Psychological Distress in Caregivers for People With Dementia: A Population-Based Analysis of A National Cross-Sectional Study

Abstract

Background: Informal caregivers (CGs), also called family caregivers, play an important role in supporting the well-being of and providing care to older people with dementia. However, taking care of patients with dementia is often stressful and exhausting. To facilitate the sustainable provision of care to people with dementia at home, it is crucial to reduce the burden placed on CGs. The aim of this study was to evaluate the psychological distress experienced by CGs for care recipients with dementia (CRDs) and identify the sociodemographic factors affecting that distress.Methods: We utilized the 2013 Comprehensive Survey of the Living Conditions for CRDs and CGs. Linked data from 643 pairs of CRDs and CGs were extracted. The psychological distress experienced by CGs was measured by Kessler’s Psychological Distress scale (K6) with a cutoff point of 13. Factors predictive of psychological distress were evaluated using multivariable logistic regression analysis with the forward selection method.Results: Overall, the mean age of the CGs was 63.5 ± 11.6 years, and 5.3% (34/643) experienced serious psychological distress. Male sex of CRDs, knowing how to access consulting services, spending almost all day for nursing care, and having subjective symptoms within a few days were associated with having serious psychological distress, while older age, participating in shopping as part of the nursing, and having their own house were related to freedom from serious psychological distress.Conclusions: Clinicians should be aware of the risk factors for psychological distress in CGs and consider providing support to reduce the burden imposed by modifiable factors. Further studies are warranted to examine whether such efforts would improve the mental health of CGs for CRDs.