Psychological support needs of patients with head and neck cancer and their caregivers: A qualitative study

Richardson, Amy; Morton, Randall P.; Broadbent, Elizabeth

doi:10.1080/08870446.2015.1045512

Cited by 38 publications

(62 citation statements)

References 50 publications

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“…Other studies have reported that HNC caregivers have unmet informational and supportive care needs [22-25]. Similarly, the HNC caregivers in our study reported interest in stress reduction programs, cancer education, and classes on finances, caregiving, and personal well-being.…”

Section: Discussionsupporting

confidence: 75%

“…Among caregivers of HNC patients, moderate caregiving burden and poorer psychological health in comparison to patients and the general population have been reported [3, 21]. HNC caregivers have reported unmet informational needs related to the disease and treatment, patient side effects, psychosocial consequences for the family, and survivorship [22-25]. HNC caregivers have also reported a need for psychological support, self-help groups, assistance with coping strategies, patient care, legal/financial support, and healthcare service assistance [22, 23, 25].…”

Section: Introductionmentioning

confidence: 99%

“…HNC caregivers have reported unmet informational needs related to the disease and treatment, patient side effects, psychosocial consequences for the family, and survivorship [22-25]. HNC caregivers have also reported a need for psychological support, self-help groups, assistance with coping strategies, patient care, legal/financial support, and healthcare service assistance [22, 23, 25]. In another study, the majority of spouses of laryngectomized cancer patients reported a desire to learn relaxation methods but little interest in professional counseling services [26].…”

Section: Introductionmentioning

confidence: 99%

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Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers

Nightingale

Sterba

Tooze

et al. 2016

Support Care Cancer

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Purpose Head and neck cancer (HNC) caregivers have poorer psychological health compared to patients and the general population, but have not yet been targeted for wellness programs to reduce adverse psychosocial or physical health outcomes. To inform development of such programs, we identified potential vulnerabilities to poor outcomes and examined wellness program preferences among HNC caregivers. We also examined whether interest in wellness programs varied by potential vulnerabilities among HNC caregivers. Methods Surveys were administered to caregivers (N = 33) of HNC patients undergoing major surgery. Sociodemographic factors, caregiving characteristics, psychosocial functioning, and health behavior data were collected. Fisher's exact tests and t-tests were used to examine characteristics associated with interest in the different types of wellness programs. Results Many caregivers reported a heavy caregiving load (88% live with patient; 73% provide daily care), a smoking history (42%), and compromised psychosocial functioning (45% with depressive symptoms; 33% with anxiety above population norms). Most caregivers were interested in wellness programs focused on diet/exercise (71.9%), cancer education (66.7%), stress reduction (63.6%), and finances, caregiving, and well-being (57.6%). Caregivers endorsed highest interest in programs offered during the patient's medical treatment (63.6%) and mail was the preferred program format (50.0%). Those with more depressive symptoms reported more interest in programs focused on cancer education (p = .03), stress reduction (p = .05), and educational classes on finances, caregiving and well-being (p = .01). Conclusions Wellness programs offering a menu of options should be developed for HNC caregivers.

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Section: Discussionsupporting

confidence: 75%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers

Nightingale

Sterba

Tooze

et al. 2016

Support Care Cancer

View full text Add to dashboard Cite

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“…In fact, our theory shows that the family plays a "supporting role" in persuading and leading the patient to the surgery. This role emerges from narratives of patients and HCPs and was also confirmed by studies conducted in other contexts (Lang et al, 2013;Rana et al, 2016;Richardson, Morton, & Broadbent, 2015). In a few cases, the interviewed patients spontaneously cited some family members who had evidently played a supporting role in this phase.…”

Section: Research Limitations and Future Developmentssupporting

confidence: 65%

Undergoing head and neck cancer surgery: A grounded theory

et al. 2019

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Surgery is the treatment of choice in most head and neck cancers. Very often, the surgery is radical with high impact on the psychosocial, functional and aesthetic fields. The aim of this study is to gain a deeper understanding of the patient's, clinician's and key informant's point of view when surgery is proposed, to improve the quality of pathways in terms of patients’ practical, psychological and relational needs. We followed a Grounded Theory approach with semi‐structured interviews. Seventeen participants (six patients, nine healthcare professionals and two volunteers) were interviewed immediately before surgery. The study generated a process of “persuading the patient of an obligation” as the core category. The other principal categories that emerged highlighted the patients’ doubts and fears regarding the surgery consequences and, in parallel, strategies employed by the healthcare professionals to rebut hindering issues impeding surgery. In particular, healthcare professionals involved patients in an affiliation process through simplified communication to sustain the choice of surgery; the family plays a supportive role in this process. The interplay between the organisational process and patients’ experience results in “I will let you convince me” at the end of the decision‐making process, where the main aim was to save and be saved.

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“…Head and neck caregivers may in fact be more distressed by head and neck cancer than the patients themselves (Richardson et al . ,b). Around a third of head and neck cancer relative/friends indicate that they believe that caring is a significant burden on caregivers (Precious et al .…”

Section: Introductionmentioning

confidence: 99%

Distress in long‐term head and neck cancer carers: a qualitative study of carers' perspectives

Balfe

Maguire

Hanly

et al. 2016

Journal of Clinical Nursing

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Psychological support needs of patients with head and neck cancer and their caregivers: A qualitative study

Abstract: The results of this study suggest that psychological interventions for patients with HNC and their caregivers should be delivered early after diagnosis in face to face sessions, presenting honest and factual information about the disease and coping strategies.

Cited by 38 publications

References 50 publications

Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers

Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers

Undergoing head and neck cancer surgery: A grounded theory

Distress in long‐term head and neck cancer carers: a qualitative study of carers' perspectives

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