Psychological Issues and Care of Cancer Survivors

Zomerdijk, Nienke; Turner, Jane

doi:10.1007/978-3-030-78648-9_17

Cited by 5 publications

(7 citation statements)

References 72 publications

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“…3 In the years and decades post-treatment completion, cancer survivors face substantial long-term physical (eg, cardiac dysfunction, subsequent cancers) and mental health complications (eg, fatigue, pain, distress, fear of cancer recurrence) associated with cancer and its treatment. [4][5][6][7][8] Similarly, cancer in early childhood or during adolescence can substantially affect a young person's health and psychosocial development, well into adulthood. [9][10][11] Considerable attention has focused on psychosocial care during cancer treatment, showing direct improvements in quality of life (ie, psychological, social, personal, relational, and vocational well-being) and indirect improvements in quantity of life (ie, symptom control, reduced emergency department visits and hospitalizations, improved overall survival, and health care-related costs).…”

Section: Introductionmentioning

confidence: 99%

International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care

Signorelli,

Høeg,

Asuzu

et al. 2024

JCO Glob Oncol

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PURPOSE The number of cancer survivors living with and beyond cancer treatment is rising globally. It is fundamental to understand the extent and type of psychosocial care services offered worldwide. We evaluated models of cancer survivorship care, psychosocial care practices in the post-treatment survivorship phase, and barriers/facilitators to delivery of psychosocial care services, including in low- and middle-income countries (LMICs). METHODS The International Psycho-Oncology Society (IPOS) Survivorship Special Interest Group led a cross-sectional online survey between March and November 2022. Health care professionals and researchers in psycho-oncology were invited through the IPOS global membership, social media, and snowballing. The survey was administered to individuals but included questions related to practices in their country at a national level. RESULTS Two hundred eighty-three respondents from 37 countries participated (40% from LMICs), with a median of 12 years of experience (IQR, 6-20) in the psycho-oncology field. Participants reported that the most common elements of routine survivorship care were related to the prevention/management of recurrences/new cancers (74%), physical late effects (59%), and chronic medical conditions (53%), whereas surveillance/management of psychosocial late effects (27%) and psychosocial/supportive care (25%) were least common. Service availability was more commonly reported in high-income countries (HICs) than LMICs related to reproductive health (29% v 17%), genetic counseling/support (40% v 20%), and identifying/managing distress (39% v 26%) and pain (66% v 48%). Key barriers included providers focusing on treatment not survivorship (57%), medical not psychosocial care (60%), and a lack of allied health providers to deliver psychosocial care (59%). CONCLUSION The psychosocial needs of people living with cancer are not adequately available and/or provided in post-treatment survivorship even in HICs, because of barriers at patient, provider, and system levels.

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Section: Introductionmentioning

confidence: 99%

International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care

Signorelli,

Høeg,

Asuzu

et al. 2024

JCO Glob Oncol

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“…[1] People living with and beyond cancer experience significant challenges resulting from both the effects of cancer and subsequent treatments. [2][3][4] Although many cancer survivors are able to return to typical functioning after treatment, others may experience significant physical, emotional, social, and financial effects [4][5][6][7][8] ; thus, the need for ongoing care remains high. [7,9] Survivorship research and advocacy aim to ensure that the needs of cancer survivors are identified and met and that their quality of life is maintained at the highest level possible.…”

Section: Introductionmentioning

confidence: 99%

“…[2][3][4] Although many cancer survivors are able to return to typical functioning after treatment, others may experience significant physical, emotional, social, and financial effects [4][5][6][7][8] ; thus, the need for ongoing care remains high. [7,9] Survivorship research and advocacy aim to ensure that the needs of cancer survivors are identified and met and that their quality of life is maintained at the highest level possible. [2,[9][10][11] Psychosocial challenges are common among cancer survivors and include fear of recurrence, fatigue, altered sleep and cognition, and effects on sexual health, intimacy, finances, and employment.…”

Section: Introductionmentioning

confidence: 99%

“…[3,4] Addressing the psychosocial needs of this population is crucial to providing high-quality, holistic, and adequate oncologic care. [7,12,13] Achieving this requires a coordinated effort for shared learning and collaborations to promote excellence and improve cancer care on a global scale. [11,13] Advances in survivorship care have lagged behind developments that have fueled improvements in cancer prevention, diagnosis, and treatment.…”

Section: Introductionmentioning

confidence: 99%

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Survivorship representation at IPOS World Congress: abstract review and analysis

