Psychometric properties of the French version of the Endometriosis Health Profile-30, a health-related quality of life instrument

Chauvet, Pauline; Auclair, C.; Mourgues, Charline; Canis, Michel; Gerbaud, Laurent; Bourdel, Nicolas

doi:10.1016/j.jogoh.2017.02.004

Cited by 23 publications

(33 citation statements)

References 29 publications

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“…The factor analysis confirmed a four-factor model for the questionnaire, in contrast to the five subscales established in the original version [21]. Five factors were found in the Dutch, French, Chinese, Portuguese and Persian versions [22,32,35,37,38], while the Norwegian version was three-factored [34]. In our data, several items loaded on more than one scale.…”

Section: Discussionsupporting

confidence: 78%

“…Test-retest reliability was high (ICC 0.82-0.86), and the lowest ICC was higher than in previous studies [32,34,39]. The women scored slightly lower the second time, but the differences between the two measurements were not statically significant and are not likely to represent a clinical relevant difference [28].…”

Section: Discussionmentioning

confidence: 49%

“…Two of the items in Control and Powerlessness loaded on the Pain scale. In other studies the Pain and Control and Powerlessness scales were the most common to overlap [32,34,37], and in the UK version, the overlap was complete [30]. This suggests that there is a strong association between lack of control and power and the pain experience, which should be considered when encountering these women.…”

Section: Discussionmentioning

confidence: 89%

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Psychometric evaluation of the Swedish version of the 30-item endometriosis health profile (EHP-30)

et al. 2020

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Background The 30-Item Endometriosis Health Profile (EHP-30) is a specific instrument measuring quality of life among women with endometriosis. Although the Swedish version of EHP-30 is widely used in research and clinical settings, it has not yet been evaluated psychometrically. Ensuring validity and reliability is of most importance when using translated instruments. Therefore, the aim of the study was to evaluate the psychometric properties of the Swedish version of the EHP-30. Methods This study was conducted at a Swedish referral university hospital specializing in endometriosis. Data collection was performed in January 2013. The EHP-30 was sent to 369 randomly selected women with a laparoscopy-verified endometriosis diagnosis. The psychometric evaluation included evaluation of data completeness, score distributions, floor and ceiling effects, internal consistency, factor analysis and test-retest reliability. Results Out of the 211 women with endometriosis who answered the questionnaire, 128 were native Swedish speakers who had experienced symptoms of endometriosis during the past 4 weeks, and were included in the psychometric evaluation. Data completeness was 99.5%. The highest median score was found in the Control and Powerlessness subscale, and lowest in Pain. Distributions towards ill health were found in all subscales except for the pain subscale, but there were no noteworthy floor or ceiling effects. Internal consistency was good (Cronbach’s α 0.83–0.96). Factor analysis could roughly confirm three of the five subscales. The test-rest analysis showed good reliability. Scores were systematically lower during the second measurement. Conclusions We conclude that the Swedish version of EHP-30 is a valid and reliable instrument to measure health-related quality of life in women with endometriosis. It is understandable, acceptable and usable and can be recommended for use in clinical daily routines and for research purposes.

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Section: Discussionsupporting

confidence: 78%

Section: Discussionmentioning

confidence: 49%

Section: Discussionmentioning

confidence: 89%

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Psychometric evaluation of the Swedish version of the 30-item endometriosis health profile (EHP-30)

et al. 2020

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“…Chronic and recurrent pain, dysmenorrhoea, non-menstrual pelvic pain, dyspareunia and dyschezia are the main symptoms associated with the disease; these symptoms occur in about 80% of cases. Furthermore, endometriosis can be associated with nausea, diarrhoea, sleep disturbances and fatigue (DiVasta et al, 2018;Moradi et al, 2014), affecting the quality of life of the women who suffer from it (Bourdel et al, 2015;Chauvet et al, 2017;Facchin et al, 2015;Grogan et al, 2018). Often the diagnosis of endometriosis is late, due to the variability of the lesion and the range of symptoms that can occur in addition to the common link with pelvic pain during normal menstruation (Denny & Mann, 2008).…”

Section: Introductionmentioning

confidence: 99%

Living with endometriosis: a phenomenological study

Rea

Giampaolino

Simeone

et al. 2020

International Journal of Qualitative Studies on Health and Well

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Purpose: To explore and understand the lived experiences of women with endometriosis. Method: Qualitative study using Cohen phenomenology. Results: The data analysis identified four main themes and two sub-themes. The main themes are: delay in diagnosis, which includes the sub-theme of the misunderstanding of one's state; worsening of one's life, which includes the sub-theme of a painful life; disastrous intimate life with one's partner; and uncertainty about being able to have one's own children. Conclusions: The themes that emerged represent the starting point for further research and for the implementation of specific educational and support strategies that improve self-care, commitment and quality of life for women with endometriosis.

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“…According to Beaton, 'crosscultural adaptation' is a process that looks at both translational and cultural issues when a questionnaire is being prepared for use in another country (Beaton et al 2000). EHP-30 has been translated into several languages and has been psychometrically tested with mainly good results (Nojomi et al 2011;van de Burgt et al 2011;Maiorana et al 2012;Jia et al 2013;Nogueira-Silva et al 2015;Chauvet et al 2017;Verket et al 2018).…”

Section: Introductionmentioning

confidence: 99%

Cross-cultural adaptation of the Swedish version of Endometriosis Health Profile-30

Grundström

Rauden

Olovsson

2020

Journal of Obstetrics and Gynaecology

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The Endometriosis Health Profile-30 (EHP-30) is focusing on the effect of endometriosis symptoms upon health-related quality of life. The aim of this study was to pre-test and culturally adapt the Swedish version of EHP-30. Eighteen Swedish-speaking women with laparoscopically verified diagnosis of endometriosis answered the questionnaire and 17 were interviewed regarding their interpretations of the questionnaire. Demographics, distribution of answers, roof-ceiling effects and missing answers were analysed. The interviews were analysed using the qualitative approach proposed by Beaton et al. The Swedish version of EHP-30 was experienced as accessible with 100% data completeness and a roof effect (11%) in one dimension. Some women had difficulties with the instructions and one word should be replaced in order to culturally adapt the questionnaire. In conclusion, the Swedish version of EHP-30 is a useful and well-accepted questionnaire for women with endometriosis in Sweden, but a minor change of wording is recommended. IMPACT STATEMENT What is already known on this subject? Cross-cultural adaptation and psychometric testing are crucial when introducing translated questionnaires. Cross-cultural adaptation is a process that looks at both translational and cultural issues when a questionnaire is being prepared for use in another country than the original. EHP-30 has been translated into Swedish but has not yet been cross-culturally adapted. What do the results of this study add? The Swedish version of EHP-30 was experienced as a useful and well-accepted questionnaire for women with endometriosis, but a minor change of wording is recommended in one question to make the questionnaire convergent with the original version. What are the implications of these findings for clinical practice and/or further research? The Swedish version of EHP-30 is user friendly and can be used in clinical practice after a minor change of wording. Then, it should also undergo psychometric testing.

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Psychometric properties of the French version of the Endometriosis Health Profile-30, a health-related quality of life instrument

Cited by 23 publications

References 29 publications

Psychometric evaluation of the Swedish version of the 30-item endometriosis health profile (EHP-30)

Psychometric evaluation of the Swedish version of the 30-item endometriosis health profile (EHP-30)

Living with endometriosis: a phenomenological study

Cross-cultural adaptation of the Swedish version of Endometriosis Health Profile-30

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