Psychological Profile of Patients Diagnosed With Idiopathic Pulmonary Fibrosis

Rudilla, David; Beceiro, María José; Alonso, Tamara; Oliver, Amparo; Soriano, Joan B.; Valenzuela, Claudia; Ancochea, Julio

doi:10.1016/j.arbres.2021.04.025

Cited by 2 publications

(1 citation statement)

References 15 publications

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“…Eventually, overwhelming dyspnea limits patients' abilities, leading to dependence on family members for basic functions like showering and dressing, and a loss of dignity, frustration and hopelessness. Over 70% of IPF patients experience demoralization due to loss of autonomy, lack of control, and fears of uncertainty and death [12]. Lastly, a poor quality of death and dying marks a distressing Eol experience in pulmonary fibrosis, highlighting a significant need for palliative care support.…”

Section: Introductionmentioning

confidence: 99%

Palliative care in advanced pulmonary fibrosis

Kalluri

2024

Current Opinion in Pulmonary Medicine

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Purpose of review Updated clinical practice guidelines for pulmonary fibrosis recommend early integrated palliative care using a primary palliative approach. Clinicians need to be aware of the various palliative interventions in order to implement guidelines’ recommendations. This review provides an update on evidence-based palliative therapies. Recent findings Literature review indicates early integration of palliative care in pulmonary fibrosis is feasible and meets patient needs. Key components of a primary palliative approach include comprehensive symptoms and needs screening, systematic symptom management using nonpharmacologic interventions, supplemental oxygen and opioids for dyspnea and cough. Patient-centered communication is essential for successful integration of palliative care. Early, iterative advance care planning in clinic to understand patient goals, values and preferences for current and future care, improves patient care and satisfaction. Prioritizing caregiver inclusion in clinics can address their needs. Collaborating with a multidisciplinary allied team facilitates integration of palliative care and supports patients throughout the disease course. Different models of palliative care delivery exist and can be adapted for local use. The use of artificial intelligence algorithms and tools may improve care and continuity. Summary Clinicians must develop competency in palliative care. Organizational and policy support is essential to enable seamless integration of palliative care throughout the care continuum.

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Section: Introductionmentioning

confidence: 99%