Psychometric properties of an <scp>A</scp>ustralian supportive care needs assessment tool for <scp>I</scp>ndigenous patients with cancer

Garvey, Gail; Beesley, Vanessa L.; Janda, Monika; O’Rourke, Peter; He, Vincent Yaofeng; Hawkes, Anna L.; Elston, Jacinta; Green, Adèle C.; Cunningham, Joan; Valery, Patricia C.

doi:10.1002/cncr.29433

Cited by 43 publications

(68 citation statements)

References 28 publications

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“…Incomplete or delayed access to information by GP has been linked to preventable medical errors. Compared to a previous study which recruited 248 indigenous cancer patients from hospitals in Queensland, 49 18,19,49 the higher proportion of medical charts at PHC services with missing cancer stage is of concern and it may be attributed to poor communication between hospitals and PHC services. 18,19 Patients with comorbidities may be more likely to develop long-term relationships with their PHC services or GP.…”

Section: Communication About Cancer In Primary Carementioning

confidence: 75%

Are general practitioners getting the information they need from hospitals and specialists to provide quality cancer care for Indigenous Australians?

Valery

Bernardes

Witt

et al. 2020

Internal Medicine Journal

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Background Cancer care involves many different healthcare providers. Delayed or inaccurate communication between specialists and general practitioners (GP) may negatively affect care. Aim To describe the pattern and variation of communication between primary healthcare (PHC) services and hospitals and specialists in relation to the patient's cancer care. Methods A retrospective audit of clinical records of Indigenous Australians diagnosed with cancer during 2010–2016 identified through 10 PHC services in Queensland is described. Poisson regression was used to model the dichotomous outcome availability of hospital discharge summary versus not. Results A total of 138 patient records was audited; 115 of those patients visited the PHC service for cancer‐related care after cancer diagnosis; 40.0% visited the service before a discharge summary was available, and 36.5% of the patients had no discharge summary in their medical notes. While most discharge summaries noted important information about the patient's cancer, 42.4% lacked details regarding the discharge medications regimen. Conclusions Deficits in communication and information transfer between specialists and GP may adversely affect patient care. Indigenous Australians are a relatively disadvantaged group that experience poor health outcomes and relatively poor access to care. The low proportion of discharge summaries noting discharge medication regimen is of concern among Indigenous Australians with cancer who have high comorbidity burden and low health literacy. Our findings provide an insight into some of the factors associated with quality of cancer care, and may provide guidance for focus areas for further research and improvement efforts.

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Section: Communication About Cancer In Primary Carementioning

confidence: 75%

Are general practitioners getting the information they need from hospitals and specialists to provide quality cancer care for Indigenous Australians?

Valery

Bernardes

Witt

et al. 2020

Internal Medicine Journal

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“…This manuscript combines data collected from two cross-sectional studies carried out in Queensland, Australia that assessed the unmet needs of people with cancer: the Indigenous Supportive Care Needs Study (referred to here as "Indigenous study") (Garvey et al, 2015) and the Care and Wellbeing Study (referred to here as the "Non-Indigenous study"). The two studies were conducted by the same research team using similar recruitment and data collection procedures.…”

Section: Participantsmentioning

confidence: 99%

“…However, no study has directly compared the unmet needs between Indigenous and Non-Indigenous Australians (Harrison et al, 2009). Previous research on the unmet needs of Queensland, Australian Indigenous people with cancer and demonstrated that money worries (29%) and needs related to physical and psychological domains (11%) were the most frequently reported (Garvey et al, 2015). While Australian studies of cancer cohorts (Indigenous and Non-Indigenous combined) have reported that fear about their cancer spreading (40%) was most frequently reported (Sanson-Fisher et al, 2000).…”

