Protocol for a systematic review on interventions for caregivers of persons with mild cognitive impairment and early dementia: does early stage intervention improve caregiver well-being and ability to provide care?

Bayly, Melanie; Morgan, Debra; Kosteniuk, Julie; Elliot, Valerie; Chow, Amanda Froehlich; Peacock, Shelley; McLean, Allen; O’Connell, Megan E

doi:10.1136/bmjopen-2018-028441

Cited by 3 publications

(4 citation statements)

References 43 publications

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“…A protocol for this systematic review and meta-analysis has been published previously (Bayly et al, 2019), and a record of the study protocol has been registered with PROSPERO (#CRD42018114960).…”

Section: Methodsmentioning

confidence: 99%

“…Four electronic databases (MEDLINE, EMBASE, PSYCINFO, and CINAHL) were searched for relevant articles. Search terms related to dementia/MCI, caregivers, and intervention were constructed with the assistance of a Health Sciences Librarian who has expertise in systematic reviews; our search terms and full search strategy (for MEDLINE) have been published previously (see Bayly et al, 2019). The initial search was performed in November 2018.…”

Section: Methodsmentioning

confidence: 99%

“…Data about the study, intervention, sample, and outcomes were extracted as reported in Bayly et al (2019), using an Excel spreadsheet. Data were extracted by two independent reviewers (MB and VE) and cross checked for accuracy.…”

Section: Methodsmentioning

confidence: 99%

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Does early-stage intervention improve caregiver well-being or their ability to provide care to persons with mild dementia or mild cognitive impairment? A systematic review and meta-analysis.

Bayly¹,

Morgan²,

Elliot³

et al. 2021

Psychology and Aging

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Interventions for caregivers of persons with dementia are well supported, but it remains unclear whether caregivers benefit from early-stage intervention when caring for persons with mild dementia or mild cognitive impairment (MCI). This systematic review and meta-analysis examined whether early-stage interventions for this population positively affect their well-being and ability to provide care and whether effectiveness varies based on intervention or caregiver/recipient characteristics. Searches of four databases (MEDLINE, EMBASE, PSYCINFO, and CINAHL) yielded 20,722 titles and 1,305 full texts were independently screened. Twenty-two reports representing 18 randomized controlled trial (RCT)/controlled early-stage intervention studies were included for meta-analysis, measuring a variety of outcomes for which effect sizes were calculated using standardized mean differences. Findings suggest that early-stage intervention has a small positive effect on both caregiver well-being and ability to provide care, with the largest effects observed for caregiver anxiety and caring-related distress. Moderator analyses showed no statistically significant difference in effectiveness based on type of intervention (counseling/psychotherapy, psychoeducational, or multicomponent) or individual versus group-based interventions. However, interventions that were caregiver only (vs. dyadic) had larger positive effects on caregiver well-being and ability to provide care. None of the caregiver/recipient characteristics examined (sex, type of relationship, and type of dementia) were related to the effectiveness of early-stage interventions. Although published controlled/ RCT trials were limited, findings support efforts to offer early-stage interventions to caregivers of persons with mild dementia or MCI. Further research to determine what intervention types or components are most efficacious would aid the provision of optimal support for caregivers early in their caregiving trajectory.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Does early-stage intervention improve caregiver well-being or their ability to provide care to persons with mild dementia or mild cognitive impairment? A systematic review and meta-analysis.

Bayly¹,

Morgan²,

Elliot³

et al. 2021

Psychology and Aging

Self Cite

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“…Multicomponent programmes which combine information, personalised care strategies and contact with other caregivers led to positive effects on confidence, self-efficacy, stress, burden and depression (Bayly et al, 2019;Parra-Vidales et al, 2017). Of all the strategies used, the motivational interview (MI) appears to be a widely researched health training technique with positive and long-lasting effects (DiClemente et al, 2017;Shingleton, & Palfai, 2016).Thus,motivationalinterviewingisatechniquethatiscentred ontheclientandattemptstoexploreandresolvetheambivalence of feelings or behaviours, while accomplishing their goals.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of a telephone intervention based on motivational health coaching for improving the mental health of caregivers of people with dementia: A randomised controlled trial

