Psychoeducational intervention on burden and emotional well‐being addressed to informal caregivers of people with dementia

Abstract

Background: In dementia it is necessary that a family member become an informal caregiver. This labour has social, physical and emotional repercussions on the caregiver's health. The objective was to assesses the impact of the INFOSA-DEM intervention on burden and emotional well-being among caregivers of people with dementia, evaluating the effects at 3 and 6 months. Method: We adopted an experimental, non-randomised design with an intervention group and a control group. The intervention group received the intervention and the control group received usual care. The study was carried out in the catchment areas of three centres specialising in the care of people with cognitive impairment in the province of Barcelona. Results: At 3 months, there was an improvement with respect to burden in the intervention group with a significant worsening (P < 0.012) in the control group. Similarly, a positive effect on emotional well-being was observed in the intervention group compared with a small negative effect among controls. Conclusions: Programs addressed to informal caregivers based on psychoeducational and cognitive-behavioural therapies are effective in improving quality of life and emotional well-being, and in reducing burden, with a positive effect on the quality of care provided at home.

Effect of Psychological First Aid Program on Stress Level and Psychological Well-Being Among Caregivers of Older Adults with Alzheimer's Disease

“…Concerning the effect of the psychological rst aid program on psychological wellbeing among caregivers of patients with Alzheimer's disease, the present study showed that there is a remarkable highly signi cant increase in the psychological wellbeing among caregivers after the application of the PFA program with a mean difference of 4.75 and large effect size 1.32. A study by Frias, Risco, & Zabalegui, 2020 contradicted the present study and found that applying psycho-educational intervention on the burden and emotional well-being among informal caregivers of people with dementia can lead to a slight insigni cant improvement in the psychological wellbeing among them, because of low perceived social support (21) .…”

Effect of psychological first aid program on stress level and psychological well-being among caregivers of older adults with alzheimer’s disease

“…Concerning the effect of the PFA program on psychological wellbeing among caregivers of patients with AD, the present study showed that there was a significant increase in psychological wellbeing among caregivers after the application of the PFA program, with a mean difference of 4.75 and a large effect size of 1.32. A study by Frias, Risco, & Zabalegui, 2020 contradicted the present study and found that applying psychoeducational intervention on the burden and emotional well-being among informal caregivers of people with dementia can lead to a slight insignificant improvement in psychological wellbeing among them because of low perceived social support [ 60 ].…”

The potential of transformative video design for improving caregiver’s wellbeing

“…Psychoeducation has been shown to reduce depression, enhance mastery and overall quality of life (Cheng and Zhang, 2020). Psychoeducational programs encourage information sharing, emotional, and social support for caregivers, emphasising engagement in pleasure activities to increase emotional wellbeing while providing skill training and support (Frias et al, 2020). However, the literature recognizes common barriers to attendance and participation in these programs, including transportation issues, care costs, insufficient time due to caregiving/or work obligations, personal health issues and the lack of awareness for specific training needs (Abreu et al, 2015).…”