Psychometric Evaluation of the Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire in a General Youth Population

Anderson, J. Kyle; Killian, Michael; Fuller, Anne K.; Hughes, Jennifer L.; Byerly, Matthew J.; Lindow, Janet C.; Rush, A. John; Trivedi, Madhukar H.

doi:10.1007/s10578-021-01148-z

Cited by 3 publications

(3 citation statements)

References 27 publications

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“…Quality of life (QOL) studies are considered a good model for the evaluations of medical and surgical treatment outcomes and impact on patients' lives [17][18][19][20][21]. Ferrans et al's revision of the Wilson and Cleary's model of healthrelated QOL [17] has frequently been adopted for oncology [22][23][24] but can be equally applied to evaluate the outcome after surgery [20].…”

Section: Discussionmentioning

confidence: 99%

“…Our analysis was further implemented when we started to perform PEPSIT. In particular, we submitted the PQ-LES-Q [ 19 ] to patients operated with this technique 1 week after surgery, in order to assess their overall quality of life and life satisfaction.…”

Section: Discussionmentioning

confidence: 99%

“…Quality of life (QOL) outcome is the most adopted evaluation method for determining the efficacy of a surgical therapy in operated patients [ 17 , 18 ], while Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) represents a valid assessment tool to evaluate the quality of life and life satisfaction in adolescents [ 19 ].…”

Section: Introductionmentioning

confidence: 99%

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Quality of life of pediatric patients operated for pilonidal sinus disease

et al. 2022

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Quality of life (QOL) outcome is an ideal method for determining the efficacy of a surgical treatment. In children operated for pilonidal sinus disease (PSD), open procedures imply prolonged wound care, significant morbidity, and high recurrence rates. Endoscopic treatment (PEPSIT) overcomes these limitations. We report our experience in the management of PSD to evaluate the QOL of patients undergoing open and endoscopic treatment. The records of 177 patients undergoing surgery for PSD from 2008 to 2021 were retrospectively reviewed. Twenty patients were operated with open surgery (G1) and 157 with PEPSIT (G2). We analyzed QOL through the following criteria: hospital stay (HS), healing time (HT), return to sport (RTSp), return to school (RTSc), resumption of social life (RSL), and recurrence rate and reoperation (RRR). Moreover, we used Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) for a more subjective evaluation of life satisfaction. We found significant differences in all the analyzed criteria: HS varied from 3 to 7 days in G1 and from 1 to 2 days in G2; HT from 40 to 75 days in G1 while from 20 to 41 days in G2; RTSp from 50 to 80 days in G1 while from 7 to 21 days in G2; RTSc from 9 to 15 days in G1 while from 2 to 4 days in G2; RSL from 13 to 20 days in G1 while from 2 to 5 days in G2; RRR was 25% in G1 and 4.4% in G2.Conclusion: Endoscopic treatment (PEPSIT) significantly improves the quality of life of patients operated for PSD. Compared to open surgery, PEPSIT presents shorter hospital stay, faster healing time, return to sport activities, return to school and resumption of a normal social life, and lower rates of recurrence and reoperation. In addition, PQ-LES-Q demonstrated a good overall quality of life and life satisfaction. Further prospective studies should be obtained to consider PEPSIT as the gold standard for the treatment of PSD in pediatric patients. What is Known: • Many techniques have been proposed in the last 20 years for the surgical treatment of PSD. • PEPSIT is showing promising results in terms of safety and long-term efficacy. What is New: • The main impact in QOL of patients operated with PEPSIT is on their daily activity, including a shorter hospital stay, faster healing time, return to sport activities, return to school and resumption of a normal social life, lower rates of recurrence and reoperation. • After PEPSIT, children maintain a satisfactory quality of life according to the analysis of PQ-LES-Q

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Quality of life of pediatric patients operated for pilonidal sinus disease

et al. 2022

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Construct validation of Urdu version of Pediatric Quality of Life Inventory: evidence from Pakistan

Mustafa,

Maqsood

2024

JMHTEP

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Purpose Mental health problems during the initial years of life are precursors of mental disorders in later life, as well as poor quality of life. However, understanding and assessing the quality of life among children is very challenging and requires appropriate assessment measures. Against this backdrop, this study aims to establish the evidence for the construct and convergent validity of Urdu version of Pediatric Quality of Life Inventory (PedsQL) in Pakistani children. Design/methodology/approach This study has a cross-sectional study design in which a sample of 291 primary school children (53.3% male children and 44.7% female children) were enrolled from 6 primary schools located in Rawalpindi District in 2021 through random sampling. Children’s ages ranged between 9 and 13 years (M = 10.51 years; SD = 0.73). Urdu translated version PedsQL, Rosenburg self-esteem scale (RSES), strengths and difficulties questionnaire (SDQ), difficulty subscale and socio-demographic form were administered in a group setting. Findings Confirmatory factor analysis showed model provided a better fit similar to three factors: social/school functioning; psychological functioning; and physical functioning with good alpha reliability for full scale as well for subscales (r = 0.87, r = 0.75, r = 0.77 and r = 0.73), respectively. Pearson’s correlation of the translated version with SDQ_difficulties (r = −0.33; p < 0.01) and RSES (r = −016; p < 0.01) depicted solid discriminant validity (r = −0.33; p < 0.01) and RSES showed good convergent validity (r = −0.16; p < 0.01). Hence; PedsQL, Urdu proved to be a reliable, valid and efficient tool for the assessment of quality of life among Pakistani children, and its three-factor structure model suggested previously for Pakistani children was confirmed. Originality/value This study is original work by the researcher as part of their PhD project.

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