Psychological variables and quality of life in women with endometriosis

Rees, Madeleine; Kiemle, Gundi; Slade, Pauline

doi:10.1080/0167482x.2020.1784874

Cited by 15 publications

(8 citation statements)

References 42 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The negative effects of endometriosis on psychosocial well-being, which can start as early as adolescence [38,40,41], have been assessed and well-documented by a mix of quantitative, qualitative, and tertiary studies. These effects include increased emotional and psychological distress, decreased emotional well-being, reduced quality of sleep, diminished health-related and overall quality of life, and higher prevalence and severity of symptoms of depression and anxiety [37,[42][43][44][45][46][47][48]. Individuals with endometriosis can experience adverse effects on sexual function and satisfaction, such as painful intercourse, avoidance of intercourse, lower levels of desire and arousal, and poorer orgasm [49][50][51].…”

Section: Physical and Mental Health Consequences Of Endometriosismentioning

confidence: 99%

Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay

Sims

Gupta

Missmer

et al. 2021

IJERPH

View full text Add to dashboard Cite

Endometriosis is a chronic gynecological disease that affects approximately 1 in 10 women of reproductive age. Symptoms of severe pelvic pain, infertility, fatigue, and abnormal menstruation can cause significant negative effects on an individual’s physical and mental health, including interactions with their family, friends, and health care providers. Stigma associated with endometriosis has been under-studied and is rarely discussed in current literature. Herein, this paper aims to provide a brief overview of published literature to explore and establish the plausibility of stigma as a driver of suboptimal psychosocial well-being and diagnostic delay among individuals living with endometriosis. We present the clinical characteristics and physical and mental health consequences associated with endometriosis, highlight several theoretical constructs of stigma, and review the limited studies documenting women’s lived experiences of endometriosis-related stigma. To mitigate harmful effects of this phenomenon, we recommend increasing efforts to assess the prevalence of and to characterize endometriosis-related stigma, implementing awareness campaigns, and developing interventions that combat the multidimensional negative effects of stigma on timely care, treatment, and quality of life for individuals living with endometriosis.

show abstract

Section: Physical and Mental Health Consequences Of Endometriosismentioning

confidence: 99%

Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay

Sims

Gupta

Missmer

et al. 2021

IJERPH

View full text Add to dashboard Cite

show abstract

“…It has an impact on both mental and physical quality of life. The main symptom of the disease is chronic pain localized mainly in the pelvis minor [ 67 , 68 , 69 ]. The patients also complain of other burdensome symptoms.…”

Section: Discussionmentioning

confidence: 99%

The State of Health and the Quality of Life in Women Suffering from Endometriosis

Ruszała

Dłuski

Winkler

et al. 2022

JCM

View full text Add to dashboard Cite

Quality of life is related to good health, family relations, feeling of self-esteem, and ability to cope with difficult situations. Endometriosis is a chronic condition which affects different areas of life. The lack of satisfaction in everyday life is mainly due to constant pain. The process of adjusting to a life with illness is associated with negative emotions. The aim of the article is to review the current state of knowledge concerning the impact of social and medical factors on a population of women affected by endometriosis. Women with endometriosis have an impaired quality of life compared to the general female population. Psychological consequences of endometriosis include: depression, anxiety, powerlessness, guilt, self-directed violence, and deterioration of interpersonal relations. It may contribute to lower productivity at work and less satisfying intimate life. A multi-disciplinary, evidence-based care is needed. The disease can take away the ability to be physically active, obtain an education, work continuously, and interact with friends. Social support and cognitive-behavioral therapy are extremely important for healing.

show abstract

“…There are many reports on the negative impact of endometriosis symptoms on quality of life, work/study productivity, and personal relationships that, in turn, causes high levels of psychological and emotional distress. 40,41 Delayed diagnosis and frustrations caused by the chronicity, unpredictability, and high recurrence rates of the disease, cause a generalized feeling of having little or no control and may contribute to the known alterations in the HPA axis regulation in this patient population. 42–44 This may be compounded by our observation that 40% of patients had difficulties accessing gynecological care, either due to fear of infection or inability to book an appointment.…”

Section: Discussionmentioning

confidence: 99%

Impact of the early COVID-19 era on endometriosis patients: Symptoms, stress, and access to care

Ramos-Echevarría

Soto-Soto

Torres-Reverón

et al. 2021

Journal of Endometriosis and Pelvic Pain Disorders

View full text Add to dashboard Cite

Introduction: Monitoring the impact of natural disasters such as pandemics on health and wellbeing is a public health priority. Stress is proven to affect pain intensity and quality of life of endometriosis patients. A cross-sectional study was conducted to determine whether the measures implemented to mitigate COVID-19 infections had a substantial impact on risk behaviors, endometriosis symptoms, stress, and access to healthcare. Methods: Electronic questionnaires that measured COVID-19 impact and peri-traumatic stress were disseminated through social media over June–September 2020 and completed by 82 adult patients with endometriosis living in Puerto Rico. Descriptive data analysis and correlations were done in quantitative data and systematic analysis of free text was done on qualitative responses. Results: Participants self-reported worsening of endometriosis symptoms and high levels of peri-traumatic stress, as well as changes in risk behaviors (exercise, nutrition, sedentarism, sleep) during the pandemic in comparison to the previous months. They also reported substantial barriers in access to medical appointments, scheduled procedures, and prescriptions. Electronic health modalities (telemedicine, mobile apps) were considered acceptable alternatives for gynecologic care during natural disasters. Conclusion: The COVID-19 pandemic negatively impacts the health and wellbeing of endometriosis patients while imposing substantial restrictions on access to health care. These timely insights will guide the development and implementation of plans to address barriers to health care and minimize long-term detrimental effects of natural disasters on the health of those living with stress-related disorders such as endometriosis.

show abstract

Psychological variables and quality of life in women with endometriosis

Cited by 15 publications

References 42 publications

Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay

Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay

The State of Health and the Quality of Life in Women Suffering from Endometriosis

Impact of the early COVID-19 era on endometriosis patients: Symptoms, stress, and access to care

Contact Info

Product

Resources

About