Sarabia‐Cobo

Pérez²,

Lorena³

et al. 2021

Int J Older People Nursing

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Objectives Caring for a family member with dementia is considered one of the activities with the greatest negative impact on a person's mental health. Developing long‐lasting and effective strategies is a challenge for caregivers. This study sought to evaluate the impact of an intervention based on a programme of motivational coaching delivered by telephone in a group of caregivers of patients with dementia compared to a control group. Methods A randomised controlled trial with a control group and an intervention group. (CONSORT guidelines were used). Telephone calls were made during six weeks, involving a process of coaching and motivational interviews. The following variables were measured in caregivers: self‐efficacy of caring, depression, perceived stress, frequency of problematic behaviours and dysfunctional thoughts. Assessments were conducted at three time points: baseline, post‐intervention and three months’ post‐intervention. Results In total, 106 caregivers participated (53 subjects in the control group and 53 in the intervention group). Statistically significant differences (ANCOVA) were found between both groups for the self‐efficacy and stress variables, with improved results in the intervention group (p < .01). Furthermore, statistically significant differences were found in the intervention group between the baseline and post‐intervention assessments, with improvements in self‐efficacy, decreased stress and decreased dysfunctional thoughts (p < .05). The results were maintained over time for both groups. Conclusions An intervention based on telephone calls using a health coaching approach with motivational interviewing appears to be effective for the improvement of self‐efficacy and mental health of caregivers of people with moderate dementia. Furthermore, these effects appear to be maintained over time.

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A Nurse-Led Education Program for Pneumoconiosis Caregivers at the Community Level

Cheung

Tsang²,

Zhang

et al. 2021

IJERPH

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Pneumoconiosis is an irreversible chronic disease. With functional limitations and an inability to work, pneumoconiosis patients require support from family caregivers. However, the needs of pneumoconiosis caregivers have been neglected. This study aimed to evaluate the effectiveness of a nurse-led education program, which involved four weekly 90-min workshops led by an experienced nurse and guided by Orem’s self-care deficit theory. A single-group, repeated-measure study design was adopted. Caregivers’ mental health (Hospital Anxiety and Depression Scale, HADS, four single items for stress, worriedness, tiredness, and insufficient support), caregiving burdens (caregiving burden scale, CBS), and unmet direct support and enabling needs (Carer Support Needs Assessment Tool, CSNAT) were measured at the baseline (T0), immediately after (T1), and one month after intervention (T2); 49, 41, and 28 female participants completed the T0, T1, and T2 measurements. Mean age was 65.9 years old (SD 10.08) with a range between 37 and 85 years old. The program improved the caregivers’ mental wellbeing, and reduced their caregiving burdens and their unmet support and enabling needs, both immediately (T1) and one-month after the intervention (T2). In particular, the intervention improved the caregivers’ mental wellbeing significantly, specifically depression symptoms, stress, and tiredness immediately after the intervention; and reduced most of their unmet support needs and unmet enabling needs one-month after the intervention. This was the first nurse-led program for pneumoconiosis caregivers and should serve as a foundation for further studies to test the program with robust designs.

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Protocol for a systematic review on interventions for caregivers of persons with mild cognitive impairment and early dementia: does early stage intervention improve caregiver well-being and ability to provide care?

Cited by 3 publications

References 43 publications

Does early-stage intervention improve caregiver well-being or their ability to provide care to persons with mild dementia or mild cognitive impairment? A systematic review and meta-analysis.

Does early-stage intervention improve caregiver well-being or their ability to provide care to persons with mild dementia or mild cognitive impairment? A systematic review and meta-analysis.

Effectiveness of a telephone intervention based on motivational health coaching for improving the mental health of caregivers of people with dementia: A randomised controlled trial

A Nurse-Led Education Program for Pneumoconiosis Caregivers at the Community Level

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