Providing Care for Persons with Dementia in Rural Communities: Informal Caregivers’ Perceptions of Supports and Services

Gibson, Allison; Holmes, Sarah; Fields, Noelle; Richardson, Virginia

doi:10.1080/01634372.2019.1636332

Cited by 48 publications

(41 citation statements)

References 48 publications

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“…Future research may want to explore how to continue to build upon such technology to reach rural caregivers in broader areas while still providing some level of social support, as caregiver support has many health benefits 25‐27 and can delay nursing home placement of the care recipient 28 . While program comments suggest the sessions are well received and attendees appreciate the information and encouragement provided, the overall program impact and extent to which participation leads to feelings of support remain areas for future inquiry 20,29 . Exploring the optimal amount of information to convey per session so as not to overwhelm attendees, experimenting with ways to better structure question and answer sessions to maximize utility and applicability, and surveying attendees for preferred session frequency may help enhance the program's impact 30 .…”

Section: Discussionmentioning

confidence: 99%

Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions

Bardach

Gibson

Parsons

et al. 2020

The Journal of Rural Health

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Objectives The prevalence of Alzheimer's disease and associated disorders is increasing. Rural residents in the United States have less access to memory care specialists and educational and community resources than in other areas of the country. Over a decade ago, we initiated an interdisciplinary rural caregiving telemedicine program to reach Kentucky residents in areas of the state where resources for supporting individuals with dementia are limited. Telemedicine programs involve a short informational presentation followed by a question and answer session; programs are offered 4 times a year. The purpose of this study was to explore questions asked over 1 year of the rural caregiving telemedicine program—encompassing 5 programs—to identify the scope of dementia‐related knowledge gaps among attendees. Methods Questions from the 5 programs were recorded and content analyzed to identify areas of frequent informational requests. Results There were a total of 69 questions over the 5 sessions. For each program, questions ended due to time constraints rather than exhausting all inquiries. The most common topical areas of questions related to risk factors, behavioral management, diagnosis, and medications. Discussion and Implications This study highlights that rural caregivers in Kentucky have diverse dementia educational needs. Rural communities may benefit from additional, targeted resources addressing these common areas of unmet informational needs.

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Section: Discussionmentioning

confidence: 99%

Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions

Bardach

Gibson

Parsons

et al. 2020

The Journal of Rural Health

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“…Dang et al 18 argued that better access to specialized services in rural areas may reduce family caregiver burden. Gibson et al 19 and Morgan et al 20 identified unmet needs among family caregivers in rural areas due to limited access to supportive resources and services. A Swedish study 21 demonstrated that older adults who cared for spouses in rural areas separated by long distances with limited services were tied to the home and felt isolated.…”

Section: Introductionmentioning

confidence: 99%

Experiences of Being Significant Others to Older Adults with Frailty Living Alone in Rural Arctic Norway: A Qualitative Study

Bjerkmo¹,

Helgesen²,

Blix³

2022

RMHP

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Purpose Our aim in this study was to explore how significant others experience being “significant” to older adults living alone with frailty in rural Arctic areas in northern Norway. The proportion of older adults in the population is larger and growing faster in rural- than in urban areas. Due to out-migration of the younger generations, many significant others live far from the older adults. Methods Our results are based on a thematic analysis of semistructured interviews with ten persons identified as significant others by older adults in rural Arctic Norway. Results The analysis resulted in two main themes and five subthemes: 1. Restoring and maintaining balance in the older adult’s life with the following three subthemes: 1.1. balancing between the older adult’s capacity and the physical environment; 1.2. emotional support; and 1.3. balancing between the older adult’s need for help and the services offered; and 2. Maintaining balance in one’s own life with the following two subthemes: 2.1. family and working life; and 2.2. tensions between family members. The rural Arctic context in which the older adult lived was relevant to varying degrees in all themes. Conclusion Our results showed that experiences of being the significant other involve a continuous balancing act affected by the older adult’s life situation, the significant other’s own life and the rural Arctic context in which the older adult lives. Our study adds to previous conceptualizations of frailty as both a bodily and a relational phenomenon framed by materialities, the understanding of frailty as also a situated phenomenon.

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“…1-3 Most caregiver research has been on caregivers of Alzheimer's, dementia, or elderly patients. 4,5…”

Section: Introductionmentioning

confidence: 99%

“…[1][2][3] Most caregiver research has been on caregivers of Alzheimer's, dementia, or elderly patients. 4,5 Lung transplant caregivers play an important role in the recipient success throughout the lung transplantation process. Transplant candidates and caregivers are often exhausted and overwhelmed as they wait for a suitable donor, nevertheless, after transplant, caregivers continue to provide emotional and practical care to patients.…”

Section: Introductionmentioning

confidence: 99%

The Lived Experiences of Caregivers of Lung Transplant Recipients

et al. 2021

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Introduction Lung transplantation is a treatment crucial for the survival of patients with end-stage lung diseases. An identified caregiver is obligatory for a patient to be eligible for a lung transplant and plays an essential role in the transplant recipient's care. Most caregiver research, however, has been on caregivers of persons with Alzheimer's disease or the elderly, with limited research on caregivers’ experiences caring for transplant recipients. This study examined the experiences of caregivers of recipient's pre- and post-lung transplantation. Methods/Approach Caregivers of lung transplant recipients were recruited using purposeful sampling. Audiotaped semi-structured open ended interviews were conducted until data saturation. Each interview was transcribed verbatim, and conventional content analysis performed to extract significant themes and subthemes. Findings Four main themes and 12 sub-themes were identified. The former included (1) establishing the diagnosis, (2) caregiver roles, (3) caregiver psychological and psychosocial issues, and (4) support. Caregivers lacked basic knowledge related to lung transplantation. The caregivers’ roles necessitated rearranging priorities, lifestyle changes, and redirecting emotional and physical energy. Support played an important role in caregiving experiences. Discussion Each caregiver shared their unique caregiving experiences. Caregivers lack knowledge about transplantation, experience dramatic changes in their family life, social activities, employment, and often financial status. Healthcare providers can use the findings of this study in developing informational, and psychological interventions to alleviate caregivers’ stress and anxiety.

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Providing Care for Persons with Dementia in Rural Communities: Informal Caregivers’ Perceptions of Supports and Services

Cited by 48 publications

References 48 publications

Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions

Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions

Experiences of Being Significant Others to Older Adults with Frailty Living Alone in Rural Arctic Norway: A Qualitative Study

The Lived Experiences of Caregivers of Lung Transplant Recipients

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