivors with lower income and less education and from nonwhite populations tend to have poorer QOL and a lower likelihood of survival compared with higher‐income, more educated, and white prostate cancer survivors …”

Section: Introductionmentioning

confidence: 99%

“…They are also diagnosed with prostate cancer at younger ages and present with more advanced disease . The latter is true among both insured and uninsured patients …”

Section: Introductionmentioning

confidence: 99%

American Cancer Society prostate cancer survivorship care guidelines

Skolarus

Wolf

Erb

et al. 2014

CA A Cancer J Clinicians

357

320

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https://www.wileyhealthlearning.com/acs.aspx Prostate cancer survivors approach 2.8 million in number and represent 1 in 5 of all cancer survivors in the United States. While guidelines exist for timely treatment and surveillance for recurrent disease, there is limited availability of guidelines that facilitate the provision of posttreatment clinical follow‐up care to address the myriad of long‐term and late effects that survivors may face. Based on recommendations set forth by a National Cancer Survivorship Resource Center expert panel, the American Cancer Society developed clinical follow‐up care guidelines to facilitate the provision of posttreatment care by primary care clinicians. These guidelines were developed using a combined approach of evidence synthesis and expert consensus. Existing guidelines for health promotion, surveillance, and screening for second primary cancers were referenced when available. To promote comprehensive follow‐up care and optimal health and quality of life for the posttreatment survivor, the guidelines address health promotion, surveillance for prostate cancer recurrence, screening for second primary cancers, long‐term and late effects assessment and management, psychosocial issues, and care coordination among the oncology team, primary care clinicians, and nononcology specialists. A key challenge to the development of these guidelines was the limited availability of published evidence for management of prostate cancer survivors after treatment. Much of the evidence relies on studies with small sample sizes and retrospective analyses of facility‐specific and population databases. CA Cancer J Clin 2014;64:225–249. © 2014 American Cancer Society.

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“…First, men with low and moderate self-efficacy had decreasing rates of emergency department visits over time, whereas those with high self-efficacy did not show this pattern. For many men enrolled in IMPACT, this program marks the beginning of their formal engagement with the health care system [10]. One plausible explanation for the difference in rate of emergency department visits between the high self-efficacy group and the lower strata may lie in safety-net services as primary sources of care.…”

Section: Discussionmentioning

confidence: 99%