Psychometric Properties and Factor Analysis of the Engagement and Independence in Dementia Questionnaire (EID-Q)

Stoner, Charlotte R; Orrell, Martin; Spector, Aimee

doi:10.1159/000488484

Cited by 18 publications

(21 citation statements)

References 21 publications

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“…Thirty-five self-report instruments (of which one instrument has two independently developed sub-scales 1 ) used in dementia research were identified and allocated to respective conceptual domains (Table 2 ). For example, the Gratitude Questionnaire [ 93 ] was categorised within ‘Social Well-being: Connection and Belonging’, since gratitude is seen as a social construct [ 113 ], whilst the Engagement and Independence in Dementia Questionnaire - EID-Q [ 77 ] -, contained just one item for participation in hobbies, and none on social engagement, so this instrument was allocated to ‘Psychological Well-Being: Agency and Purpose’.…”

Section: Resultsmentioning

confidence: 99%

“…Dementia- specific measure of perceived involvement in everyday decision-making - some psychometric properties reported. Engagement and Independence in Dementia Questionnaire (26-item EDI-Q) b [ 77 ]. Dementia specific measure – some psychometric properties reported by scale developers.…”

Section: Resultsmentioning

confidence: 99%

“…Engagement and Independence in Dementia Questionnaire (26item EDI-Q) b [77]. Dementia specific measuresome psychometric properties reported by scale developers.…”

Section: Theme: Psychological Well-beingmentioning

confidence: 99%

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Measuring the well-being of people with dementia: a conceptual scoping review

Clarke

Woods

Moniz-Cook

et al. 2020

Health Qual Life Outcomes

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Background: Enabling people with dementia to 'live well' is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from a symptom-focused, loss/deficit approach, or from broad quality of life concepts. A pan-European dementia working group called for research on the development of an alternative asset/strengths-based conceptual framework of well-being in dementia. This paper takes forward this recommendation by developing such a framework and using this to map relevant self-report outcome measures. Methods: Three scoping reviews of published studies were conducted iteratively. First, we examined the literature on lived experiences of well-being and quality of life in people with dementia and then the wider dementia literature for application of well-being constructs. The synthesised findings generated conceptual domains of well-being in people with dementia. Corresponding self-report instruments used in dementia research were scoped, categorised within the conceptual framework and their potential value in measuring outcomes for people with dementia was examined. Findings: Six conceptual domains for the measurement of well-being and 35 self-report instruments that have been used with people with dementia were identified. Six instruments were developed specifically for people with dementia, five were derived from the gerontological literature and 24 from the well-being literature. Fifteen instruments and one sub-scale have been examined for psychometric properties amongst people with dementia. To date, 20 have been used as outcome measures, with seven measuring change over time. A number of identified instruments utilise traditional retrospective Likert-scaling response formats, limiting their potential for use with some groups of people with dementia. Conclusion: An assets/strengths-based framework is presented, outlining structural domains for selecting self-report measures of well-being in people with dementia. It provides a foundation for enhancing research into processes and outcomes of psychosocial interventions, including instrument development, more precise matching of intervention aims with outcome measurement, and newer technology-based 'in-the-moment' measurement.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Measuring the well-being of people with dementia: a conceptual scoping review

Clarke

Woods

Moniz-Cook

et al. 2020

Health Qual Life Outcomes

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“…People with dementia can face unique challenges and difficulties, however, there can still be a misconception that they lack the capacity for positive engagement or growth (Graham et al, 2003). Our recent body of research, during which we developed positive psychology outcome measures for older adults with mild dementia, suggests that they are equally capable of experiencing and articulating often complex concepts such as resilience (Stoner, Orrell, & Spector, 2018a) and social engagement (Stoner, Orrell, & Spector, 2018b), as described by Gough et al, (2018). Although knowledge transfer interventions may be challenging for people with dementia, due to the nature of the condition, this should not automatically exclude them and people with milder cognitive impairment could be supported to take part.…”

mentioning

confidence: 99%

“…People with dementia can face unique challenges and difficulties; however, there can still be a misconception that they lack the capacity for positive engagement or growth (Graham et al ., 2003). Our recent body of research, during which we developed positive psychology outcome measures for older adults with mild dementia, suggests that they are equally capable of experiencing and articulating often complex concepts such as resilience (Stoner et al , 2018a) and social engagement (Stoner et al , 2018b), as described by Gough et al . (2018).…”

mentioning

confidence: 99%

Positive psychiatry/psychology for older adults: a new and important movement but robust methodology is essential

Stoner¹

2019

Int. Psychogeriatr.

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Positive psychiatry and the related positive psychology are offering a much needed alternative framework through which to view the psychology of old age (Jeste et al., 2015). Traditional models of old age tend to approach the subject from a negative view point where themes of dependency and decline can be common (Cumming and Henry, 1961). In contrast, positive psychiatry and psychology refer to the scientific study of strengths and capabilities that contribute to well-being (Seligman, 1998). Some of these can be thought of as character strengths and evidence suggests that concepts such as hope, humour, integrity, and gratitude are universal, with examples documented in at least 54 nations across the world (Park et al., 2006). Researchers aligned to these theoretical models seek to explore complex approaches to measuring and improving mental health, recognizing that well-being is often a dynamic interplay between positive and negative psychological processes and outcomes (Lomas and Ivtzan, 2016).

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Person‐centered assessment of people living with dementia: Review of existing measures

Mast

Molony

Nicholson

et al. 2021

A&D Transl Res & Clin Interv

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Introduction Person‐centered care and assessment calls for measurement tools that help researchers and providers understand people with dementia, their social relationships, and their experience of the care environment. This paper reviewed available measures and evaluated their psychometric properties. Methods Literature searches of major databases (PsycInfo, PubMed, EBSCO, CINAHL) for papers examining person‐centered constructs in samples of people living with dementia or mild cognitive impairment. Reliability and validity coefficients were reviewed and reported. Results We identified 26 unique measures that had been tested in samples of people living with dementia. Twelve measures of hope, well‐being, engagement, social relationships, meaning, resilience, stigma, spiritual beliefs and practices, values and preferences, and positive psychology constructs had strong psychometric properties in samples with dementia. Discussion A variety of reliability and valid measures were identified for use in person‐centered care and research with people living with dementia. Additional measure development is needed for key person‐centered concepts including dignity and strengths.

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Psychometric Properties and Factor Analysis of the Engagement and Independence in Dementia Questionnaire (EID-Q)

Cited by 18 publications

References 21 publications

Measuring the well-being of people with dementia: a conceptual scoping review

Measuring the well-being of people with dementia: a conceptual scoping review

Positive psychiatry/psychology for older adults: a new and important movement but robust methodology is essential

Person‐centered assessment of people living with dementia: Review of existing measures

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