Protocol for the development and validation of a measure of persistent psychological and emotional distress in cardiac patients: the Cardiac Distress Inventory

Jackson, Alun C; Rogerson, Michelle; Grande, Michael Le; Thompson, David R.; Ski, Chantal F.; Alvarenga, Marlies; Amerena, John; Higgins, Rosemary; Raciti, Michela; Murphy, Barbara

doi:10.1136/bmjopen-2019-034946

Cited by 17 publications

(13 citation statements)

References 72 publications

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“…A broad pool of items was generated following a strict protocol which has been described in full elsewhere ( 17 ). In brief, the process involved three key steps.…”

Section: Methodsmentioning

confidence: 99%

“…Cardiac distress is a persistent negative emotional state rather than a transient state; involving multiple psychosocial domains; that challenges a patient's capacity to cope with living with their heart condition, the treatment of the condition, and the resultant changes to daily living; and challenges the person's sense of self and future orientation ( 16 , 17 ).…”

Section: Introductionmentioning

confidence: 99%

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Unraveling the Complexity of Cardiac Distress: A Study of Prevalence and Severity

et al. 2022

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IntroductionWhile much research attention has been paid to anxiety and depression in people who have had a recent cardiac event, relatively little has focused on the broader concept of cardiac distress. Cardiac distress is a multidimensional construct that incorporates but extends beyond common mood disorders such as anxiety and depression. In the present study we assessed the prevalence, severity and predictors of a broad range of physical, affective, cognitive, behavioral and social symptoms of cardiac distress. This is the first study to investigate cardiac distress in this comprehensive way.MethodA sample of 194 patients was recruited from two hospitals in Australia. Eligible participants were those who had recently been hospitalized for an acute cardiac event. Data were collected at patients' outpatient clinic appointment ~8 weeks after their hospital discharge. Using a questionnaire developed through a protocol-driven 3-step process, participants reported on whether they had experienced each of 74 issues and concerns in the past 4 weeks, and the associated level of distress. They also provided sociodemographic and medical information. Regression analyses were used to identify risk factors for elevated distress.ResultsAcross the 74 issues and concerns, prevalence ratings ranged from a high of 66% to a low of 6%. The most commonly endorsed items were within the domains of dealing with symptoms, fear of the future, negative affect, and social isolation. Common experiences were “being physically restricted” (66%), “lacking energy” (60%), “being short of breath” (60%), “thinking I will never be the same again” (57%), and “not sleeping well” (51%). While less prevalent, “not having access to the health care I need,” “being concerned about my capacity for sexual activity,” and “being unsupported by family and friends” were reported as highly distressing (74, 64, and 62%) for those experiencing these issues. Having a mental health history and current financial strain were key risk factors for elevated distress.Conclusion and ImplicationsSpecific experiences of distress appear to be highly prevalent in people who have had a recent cardiac event. Understanding these specific fears, worries and stressors has important implications for the identification and management of post-event mental health and, in turn, for supporting patients in their post-event cardiac recovery.

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“…A broad pool of items was generated following a strict protocol which has been described in full elsewhere ( 17 ). In brief, the process involved three key steps.…”

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Unraveling the Complexity of Cardiac Distress: A Study of Prevalence and Severity

et al. 2022

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“… 16 , 17 ) Scale development includes four phases: (1) item generation, (2) item reduction and validity, (3) reliability, and (4) hierarchies of item difficulties. 18 , 19 )…”

Section: Methodsmentioning

confidence: 99%

“…16,17) Scale development includes four phases: (1) item generation, (2) item reduction and validity, (3) reliability, and (4) hierarchies of item difficulties. 18,19) Item Generation. In creating the ASUHS items, 33 previously developed scales that focus on the measurement of motor paralysis of stroke patients, e.g., MAL and ABIL-HAND, and ADL and instrumental ADL scales such as the Barthel Index, FIM, and Lawton scale 20) were considered.…”

