Psychometric properties of the FACT-G quality of life scale for family caregivers of cancer patients

Song, Lixin; Tan, Xianming; Bredle, Jason; Bennett, Antonia V.; Northouse, Laurel

doi:10.1007/s11136-020-02477-7

Cited by 20 publications

(12 citation statements)

References 52 publications

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“…Dyadic coping means partners support each other through individual and joint efforts during the disease stress ( 12 , 13 ). It was reported that family functions and the level of dyadic coping between a husband and wife will affect their mental health and life quality ( 14 , 15 ). Dyadic coping includes stress communication, supportive coping, delegated coping, joint coping, negative coping, and coping quality evaluation.…”

Section: Introductionmentioning

confidence: 99%

Influencing Factors of Dyadic Coping Among Infertile Women: A Path Analysis

et al. 2022

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BackgroundThe infertility prevalence of married couples in China is increasing gradually. The dyadic coping level and its influencing factors of infertile women in China are poorly reported. The relationship between dyadic coping and the family cohesion and adaptability in infertile women was investigated.MethodsA total of 482 infertile women in the reproductive clinics of three affiliated hospitals of the Lanzhou University were selected by the convenience sampling method. The self-made general information questionnaire, family adaptability and cohesion evaluation scale, and dyadic coping questionnaire were used in this study.ResultsThe average age of infertile women was 31.73 ± 4.57 years, the duration of infertility was 28.66 ± 27.99 months, the total score of dyadic coping was 132.66 ± 25.49, the total score of family cohesion and adaptability was 101.48 ± 20.96. A significant positive correlation between dyadic coping and family cohesion and adaptability was observed (r = 0.74, p < 0.01). The multiple linear regression analysis showed that religious belief, number of miscarriages, relationship between family members, family intimacy, and adaptability were the influencing factors of dyadic coping level in the family of infertile women (R2 = 0.566, p < 0.01).ConclusionsThe dyadic coping level of infertile women is in the medium level, which is significantly positively correlated with family intimacy and adaptability. In clinical nursing, nurses try to improve the family relationship of patients to increase the level of dyadic coping of infertile women.

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Section: Introductionmentioning

confidence: 99%

Influencing Factors of Dyadic Coping Among Infertile Women: A Path Analysis

et al. 2022

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“…The 27‐item Functional Assessment of Chronic Illness Therapy General Scale (FACT‐G) assessed c ancer‐related QOL and the physical, social, emotional, and functional subdomains of QOL 18,19 . Partners reported their own QOL using the partner's version of FACT‐G 20 …”

Section: Methodsmentioning

confidence: 99%

“…The 27-item Functional Assessment of Chronic Illness Therapy General Scale (FACT-G) assessed cancer-related QOL and the physical, social, emotional, and functional subdomains of QOL. 18,19 Partners reported their own QOL using the partner's version of FACT-G. 20 PROMIS measures of cancer anxiety, 21 depression, 22 pain, 23,24 sleep disturbance, 25 and fatigue 26 assessed general symptoms. Patients and partners separately reported the severity of their own pain and sleep disturbance and the frequency of anxiety, depression, and fatigue.…”

Section: Measurementmentioning

confidence: 99%

Role, race, and place: Prostate cancer disparities in Patients' and Partners' health outcomes and psychosocial factors