Section: Introductionmentioning

confidence: 99%

Unmet supportive care needs among people with cancer: A cross‐cultural comparison between Indigenous and Non‐Indigenous Australians

et al. 2019

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Objectives: This study describes and compares the unmet supportive care needs between Indigenous and Non-Indigenous people with cancer.Methods: Data from two cross-sectional supportive care needs studies were matched in a 1:1 ratio for Indigenous (n = 125) and Non-Indigenous (n = 125) Australian adults diagnosed with cancer. Descriptive statistics were used to compare type and prevalence of 24 need items measured by the SCNS-SF34 and SCNAT-IP. Results:A higher proportion of Non-Indigenous participants compared to Indigenous participants reported having any moderate-to-high level of unmet needs (70% vs. 54%, p = 0.013) and the difference was consistently observed across non-matched characteristics. While concerns for caregivers, fear of recurrence and pain were central needs for both Indigenous participants and Non-Indigenous participants, there were some key differences in the specific unmet needs between groups. Physical issues including doing usual daily activities and dealing with fatigue were the top priorities for Non-Indigenous people, while money worries, dealing with psychological issues such as how to keep their spirit strong or hope about their future appeared to be priorities for Indigenous people. Conclusions: Variations in the unmet supportive care needs between Indigenous andNon-Indigenous people with cancer may guide health professionals to target specific needs when preparing care plans. K E Y W O R D Scancer, indigenous, unmet supportive care needs

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“…Participants were assessed through a face-to-face interview for their needs using a Supportive Care Needs Assessment Tool for Indigenous People (SCNAT-IP) (Garvey et al, 2015); distress using the Distress Thermometer (DT) (Roth et al, 1998); and on worry using the Worry Chart (CWC) (Gramling, Anthony, Frierson, & Bowen, 2007). Inclusion criteria included being ≥18 years, identified as Aboriginal and/ or Torres Strait Islander, had a cancer diagnosis, and attended the Princess Alexandra Hospital for their care.…”

Section: Assessment Tool and Moderate To High Unmet Needs Identificmentioning

confidence: 99%

“…Responses were then grouped as: "no need, satisfied with help received, or needed a little more help" vs. "needed some or a lot more help" (referred to here as "high needs") (Garvey et al, 2015). Distress was measured according to the National Comprehensive Cancer Network Guidelines on distress management (National Comprehensive Cancer Network, 2015), where patients scoring four (≥4) or higher on the DT were considered distressed and in need to be referred to an appropriate supportive service.…”

Section: Assessment Tool and Moderate To High Unmet Needs Identificmentioning

confidence: 99%

Lessons learned from a pilot study of an Indigenous patient navigator intervention in Queensland, Australia

et al. 2017

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Indigenous patient navigator (IPN) programmes show promise in addressing barriers to cancer care and facilitation of patient self‐efficacy. The purpose of this paper is to describe and reflect upon the experience of training an IPN and implementation of the intervention in the Australian context with Indigenous cancer patients. Randomised clinical trial might provide the best available evaluation measure of an intervention but caution should be taken in the implementation process. Socio‐cultural aspects and training can affect the conduct of this type of intervention. We report here five issues needing consideration prior to implementing such intervention. Specifically: (1) recognition of the collective bonds within Indigenous community and understanding by IPN of the degree of personal assistance perceived as not intrusive by the patient; (2) conduct ongoing evaluation of the different role of an IPN involved in this intervention care provider vs. researcher. (3) meaningful engagement develops from a trusting/collaborative relationship between research team and study site staff which may not occur in the study time frame; (4) existing skills as well as training provided may not translate in the IPN understanding and aligning with the study objectives/research values; (5) recruitment of participants requires innovative and highly flexible strategies to be successful.

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Psychometric properties of an Australian supportive care needs assessment tool for Indigenous patients with cancer

Cited by 43 publications

References 28 publications

Are general practitioners getting the information they need from hospitals and specialists to provide quality cancer care for Indigenous Australians?

Are general practitioners getting the information they need from hospitals and specialists to provide quality cancer care for Indigenous Australians?

Unmet supportive care needs among people with cancer: A cross‐cultural comparison between Indigenous and Non‐Indigenous Australians

Lessons learned from a pilot study of an Indigenous patient navigator intervention in Queensland, Australia

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