Section: Item Generationmentioning

confidence: 99%

Development of a New Daily Activities Scale for the Affected Hand after Stroke

Matsuoka

Watanabe

Kawaguchi

et al. 2020

PRM

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Objectives: There are few scales that reflect the function of the stroke-affected arm as it relates to the performance of daily activities while also indicating the difficulty of scale items. In this study, we developed the Activities Specific Upper-extremity Hemiparesis Scale (ASUHS) to evaluate daily activities performable by the affected arm after stroke. We also clarified the validity, reliability, and item difficulty of the scale. Methods: The participants were 145 patients with stroke who were consecutively admitted to a convalescent rehabilitation ward. The unidimensionality of ASUHS was assessed by principal component analysis. Analyses of item discrimination and content validity were conducted to assess the overall validity. Reliability was evaluated by assessing internal consistency and inter-rater reliability. Item difficulties were determined by Rasch analysis. Results: Unidimensionality, high discrimination, and good content validity were shown for all items. ASUHS consists of a dominant hand scale and non-dominant hand scale. Both scales showed good internal consistency (Cronbach’s α coefficient = 0.99) and substantial inter-rater reliability (Cohen’s Kappa coefficient = 0.74 and 0.75, respectively). Item difficulty was determined as being in the range –8.71 to +5.18 logit. Conclusions: This study suggested good validity and reliability of ASUHS. Furthermore, because the item difficulties of daily activities performed by the affected arm were clarified, therapists can use ASUHS to identify the process that should be the next focus for training. Consequently, therapists may be able to train patients in daily activities that match the affected arm’s ability step by step rather than determining training activities empirically.

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“…For conducting Rasch analysis, it is required a sample size with at least 100 participants. Therefore, this study sample of 112 students was considered as appropriate (Jackson, et al, 2020 1, 2 and 3).…”

Section: Developing a Questionnaire "Evaluation Of The Quality Of Teaching For Creativity Development" Based On The Rasch Modelmentioning

confidence: 99%

Application of Rasch Model to Develop a Questionnaire for Evaluating the Quality of Teaching for Students’ Creativity Development

Bui¹,

Казаренков²,

Tran³

2020

IJLTER

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The purpose of this research is to develop a questionnaire for evaluating the quality of teaching for creativity development. We use three methods for creating the questionnaire, namely, interviews, literature review, and expert consultation. The Rasch model was applied to assess the psychometric properties of the questionnaire in the first phase with the participation of 112 students. The results of the study indicated that all items had a point-measure correlation coefficient ranging between 0.312 and 0.757, Infit and Outfit MNSQ values were in the range of 0.62 to 1.54, item difficulty values were in the range from -1.54 to 1.12. The overall reliability index of the questionnaire was 0.955, the separation was 4.582, the scale's number of strata was 6.442. Cronbach's alpha coefficient of the scale was 0.963. The results of the study showed that the questionnaire was in good compliance with the Rasch model requirements. We used the questionnaire to assess the current status of teaching for creativity development in the teaching of Pedagogy in the second phase. This phase involved 300 first-and second-year students who were studying "Pedagogy" and they were grouped in 10 groups. A total of 10 teachers were evaluated, 1 teacher was evaluated by 1 group. The results showed that the quality of teachers' teaching for creativity development was at an acceptable level. We believe that teachers' preparation according to the evaluation criteria for teachers' quality teaching for creativity development is needed to improve teachers' teaching for students' creativity development.

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Protocol for the development and validation of a measure of persistent psychological and emotional distress in cardiac patients: the Cardiac Distress Inventory

Cited by 17 publications

References 72 publications

Unraveling the Complexity of Cardiac Distress: A Study of Prevalence and Severity

Unraveling the Complexity of Cardiac Distress: A Study of Prevalence and Severity

Development of a New Daily Activities Scale for the Affected Hand after Stroke

Application of Rasch Model to Develop a Questionnaire for Evaluating the Quality of Teaching for Students’ Creativity Development

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