et al. 2023

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Purpose This study aimed to examine the effects of participant role (patient vs. partner), race (white vs. non‐white), and place (less vs. more neighborhood deprivation) on health outcomes (quality of life [QOL] and symptoms) and stress‐coping‐related psychosocial factors (appraisals of illness and coping resources). Methods This descriptive study included 273 patients and their partners (dyads) who transitioned from PCa treatment to self‐management. We used established, psychometrically sound measures to assess health outcomes and psychosocial factors and conducted multilevel modeling analyses. Results Compared to partners, patients reported worse physical QOL; less frequent anxiety; less pain and fatigue; less bothersome hormonal problems; more bothersome urinary and sexual problems; greater self‐efficacy; and more instrumental support. Compared to their white counterparts, non‐white dyads reported better overall, emotional, and functional QOL; less depression; more positive appraisals, and greater self‐efficacy. Compared to dyads in low ADI neighborhoods, dyads in high ADI (more deprived) neighborhoods reported worse social QOL; more bothersome urinary, sexual, and hormonal symptoms; and less interpersonal support. White patients reported the highest emotional support among all groups, while white partners reported the lowest emotional support. Conclusion Our findings underscore the need to consider social determinants of health at multiple levels when investigating PCa disparities. Considering neighborhood‐level socioeconomic factors, in addition to race and role, improves our understanding of the PCa disparities in QOL, symptoms, and psychosocial factors among patients and partners. Targeted multilevel supportive care interventions should tailor to the needs of racially diverse PCa patients and partners residing in deprived neighborhoods are needed.

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“…(49) Partners report their own cancer-related QOL using the partner's version of FACT-G with modi ed wording. (50) Secondary outcomes include appraisal and coping resources. Appraisals of illness-patients' and partners' perceptions of the degree of threat associated with prostate cancer and related symptoms-are measured using a 20item version of the Appraisal Scales, abstracted from the 32-item patient version and the 27-item caregiver versions of the measure.…”

Section: Outcomes {12}mentioning

confidence: 99%

Testing The Efficacy of a Couple-Focused, Tailored eHealth Intervention for Symptom Self-Management Among Men with Prostate Cancer and Their Partners: The Study Protocol

Song

Nielsen

Chen

et al. 2021

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Background: Men with localized prostate cancer often experience urinary, sexual, bowel, and hormonal symptoms, general distress, pain, fatigue, and sleep disturbance. For men in an intimate relationship, these symptoms disrupt couples’ relationships and intimacy. The symptoms also reduce quality of life of both men and their partners, who are often their primary caregivers. Management of the negative effects of cancer and its treatment is a significantly under-addressed supportive care need for these men and their intimate partners. To address these unmet supportive care needs, our interdisciplinary team developed and pilot tested the usability and feasibility of an evidence-based, couple-focused, tailored eHealth intervention, “Prostate Cancer Education & Resources for Couples” (PERC). Based on the adapted stress and coping theoretical framework and developed with stakeholder involvement, PERC aims to improve quality of life for both men and their partners by enhancing their positive appraisals, self-efficacy, social support, and healthy behaviors for symptom management.Methods: We will test the efficacy of PERC using a population-based, geographically and demographically diverse cohort in a randomized controlled trial. Primary Aim: Assess if patients and partners receiving PERC will report greater improvement in their cancer-related quality of life scores than those in the control group (usual care plus the National Cancer Institute prostate cancer website) at 4, 8, and 12 months post-baseline. Secondary Aim: Test if patients and partners in PERC will report significantly more positive appraisals and higher levels of coping resources at follow-ups than those in the control group. Exploratory Aim: Determine if patient race and ethnicity, education, type of treatment, or couples’ relationship quality moderate the effects of PERC on patient and partner QOL at follow-ups..Discussion: This study will provide a novel model for self-managing chronic illness symptoms that impact couples’ relationships, intimacy, and quality of life. It addresses the National Institute of Nursing Research’s goal to develop and test new strategies for symptom self-management to help patients and caregivers better manage their illness and improve quality of life. It also responds to calls for programs from the Institute of Medicine and American Cancer Society to address treatment-related effects and improve survivors’ QOL..Trial registration: CT.gov ID: NCT03489057

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Psychometric properties of the FACT-G quality of life scale for family caregivers of cancer patients

Cited by 20 publications

References 52 publications

Influencing Factors of Dyadic Coping Among Infertile Women: A Path Analysis

Influencing Factors of Dyadic Coping Among Infertile Women: A Path Analysis

Role, race, and place: Prostate cancer disparities in Patients' and Partners' health outcomes and psychosocial factors

Testing The Efficacy of a Couple-Focused, Tailored eHealth Intervention for Symptom Self-Management Among Men with Prostate Cancer and Their Partners: The Study Protocol

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