Psychometric evaluation of the Italian version of the AADS questionnaire: a caregiver-rated tool for the assessment of behavioral deficits and excesses in persons with intellectual disabilities and dementia

Vreese, Luc Pieter De; Mantesso, Ulrico; Bastiani, Elisa De; Marangoni, Annachiara; Gomiero, Tiziano

doi:10.1017/s1041610211000342

Cited by 11 publications

(4 citation statements)

References 20 publications

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“…2022); since the AILMS is focused on assessing advanced instrumental activities and high order executive functioning, then it may be more sensitive to detecting early changes compared with other informant‐rated scales that assess changes in more simple or basic daily abilities, such as the DMR‐I (De Vreese et al . 2007) and DSQIID‐I (Gomiero et al . 2017).…”

Section: Discussionmentioning

confidence: 99%

“…Changes in daily abilities, in the absence of new-onset organic or mental health problems associated with an incipient cognitive decline, may predict dementia (Deb et al 2022); since the AILMS is focused on assessing advanced instrumental activities and high order executive functioning, then it may be more sensitive to detecting early changes compared with other informant-rated scales that assess changes in more simple or basic daily abilities, such as the DMR-I (De Vreese et al 2007) and DSQIID-I (Gomiero et al 2017). Future longitudinal studies are required to determine the usefulness of the AILMS to assess dementia-related functional decline in adults or seniors with IDD.…”

Section: Future Use and Other Applications Of The Ailmsmentioning

confidence: 99%

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Adult Independence Living Measurement Scale: Psychometric validation of a scale to estimate personal skills for independent living in people with intellectual and developmental disabilities

Zorzi

Dalmonego²,

Vreese³

et al. 2023

J intellect Disabil Res

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BackgroundThe United Nations has declared that people with disabilities should be enabled to live as independently as possible, since independence is correlated with a better quality of life. Consequently, services need to have common and validated measurement tools for the evaluation of the different levels of personal support needs in order to promote independent living skills. We aimed to create and validate the Adult Independence Living Measurement Scale (AILMS) to estimate personal skills considered tantamount for independent living in adult persons with intellectual and developmental disabilities. Methods AILMS is a short informant-rated assessment tool consisting of 19 items (goals) regarding the most important skills related to independent living. AILMS total score is directly proportional to the degree of independence, with scores ranging from 19 to 76. Our validation is a multicentre study attended by 243 subjects, 110 female and 123 males, with a median age of 37 years and with an interquartile range (IQR) of 18 (25th percentile [Q1] 29 years to 75th percentile [Q3] 47 years). All subjects had a diagnosis of intellectual disability associated with various neurodevelopmental disorders or syndromic conditions. ResultsThe AILMS shows a wide range of scores with a minimum score of 21 and a maximum of 72. We found no floor or ceiling effects for the total score on the AILMS. Cronbach's α coefficient (= 0.95), based on the 19 AILMS items, indicated high internal consistency. The tool demonstrates a very good agreement even when comparing the results submitted by two different interviewers. It also shows an excellent temporal stability of 1 week, with intraclass correlation coefficients both of 0.97. AILMS total scores do not differ by sex or age, while statistically significant differences are observed between people with different levels of severity of ID. Convergent validity of AILMS was analysed by correlating its total scores with the Italian validated versions of the Support Intensity Scale (SIS-I) and the Alzheimer's Functional Assessment Tool (AFAST-I) scores. Strong inverse Spearman correlations coefficients (r s ) were found both for the Support 560

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Section: Discussionmentioning

confidence: 99%

Section: Future Use and Other Applications Of The Ailmsmentioning

confidence: 99%

Adult Independence Living Measurement Scale: Psychometric validation of a scale to estimate personal skills for independent living in people with intellectual and developmental disabilities

Zorzi

Dalmonego²,

Vreese³

et al. 2023

J intellect Disabil Res

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“…The discriminant validity of AFAST‐I was checked by the use of the sub‐scale of an Italian version of the Assessment for Adults with Developmental Disabilities (De Vreese et al . ). This informant‐based scale quantifies the frequency of 11 behavioural excesses which have occurred in the last two weeks (e.g.…”

Section: Methodsmentioning

confidence: 97%

Functional abilities and cognitive decline in adult and aging intellectual disabilities. Psychometric validation of an Italian version of the Alzheimer's Functional Assessment Tool (AFAST): analysis of its clinical significance with linear statistics and artificial neural networks

Vreese¹,

Gomiero²,

Uberti³

et al. 2014

J intellect Disabil Res

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“…Cross-Sectional Studies Including Participants with DS and other IDThe DLD[38,39,40] revealed good psychometric properties in studies with participants with both DS as other ID. Eight studies used the DLD[47,61,62,63,64,65,66,67] Shultz et al (2004).…”

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confidence: 99%

Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review

Paiva

Nolan

Thumser

et al. 2020

Preprint

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Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual Disabilities, mainly Down Syndrome (DS), is crucial to offer appropriate services to their needs. We present a systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice. Methods: Searches were carried out in the databases Web of Science; PubMed; PsycINFO in March 2019 and updated in May 2020. Studies were selected and examined if they: (1) focused on assessing age-related cognitive changes in person with ID; (2) included adults and/or older adults; (3) included scales and batteries for cognitive assessment. Results: Forty-eight cross-sectional studies and twenty-six longitudinal studies were selected representing a total sample of 5,851 participants (4,089 DS and 1,801 with other ID). In those studies, we found 38 scales, questionnaires, and inventories, and 14 batteries for assessing cognitive and behavioural changes in adults with DS and other ID. Conclusion: The most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD), and its previous versions. We discuss the strengths and limitations of the instruments and outline recommendations for future use.

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Psychometric evaluation of the Italian version of the AADS questionnaire: a caregiver-rated tool for the assessment of behavioral deficits and excesses in persons with intellectual disabilities and dementia

Abstract: These results confirm the reliability and validity of the Italian version of AADS.

Cited by 11 publications

References 20 publications

Adult Independence Living Measurement Scale: Psychometric validation of a scale to estimate personal skills for independent living in people with intellectual and developmental disabilities

Adult Independence Living Measurement Scale: Psychometric validation of a scale to estimate personal skills for independent living in people with intellectual and developmental disabilities

Functional abilities and cognitive decline in adult and aging intellectual disabilities. Psychometric validation of an Italian version of the Alzheimer's Functional Assessment Tool (AFAST): analysis of its clinical significance with linear statistics and artificial neural networks

Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review

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