Psychiatric Evaluation and Management in Pediatric Spinal Cord Injuries: a Review

Harness, Jane; Malas, Nasuh

doi:10.1007/s11920-021-01256-6

Cited by 6 publications

(3 citation statements)

References 44 publications

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“…The WHO69 has recommended the use of peer support in the rehabilitation of individuals with SCI. Peer support programmes have the potential to improve outcomes for individuals with SCI and family members as they provide needed social support, knowledge, and hope to individuals 26 70…”

Section: Resultsmentioning

confidence: 99%

Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers

et al. 2022

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ObjectivesHealthcare transition (HCT) interventions are pivotal to paediatric rehabilitation. However, there has been limited research focusing on HCT in young people with spinal cord injury (SCI). To date, little has been reported on key factors that may contribute to a positive or negative transition experience and what, if any, are the gaps in the transition process. This study explored the experiences of transition from paediatric to adult healthcare for young people with SCI and parents/caregivers in pursuit of co-designing and developing an intervention to support transition.Design, setting and participantsThis qualitative study forms part of the planning phase of a larger participatory action research project. It supports obtaining a rich understanding of the phenomenon and the issues and actions necessary to achieve change. Semi-structured individual interviews were conducted online between April and June 2021 with young people with SCI and parents/caregivers who had transitioned or were preparing for the transition from paediatric to adult healthcare in NSW, Australia. The interviews were analysed using an inductive reflexive thematic analysis approach.ResultsThe study recruited nine participants, five young people with SCI and four parents/caregivers. The interviews provided invaluable insight into young people with SCI and their parents’/caregivers’ experiences of HCT. As HCT experiences were often less than optimal and needs were not adequately met, some recommendations were offered. These included a coordinated and streamlined handover from paediatric to adult healthcare providers, and a ‘one-stop shop’ for young people with SCI and their parents/caregivers to access transition information, such as how it occurs, who to call for ongoing support and advice, and tips on how to transition successfully.ConclusionProviding a coordinated and streamlined handover process as well as access to more context-related information could improve the transition experiences of young people with SCI and parents/caregivers, resulting in improved health outcomes and greater independence.Trial registrationACTRN12621000500853.

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Section: Resultsmentioning

confidence: 99%

Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers

et al. 2022

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“…Pediatric patients are particularly vulnerable as experiencing TSCI during a critical developmental stage can have signi cant short-and long-term implications on their physical, mental, and social function [9,11]. While recent medical and surgical advances have resulted in improved quality of life and prolonged survival among patients with TSCI, and the physical aspects of TSCI have been well-studied [12][13][14][15][16][17][18], the psychological impact of TSCI is not well-documented [19].…”

Section: Introductionmentioning

confidence: 99%

“…While the severity of TSCI varies with the age and location of the injury, affected individuals often experience partial or complete sensory and/or motor loss below the injury level [7,8] with paraplegia and complete injuries being more common with younger patients [9]. Those suffering from tetraplegia often carry trauma at the level of C5-C8 with a lower quality of life and shorter life expectancy relative to the general population [10][11][12][13][14].…”

Section: Introductionmentioning

confidence: 99%

Anxiety and Depression in Pediatric-Onset Traumatic Spinal Cord Injury: A Systematic Review

Mofatteh

Mashayekhi

Arfaie

et al. 2023

Preprint

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Background and aim Traumatic spinal cord injury (TSCI) is a debilitating neurological condition with significant long-term consequences on the mental health and wellbeing of affected individuals. We aimed to investigate anxiety and depression in individuals with pediatric-onset TSCI. Methods PubMed, Scopus, and Web of Science databases were searched from inception to December 20th, 2022 following the PRISMA guidelines and studies were included according to the eligibility criteria. Results 1,013 articles were screened, and 18 studies with 4,234 individuals were included in the final review. 1,613 individuals (38.1%) had paraplegia, whereas 1658 (39.2%) had tetraplegia. 1,831 participants (43.2%) had complete TSCI, whereas 1024 (24.2%) had incomplete TSCI. The most common etiology of TSCI with 1,545 people (36.5%) was motor vehicle accidents. The youngest mean age at the time of injury was 5.92 ± 4.92 years, whereas the oldest was 14.6 ± 2.8 years. Patient Health Questionnaire-9 was the most common psychological assessment used in 9 studies (50.0%). Various risk factors, including pain in 4 studies (22.2%), reduced sleep quality, reduced functional independence, illicit drug use, incomplete injury, hospitalization, reduced quality of life, and duration of injury in 2 (11.1%) studies, each, were associated with elevated anxiety and depression. Conclusions Different biopsychosocial risk factors contribute to elevated rates of anxiety and depression among individuals with pediatric-onset TSCI. Individuals at risk of developing anxiety and depression should be identified, and targeted support should be provided. Future large-scale studies with long-term follow-up are required to validate and extend these findings.

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Approach to the Pediatric Patient with Respiratory Complications of Neuromuscular Disease

Maniaci,

Panitch

2024

Respiratory Medicine

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Psychiatric Evaluation and Management in Pediatric Spinal Cord Injuries: a Review

Cited by 6 publications

References 44 publications

Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers

Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers

Anxiety and Depression in Pediatric-Onset Traumatic Spinal Cord Injury: A Systematic Review

Approach to the Pediatric Patient with Respiratory Complications of Neuromuscular Disease

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