Providing patient information and education in practice: the role of the health librarian

Truccolo, Ivana

doi:10.1111/hir.12142

Cited by 18 publications

(13 citation statements)

References 15 publications

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“…Finally, she served as a coordinator and facilitator of institutional narrative medicine initiatives, such as an annual “artistic-literary competition” that provided a platform for patient expression. The most pertinent PFCC outcome was identified as “improved patient/family experience,” based upon author-provided observational evidence [13].…”

Section: Resultsmentioning

confidence: 99%

Involvement of information professionals in patient- and family-centered care initiatives: a scoping review

DeRosa

Nelson

Delgado

et al. 2019

jmla

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Objective: The goal of this scoping review was to collect data on patient- and family-centered care (PFCC) programs and initiatives that have included the direct involvement of librarians and information professionals to determine how librarians are involved in PFCC and highlight opportunities for librarians to support PFCC programs.Methods: Systematic literature searches were conducted in seven scholarly databases in the information, medical, and social sciences. Studies were included if they (1) described initiatives presented explicitly as PFCC programs and (2) involved an information professional or librarian in the PFCC initiative or program. Based on the definition of PFCC provided by the Institute for Patient- and Family-Centered Care, the authors developed a custom code sheet to organize data elements into PFCC categories or initiatives and outcomes. Other extracted data elements included how the information professional became involved in the program and a narrative description of the initiatives or programs.Results: All included studies (n=12) identified patient education or information-sharing as an integral component of their PFCC initiatives. Librarians were noted to contribute to shared decision-making through direct patient consultation, provision of health literacy education, and information delivery to both provider and patient with the goal of fostering collaborative communication.Conclusions: The synthesis of available evidence to date suggests that librarians and information professionals should focus on patient education and information-sharing to support both patients or caregivers and clinical staff. The burgeoning efforts in participatory care and inclusion of patients in the decision-making process pose a unique opportunity for librarians and information professionals to offer more personalized information services.

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Section: Resultsmentioning

confidence: 99%

Involvement of information professionals in patient- and family-centered care initiatives: a scoping review

DeRosa

Nelson

Delgado

et al. 2019

jmla

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“…Concerning the educational activities chosen by our respondents in relation to the first-ranked topic, a large preference emerged for a “face-to-face modality,” “classes on cancer-related topics with healthcare professionals,” and “cancer information service” [ 34 , 35 ]. These results are in agreement with the conclusions of a study by Fleisher and colleagues [ 36 ] that “multiple communication approaches should be considered to support patient preferences.”…”

Section: Discussionmentioning

confidence: 99%

Patients and caregivers’ unmet information needs in the field of patient education: results from an Italian multicenter exploratory survey

Truccolo

Mazzocut

Mis

et al. 2018

Support Care Cancer

Self Cite

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Patient education and empowerment (PEE) is aimed at improving competence of patients during their clinical path and enabling healthcare providers with specific communication strategies. We investigated the interest of Italian Cancer Research & Care Centers (CRCI) users (patients and caregivers) in being involved in PEE activities. An anonymous questionnaire addressed to users was distributed between June 2013 and February 2014. The questionnaire gathered information on the following: health-related topics; 13 different PEE initiatives/modalities of learning already active at CRCI; personal demographic data; the willingness to be more involved in the organization of health services provided and in which context; and five preferred info-educational activities. Frequency distribution and chi-square analysis were computed. Statistical significance (p value) was set at < 0.05. A total of 875 (29%) users responded to the 3000 distributed questionnaires. The first three priorities of interest were "early diagnosis" (18%), "prevention" (17%), and "diagnosis explanation" (13%). The first three priorities on informational activity were as follows: "classes on cancer-related topics with healthcare professionals" (28%); "cancer information service" (22%); "drug information point" (7%). Forty-nine percent of the respondents stated that they would like to be involved in the organization of PEE activities, particularly caregivers and users older than 55 years of age. The preferred educational activities were "classes on cancer-related topics with healthcare professionals" and "cancer information service" on a face-to-face modality. Patients were more interested than caregivers in "prevention." The extension of PEE programs to all CRCI users into routine care will be the next step of the present research.

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“…Patient education is also explored by Truccolo (). She gives her experiences of coordinating the patient education process at a cancer comprehension centre in Italy.…”

Section: Health Literacy/health Informationmentioning

confidence: 99%

Tell me and I'll forget; show me and I may remember; involve me and I'll understand: a review of the Teaching and Learning in Action feature

2019

Health Info Libraries J

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Providing patient information and education in practice: the role of the health librarian

Cited by 18 publications

References 15 publications

Involvement of information professionals in patient- and family-centered care initiatives: a scoping review

Involvement of information professionals in patient- and family-centered care initiatives: a scoping review

Patients and caregivers’ unmet information needs in the field of patient education: results from an Italian multicenter exploratory survey

Tell me and I'll forget; show me and I may remember; involve me and I'll understand: a review of the Teaching and Learning in Action feature

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