Providing Quality Care in Childhood Cancer Survivorship: Learning From the Past, Looking to the Future

Harvey, Jeanne; Hobbie, Wendy L.; Shaw, Susan; Bottomley, Sarah

doi:10.1177/104345429901600302

Cited by 25 publications

(9 citation statements)

References 24 publications

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“…Evidence‐based and expert consensus guidelines exist for monitoring late toxicities in childhood cancer survivors into young adulthood and beyond . Specialized survivorship care includes the development of survivorship care plans and multidisciplinary coordination of care between pediatric and adult medicine subspecialists . One survivorship program reported that 34% of patients had a new health condition identified at initial screening based on guidelines, emphasizing the potential benefits of survivorship‐based health care .…”

Section: Discussionmentioning

confidence: 99%

Understanding predictors of continued long‐term pediatric cancer care across the region: A report from the Consortium for New England Childhood Cancer Survivors

Welch

Kenney

Hirway

et al. 2017

Pediatric Blood & Cancer

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Section: Discussionmentioning

confidence: 99%

Understanding predictors of continued long‐term pediatric cancer care across the region: A report from the Consortium for New England Childhood Cancer Survivors

Welch

Kenney

Hirway

et al. 2017

Pediatric Blood & Cancer

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“…Education about diagnosis, treatment, potential late effects, fertility-preserving options and sexual functioning should also become part of their health care. The development of patient education materials and individual, couple or group counseling are adequate in this context [5,23,64,66,68,129].…”

Section: Intervention With Patients and Families Prevent And Treat Sementioning

confidence: 99%

The Impact of Gynecological Cancer on Reproductive Issues and Pregnancy:Psychological Implications

Canavarro¹,

Pires²

2011

CWHR

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Gynecological cancer is the fourth most common form of cancer among women. Over the past few decades, the growing number of survivors has been forced to cope with the consequences of the disease. Of these consequences, the impact of cancer on reproduction has been receiving increasing attention. Research shows that the health care of these women poses challenges other than medical ones. Although the inclusion of psychologists in health care teams has been particularly valued, studies focusing on the psychological implications of the impact of gynecological cancer on reproduction are scarce. Therefore, the first aim of this review is to critically reflect on the psychological implications of infertility, decision-making regarding childbirth, and pregnancy in the context of gynecological cancer. The second purpose of this review is to provide practice guidelines that account for the specificities and demands of these patients. Our findings suggest that gynecological cancer entails specific emotional and decisional challenges regarding reproductive issues, highlighting the importance of specialized psychological interventions with patients and their families. Providing emotional support and education about sexual and reproductive difficulties, supporting decision-making about fertility preservation and childbirth, promoting adjustment to cancer during pregnancy and supporting transition to motherhood are the main areas of intervention suggested. A 2 multidisciplinary treatment approach also seems to be essential, and the role of psychological teams can be particularly important because these professionals may enlighten and encourage skills in other health care providers.

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“…Representative articles published from the 1990s to the present have articulated the need for transitional care for childhood cancer survivors. [31][32][33][34] In 2002, the Children's Oncology Group (COG) established the Survivorship Transition Task Part of the rationale for health care transition is based on the major differences between adult-focused versus child-centered care. Adult care relies more consistently on patient initiative and has the potential to be more collaborative and empowering rather than predominantly nurturing and prescriptive.…”

Section: General Considerationsmentioning

confidence: 99%

Transition of Care for Young Adult Survivors of Childhood and Adolescent Cancer: Rationale and Approaches

Freyer

2010

JCO

159

158

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A B S T R A C T PurposeYoung adult survivors of childhood and adolescent cancer are an ever-growing population of patients, many of whom remain at lifelong risk for potentially serious complications of their cancer therapy. Yet research shows that many of these older survivors have deficient health-related knowledge and are not engaging in recommended health promotion and screening practices that could improve their long-term outcomes. The purpose of this review is to address these disparities by discussing how formal transition of care from pediatric to adult-focused survivorship services may help meet the unique medical, developmental, and psychosocial challenges of these young adults. DesignLiterature review and discussion. ResultsThis article summarizes current research documenting the medical needs of young adult survivors, their suboptimal compliance with recommended follow-up, and the rationale, essential functions, current models, and innovative approaches for transition of follow-up care. ConclusionSystematic health care transition constitutes the standard of care for young adult survivors of childhood cancer. In developing a transitional care program, it is necessary to consider the scope of services to be provided, available resources, and other local exigencies that help determine the optimal model for use. Additional research is needed to improve health services delivery to this population. Effective advocacy is needed, particularly in the United States, to ensure the availability of uninterrupted health insurance coverage for survivorship services in young adulthood.

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Providing Quality Care in Childhood Cancer Survivorship: Learning From the Past, Looking to the Future

Cited by 25 publications

References 24 publications

Understanding predictors of continued long‐term pediatric cancer care across the region: A report from the Consortium for New England Childhood Cancer Survivors

Understanding predictors of continued long‐term pediatric cancer care across the region: A report from the Consortium for New England Childhood Cancer Survivors

The Impact of Gynecological Cancer on Reproductive Issues and Pregnancy:Psychological Implications

Transition of Care for Young Adult Survivors of Childhood and Adolescent Cancer: Rationale and Approaches

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