Psychological Aspects in Treatment of Children with Cystic Fibrosis

Sviridova, Tatiana V.; Namazova-Baranova, Leyla; Lazurenko, Svetlana B.; Simonova, O.

doi:10.1016/j.sbspro.2014.08.155

Cited by 2 publications

(2 citation statements)

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“…The total depression score ranged between 0-27. The severity of depressive symptoms was categorized as none (0-4), mild (5-9), moderate (10)(11)(12)(13)(14), and severe (20-27). 21…”

Section: Phq-9mentioning

confidence: 99%

“…13 This hereditary disease, has a negative impact on the mental development of adolescents with CF that distorts their social situations and self-image due to poor nutrition, increased absenteeism in school, and decreased quality of life. 14 Coping is an adjustment process between an individual and the situation arising as a result of CF, which serves to prevent and control depression among them. On a continuum, it can be passive and avoiding type at one end while on the other end optimistic.…”

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confidence: 99%

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Depression and coping strategies used among adolescents with cystic fibrosis

Tiwari¹,

Sharma

Joshi

et al. 2021

Int J Contemp Pediatr

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Background: Cystic fibrosis (CF), an autosomal recessive monogenic chronic disorder affects the lungs, pancreas, and other exocrine glands, and manifests as recurrent respiratory infections, malabsorption, and a myriad of complications pertaining to other systems like hepatobiliary, endocrine and reproductive systems. Objectives were to assess the level of depression among adolescents with CF, to assess the coping strategies used by adolescents with CF and to find an association between selected sociodemographic and clinical variables with depression.Methods: In a cross-sectional survey, 30 adolescents with CF in the age group of 12-18 years, attending the specialty clinic of a selected tertiary care facility were enrolled using a purposive sampling technique. Tools consisting of sociodemographic and clinical profile, patient health questionnaire (PHQ)-9, and ways of coping with CF were used for data collection.Results: Most of the adolescents with CF (66.7%) had depression of varying severity with 36.7% having moderate-severe to severe depression. The frequently used coping strategies by the adolescents with CF were hopefulness (76.66±11.29), followed by optimistic acceptance (70.23±13.04). The individual coping strategy with the highest mean score was “having confidence on doctor and treatment” (3.83±0.37), while ‘I cry, eat, drink or take drugs’ had the lowest score (1.6±1.00).Conclusion: Depression is a common problem among adolescents with CF requiring regular screening and referral to experts for enhancing their coping strategy of optimistic acceptance.

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“…The total depression score ranged between 0-27. The severity of depressive symptoms was categorized as none (0-4), mild (5-9), moderate (10)(11)(12)(13)(14), and severe (20-27). 21…”

Section: Phq-9mentioning

confidence: 99%

mentioning

confidence: 99%

Depression and coping strategies used among adolescents with cystic fibrosis

Tiwari¹,

Sharma

Joshi

et al. 2021

Int J Contemp Pediatr

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Occupational performance status and reliability of the Canadian Occupational Performance Measure in children with cystic fibrosis

Daftari

Havaei

rezaei

et al. 2020

International Journal of Therapy and Rehabilitation

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Background/Aims Cystic fibrosis affects the respiratory system and may interfere with an individual's occupational performance. This study intended to evaluate the reliability of the Canadian Occupational Performance Measure in children with cystic fibrosis and to compare the occupational performance of children with cystic fibrosis to that of healthy participants. Methods A total of 21 children with cystic fibrosis were included in the reliability and comparison phases of this study and 30 healthy children were recruited for the comparison phase. The Canadian Occupational Performance Measure was used to collect data on occupational performance and satisfaction. Intraclass correlation coefficients and standard error measurements were obtained to evaluate the reliability of the Canadian Occupational Performance Measure. An independent t-test was used to compare the occupational performance of the two groups. Results The test–retest reliability using a 7-day interval was 0.86–0.87 (standard error: 1.79–1.91). The agreement between therapists' scores for inter-rater reliability ranged from 0.87 to 0.90 (standard error: 1.44–1.68). There was a significant difference in performance subscale scores between children with cystic fibrosis and healthy children (P<0.05). There was no significant between-group difference in satisfaction scores. Conclusions The Canadian Occupational Performance Measure is a reliable tool for evaluating the occupational performance of children with cystic fibrosis. Cystic fibrosis directly and indirectly affects occupational performance. Children with cystic fibrosis and their parents may require help and education in the performance and organisation of activities and occupations.

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Psychological Aspects in Treatment of Children with Cystic Fibrosis

Cited by 2 publications

References 1 publication

Depression and coping strategies used among adolescents with cystic fibrosis

Depression and coping strategies used among adolescents with cystic fibrosis

Occupational performance status and reliability of the Canadian Occupational Performance Measure in children with cystic fibrosis

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