Psychological interventions for parents of children and adolescents with chronic illness

Law, Emily F.; Fisher, Emma; Eccleston, Christopher; Palermo, Tonya M.

doi:10.1002/14651858.cd009660.pub4

Cited by 129 publications

(118 citation statements)

References 233 publications

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“…Research supports the use of face-to-face psychological therapies and interdisciplinary intensive treatment to reduce pain and restore functioning in pediatric chronic pain [19,20] and parent support is commonly included in treatments, with beneficial effects [21]. However, these evidence-based treatments are not effective for all children, and some domains of pain-related dysfunction generally do not improve.…”

Section: Introductionmentioning

confidence: 99%

Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis

2019

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Pediatric chronic pain is common and can be related to reduced functioning in many domains for the young person and their parents. Existing psychological treatments such as Acceptance and Commitment Therapy (ACT) have shown to be effective, but improvements are needed. Qualitative approaches can help improve our understanding of treatment processes and outcomes. The aim of the present qualitative interview study was to explore the lived experiences of young people and parents who had participated in ACT for pediatric chronic pain. Four young persons and four parents were interviewed, and data was analyzed using Interpretative Phenomenological Analysis (IPA). Three themes were generated, each comprising two subthemes: (1) ‘Warning system’, which included experiences from being offered this psychological intervention, and the alternative explanations provided for pain; (2) ‘Change and challenges’, which suggested the importance of the values-based work, and of individual adaptation; and (3) ’A common language’ in which the interaction with others and new ways to communicate around the pain experience were described. Findings highlight the importance of pain education, formulating and acting in line with personal values, and communication around the pain experience, as well as the need for developmental and individual adaptations of interventions.

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Section: Introductionmentioning

confidence: 99%

Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis

2019

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“…Although families experiencing DMD were not included in these studies, there are transdiagnostic parallels, for example, distress and anxiety management. It therefore seems logical to consider CBT as an intervention, particularly as Law et al (2019) conclude that CBT may improve parenting behavior and therapy may improve parents' mental health in the context of stressful life experiences. This paper therefore seeks to meet the gap in literature and aims to explore the utility in using cognitive behavioral therapy (CBT) to reduce the psychological distress of a mother of a child with DMD.…”

Section: Theoretical and Research Basis For Treatmentmentioning

confidence: 99%

CBT for Anxiety Related to Parenting a Child with a Life-Limiting Neuromuscular Condition: A Single Case Study

Birdsey

2020

Clinical Case Studies

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Caring for a child with a neuromuscular condition such as Duchenne muscular dystrophy (DMD) presents many challenges, including managing the emotional impact of the diagnosis, managing extended periods of profound uncertainty, navigating the complexities of the healthcare system, managing the child’s physical symptoms, and supporting their emotional needs. Although it is encouraging that there is a growing body of research seeking to better understand the medical and treatment needs of those with DMD, the psychosocial needs of individuals and their families have traditionally been considered as ancillary to the child’s physical health needs. Consequently, there is limited research investigating the psychological wellbeing of those with DMD, and even less is known about the psychological wellbeing and needs of caregivers, who play a critical role in supporting their child. Caregivers experience multiple stressors and often encounter caring burden and high prevalence rates of anxiety and depression. This paper aims to explore the use of cognitive behavioral therapy (CBT) for comorbid anxiety and low mood in a parent of a child with DMD using a single case design. Results suggest that in the context of multiple stressors and significant life events, CBT was effective in improving mood and reducing symptoms of anxiety. This case highlights the value in offering support to parents of children with DMD and may have clinical implications for other neuromuscular and life-limiting conditions.

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“…There are established, evidence-based treatments for the most common mental health disorders that arise in conjunction with epilepsy including depression (Klein et al 2007), anxiety (Higa-McMillan et al 2016) and disruptive behaviour disorders (Leijten et al 2018). Although clinical trials of the effectiveness of these treatments in children who also have epilepsy are sparse, the evidence that does exist suggests similar effectiveness of interventions for children with chronic illness as those without (Bennett et al 2015;Corrigan et al 2016;Law et al 2019;Moore et al, 2019) and therefore existing interventions should be the starting point for addressing mental health needs in young people with epilepsy.…”

Section: Introductionmentioning

confidence: 99%

Optimising Evidence-Based Psychological Treatment for the Mental Health Needs of Children with Epilepsy: Principles and Methods

Shafran

Bennett

Coughtrey

et al. 2020

Clin Child Fam Psychol Rev

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There are potent evidence-based psychological treatments for youth with mental health needs, yet they are rarely implemented in clinical practice, especially for youth with mental health disorders in the context of chronic physical illness such as epilepsy. Implementation science, the study of the translation of research into practice, can promote the uptake of existing effective interventions in routine clinical practice and aid the sustainable integration of psychological treatments with routine health care. The aim of this report was to use four implementation science methods to develop a version of an existing effective psychological treatment for mental health disorders [the Modular Approach to Treatment of Children with Anxiety, Depression or Conduct Problems (MATCH-ADTC)] for use within paediatric epilepsy services: (a) literature search; (b) iterative focus groups underpinned by normalisation process theory; (c) Plan-Do-Study-Act methods; and (d) qualitative patient interviews. Findings: Three modifications were deemed necessary to facilitate implementation in children with both mental health disorders and epilepsy. These were (a) a universal brief psychoeducational component addressing the relationship between epilepsy and mental health; (b) supplementary, conditionally activated interventions addressing stigma, parental mental health and the transition to adulthood; and (c) additional training and supervision. The intervention needed relatively little alteration for implementation in paediatric epilepsy services. The modified treatment reflected the scientific literature and the views of clinicians and service users. The multi-method approach used in this report can serve as a model for implementation of evidence-based psychological treatments for children with mental health needs in the context of other chronic illnesses.

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Psychological interventions for parents of children and adolescents with chronic illness

Abstract: Trusted evidence. Informed decisions. Better health.

Cited by 129 publications

References 233 publications

Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis

Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis

CBT for Anxiety Related to Parenting a Child with a Life-Limiting Neuromuscular Condition: A Single Case Study

Optimising Evidence-Based Psychological Treatment for the Mental Health Needs of Children with Epilepsy: Principles and Methods

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