Gitonga,

Thornton,

Schulte

et al. 2023

Journal of Psychosocial Oncology Research &Amp; Practice

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Background: Advancements in cancer treatments have enabled more people worldwide to survive cancer, but many experience lasting impacts. The International Psycho-Oncology Society (IPOS) is a global professional organization which hosts an annual World Congress. This study reviewed survivorship content from the World Congress meetings to understand areas of focus, apparent strengths and weaknesses, and global representation. Methods: Peer-reviewed abstracts presented in 2017, 2018, 2019, and 2021 were reviewed. Abstracts were identified by searching for “survivor.” Identified abstracts were read in full to extract content of interest (population of interest, cancer type, number of participants, study design, study topic, first author/country, and international collaboration). Coding was defined a priori. Data were extracted using REDCap. Inter-rater reliability checks were performed. Results: A total of 1813 abstracts were identified and reviewed. The proportion of survivorship-focused abstracts ranged from 13.2%–20.7% annually. Breast cancer dominated survivorship work. The most frequently addressed topics included distress/anxiety/depression (36.6%), quality of life (28.6%), and health behaviors (15.5%). Nearly three-quarters (73%) of abstracts focused on adult populations, and there was apparent international collaboration in 12%–20%. Authorships and abstracts were primarily from high-income countries (91%). Most studies were observational (44%); few were randomized controlled trials (4%). Conclusions: This study found overrepresentation of authorship from some countries. Many topics, patient populations, and countries were not highly represented. IPOS might consider efforts to remedy this imbalance with the ultimate goal of improving psychosocial care for those affected by cancer, globally.

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“…Despite the fact that distress is significant among cancer patients, it frequently remains under-recognized and under-treated, and interventions that can be helpful are not always delivered ( 34 ). Potential interventions targeting exercise intensity, character strengths, medical coping, pharmacologic interventions, social work and counseling services, psychotherapy, cognitive behavioral therapy, and spiritual care are all important aspects used to reduce the burden of psychosocial distress ( 9 , 35 ). According to International Psycho-Oncology Society; to bring high quality, cancer care must comprise psychosocial domain in regular basis and distress management should be recognized as universal human right ( 36 ).…”

Section: Introductionmentioning

confidence: 99%

Psychosocial distress and associated factors among adult cancer patients at oncology: a case of Ethiopia

Baye,

Bogale,

Delie

et al. 2023

Front. Oncol.

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BackgroundPsychosocial distress is a chronic burden for cancer survivors, which impacts both their quality of life and their oncologic prognosis. Although the national cancer prevention and control program in Ethiopia has made efforts in cancer prevention, control, and management by implementing the national cancer control plan 2016–2020, there was no enough evidence about psychosocial distress among adult cancer patients. So, it is critical to understand the magnitude of psychosocial distress and the factors that contribute to it.ObjectiveThe purpose of this study was to assess the prevalence of psychosocial distress and associated factors among adult cancer patients at oncology units in the Amhara regional state, Ethiopia. 2022.MethodsA multicenter institution-based cross-sectional study was conducted among a sample of 605 adult cancer patients from 30 April to 22 June 2022. A systematic random sampling technique was employed to select the study units. In addition, data were collected through interviewers administered questionnaires by using the validated and pretested tools. Distress was assessed using the Questionnaire on Stress in Cancer Patients Revised 10. Both bivariable and multivariable logistic regression was used to describe the association between dependent and independent variables. Independent variable with p < 0.25 in the bivariable logistic regression analyses were entered into multivariable logistic regression model. Variables with p < 0.05 in the multivariable logistic regression analyses were considered as statistically significant associated factors of psychosocial distress.ResultA total of 593 adult cancer patients took part in this study with mean age of 46.86 ± 14.5 years. The overall prevalence of psychosocial distress was 63.74%. Variables such as being female [AOR = 1.98, 95% confidence interval (CI): 1.24–3.17], patients who lives in rural areas (AOR = 2.3, 95% CI: 1.49–3.54), community-based health insurance utilization (AOR = 0.34, 95% CI: 0.23–0.51), patients on chemotherapy treatment (AOR = 2.72, 95% CI: 1.38–5.39), patients with comorbidity (AOR = 3.2, 95% CI: 1.67–6.10), and symptom burdens such as severe fatigue (AOR = 1.65, 95% CI:1.09–2.39) and severe nausea (AOR = 2.07, 95% CI: 1.43–3.00) were statistically associated with psychosocial distress.Conclusion and recommendationIn general, the findings of this study showed a relatively high magnitude in which around two-thirds of patients experienced psychosocial distress. It is better to establish and enforce the integration and coordination of psychosocial oncology service programs at national level with parallel guidelines and policies.

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Psychological Issues and Care of Cancer Survivors

Cited by 5 publications

References 72 publications

International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care

International Survey of Psychosocial Care for Cancer Survivors in Low-/Middle- and High-Income Countries: Current Practices, Barriers, and Facilitators to Care

Survivorship representation at IPOS World Congress: abstract review and analysis

Psychosocial distress and associated factors among adult cancer patients at oncology: a case of Ethiopia

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