Psychological distress among caregivers to heart transplant recipients

Canning, Robert D.; Dew, Mary Amanda; Davidson, Suzanne

doi:10.1016/0277-9536(95)00160-3

Cited by 55 publications

(59 citation statements)

References 30 publications

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“…Shapiro [40] points out that many partner relationships even suffer from psychiatric disorders (depression or anxiety) in the postoperative period. These results have been confirmed in other investigations [4,5,10,11,20,321. Most of the post-transplant communication problems were primarily attributed to coping difficulties.…”

Section: The Partners' Viewsupporting

confidence: 81%

“…The fear of losing their partner, the wish to learn more about the transplantation, and a lack of time available for themselves were their prime reasons for concern before the operation. After the operation, the need to learn more about the transplant, the lack of social support, and the relationship to family and friends were reported as most stressful [11]. Collins et al [16] focused on the impact of the waiting process on spouses.…”

Section: Introductionmentioning

confidence: 99%

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Patients benefit - partners suffer?.

1999

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Terminal heart disease affects not only the patient, but also members of the patient's family, and especially the spouse. The aim of this prospective study of 26 couples was to collect information about the impact of heart transplantation on the partner relationship. Data were collected from patients and spouses when the patients were placed on the waiting list for transplantation, 1 year postoperatively, and 5 years postoperatively. The Family Assessment Measure (FAM HI), a self-report instrument that provides quantitative indices of family functioning on seven interacting dimensions, was used. In the course of the transplant process, both patients and spouses reported a significant deterioration in the partner relationship in general. While patients perceived only one clear-cut point of conflictcommunication about emotions -as crucial, the spouses reported a significant worsening in role performance, communication, emotional involvement, and values and norms. These changes were discernible 1 year after transplantation and persisted for at least 5 years. We conclude that heart transplantation has a significant negative impact on the partner relationship 1-5 years after transplantation. Consequently, more attention should be paid to all aspects of the partner relationship in a holistic approach to the treatment of heart transplant recipients and their partners.

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Section: The Partners' Viewsupporting

confidence: 81%

Section: Introductionmentioning

confidence: 99%

Patients benefit - partners suffer?.

1999

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“…Parents also evidenced elevated psychological distress in the early postoperative period, as has been found in previous research on caregiver psychological adjustment after an adult family member' s transplant. 25,26 The current findings of high parental psychological distress may be a function of assessment performed in the perioperative period because past research has identified lower levels of psychological distress when assessments were made 1 or more years posttransplantation. 25,[27][28][29] Longitudinal prospective studies are needed to clarify the impact of time in relation to the transplantation on parental psychosocial adjustment.…”

Section: Discussionmentioning

confidence: 88%

Parental psychosocial outcomes in pediatric liver and/or intestinal transplantation: Pretransplantation and the early postoperative period

Tarbell

Kosmach

1998

Liver Transpl

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Although liver transplantation has become an effective treatment for end-stage liver disease and liver/intestine transplantation is becoming an increasingly viable procedure for end-stage shortgut syndrome in children, little is known about the impact of these procedures on the child's family. Examination of the impact of these transplantations on the family is needed to identify psychosocial factors that may adversely affect the child's physical and emotional health and to plan for preventive interventions. The psychosocial impact of pediatric liver and/or intestine transplantation on parents was assessed in a cross-sectional sample of 41 mothers and 20 fathers evaluated pretransplantation and 2 months posttransplantation. Parental mental health, parenting stress, and quality of life were assessed, as well as demographic, child, and family characteristics as they related to parental outcomes. Parent adjustment did not differ with regard to time of assessment. A majority of parents (n ‫؍‬ 31) reported elevated psychological symptoms on the Brief Symptom Inventory (BSI), with fathers showing greater distress than mothers (P F .05). Parents' total scores on the Parenting Stress Index and the Parent and Child Domain subscales were in the normal range. Quality of life was assessed by the Physical Health, General Health Perception, and Vitality subscales of the SF-36. Parents reported better physical functioning (P ‫؍‬ .02) but lower vitality ratings than a normative population (P F .01). Family conflict was associated with higher psychological distress on the BSI (P ‫؍‬ .02), whereas demographic factors, including the child's age, sex, and number of people in the household, proved most useful in predicting parenting stress and quality of life. These findings of significant psychological distress in parents of children undergoing liver and/or small-intestine transplantation have implications for the child's adaptation and underscore the need for psychosocial assessment of both parents in the perioperative period. Early identification of families at psychosocial risk and the development of interventions that may prevent or reduce psychological distress are indicated to ensure the best possible outcomes for these children and their families.

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“…The quality of life of relatives is strongly influenced by how the patients master their daily life and how the relatives experience the burden of being informal caregivers both before and after the transplantation (11)(12)(13). The relatives have an important role, and they are influenced by the state and progression of the illness (7,8).…”

Section: Introductionmentioning

confidence: 99%

Relative's experiences before and after a heart or lung transplantation

2014

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Relative's experiences before and after a heart or lung transplantation.Ivarsson, Bodil; Ekmehag, Björn; Sjöberg, Trygve Relative's experiences before and after a heart or lung transplantation. Heart & Lung, 43(3), 198-203. DOI: 10.1016/j.hrtlng.2014 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Take down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim. 1Relative's experiences before and after a heart or lung transplantation Bodil Ivarsson, RN, PhD (1,2) Björn Ekmehag, MD, PhD, (3), Trygve Sjöberg, PhD (1) Department of Cardiothoracic Surgery, Lund University and Skåne University Hospital (1) and Medical Services, Lund (2)

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Psychological distress among caregivers to heart transplant recipients

Cited by 55 publications

References 30 publications

Patients benefit - partners suffer?.

Patients benefit - partners suffer?.

Parental psychosocial outcomes in pediatric liver and/or intestinal transplantation: Pretransplantation and the early postoperative period

Relative's experiences before and after a heart or lung transplantation

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