Psychometric Properties of the Problem Areas in Diabetes: Teen and Parent of Teen Versions

Shapiro, Jenna B.; Vesco, Anthony T.; Weil, Lindsey E. G.; Evans, Meredyth; Hood, Korey K.; Weissberg‐Benchell, Jill

doi:10.1093/jpepsy/jsx146

Cited by 90 publications

(93 citation statements)

References 40 publications

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“…Scores were calculated using the full 26‐item test and an abbreviated 14‐item version with a preliminary cutoff score of ≥44. This cutoff was associated with higher HbA1c, depressive symptoms, and anxiety 22 …”

Section: Methodsmentioning

confidence: 89%

“…This cutoff was associated with higher HbA1c, depressive symptoms, and anxiety. 22 The SCI-R is a 15-item self-report questionnaire assessing patients' perceptions of diabetes-related health behaviors and is described elsewhere. 23 The Pediatric Quality of Life Inventory and school functioning subscale and is described in greater detail elsewhere.…”

Section: Physiological Outcome Measuresmentioning

confidence: 99%

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Evaluating a multidisciplinary inpatient program for youth with type 1 diabetes mellitus

et al. 2020

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Among youth with type 1 diabetes mellitus (T1D), older adolescents demonstrate more dysglycemia and less adherence to disease management. Poor disease management during this time of development can continue into adulthood, perpetuating the economic and health burden to the individual, health care system and society. This study aimed to evaluate the effectiveness of an inpatient multidisciplinary approach to treating youth with T1D. All T1D admissions to the 4 week Chronic Illness Management Program (CIMP) between 1 January 2016 and 31 December 2017 were eligible for inclusion. Data related to physiological and psychosocial outcomes were compared between admission and discharge. Follow-up data, including hemoglobin A1c (HbA1c), psychosocial measures, and health care utilization, were collected at 3, 6, and 12 months after discharge to assess sustained changes. Fifty-seven T1D admissions were included in the sample. There was a significant reduction in mean HbA1c from admission (11.1%/98 mmol/mol) to discharge (9.1%/76 mmol/mol). Patients also demonstrated significant improvements in all psychosocial outcome measures. Improvements in HbA1c were sustained at 3 months follow-up; however, average values returned to baseline by 6 months follow-up. In contrast to preadmission history, the majority of the sample reported reduced crisis health care utilization 1 year after discharge. The inpatient setting provides an intensive treatment model for diabetes management that promotes sustainable behavior change 3 months after discharge. While additional community supports are needed for longterm improvement, this program model may benefit patients who have been unable to manage their diabetes with outpatient treatment and therapy alone.

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Section: Methodsmentioning

confidence: 89%

Section: Physiological Outcome Measuresmentioning

confidence: 99%

Evaluating a multidisciplinary inpatient program for youth with type 1 diabetes mellitus

et al. 2020

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“…14,33,34 The resilience intervention tested in the STePS study contained components that have been shown to help address DRD, including cognitive-behavioral skills. 10,35 Targeted clinical screening of DRD with existing validated measures 36,37 can efficiently identify adolescents needing intervention.…”

Section: Discussionmentioning

confidence: 99%

Diabetes-Related Emotional Distress Over Time

et al. 2019

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BACKGROUND AND OBJECTIVES: Many adolescents with type 1 diabetes experience diabetes-related distress (DRD; the negative emotional reactions specific to managing diabetes), but most research on DRD among adolescents relies on cross-sectional data. We assess adolescents' longitudinal DRD patterns and predictors of chronic DRD. METHODS: This secondary analysis of data from a depression prevention clinical trial included 264 adolescents with type 1 diabetes randomly assigned to a resilience or education intervention (mean age: 15.7 6 1.1 years; 59.8% female). Youth reported their DRD at 5 assessments over 16 months. Using latent class growth analysis, we classified adolescents into trajectory groups according to baseline starting point (intercept) and rate of change (slope) of DRD. We examined bivariate associations between trajectory group membership and demographic and clinical factors. Baseline predictors of chronic DRD were assessed via multiple logistic regression. RESULTS: Participants were classified into 4 groups: stable high DRD (7.2%; high intercept, flat slope), stable moderate DRD (28.0%; above-average intercept, flat slope), improving DRD (33.7%; average intercept, downward slope), and low DRD (31.1%; below-average intercept, downward slope). Lower hemoglobin A1c, greater adherence, fewer socioemotional difficulties, and more adaptive coping distinguished the improving and low DRD trajectories. Chronic DRD patterns were associated with female sex and higher depressive symptoms and hemoglobin A1c. CONCLUSIONS: In this study of adolescents' DRD trajectories during and after a psychoeducational intervention, one-third of youth were classified as having chronic, elevated DRD. Links with multiple clinical factors support efforts for routine DRD screening and comprehensive interventions for distressed youth. WHAT'S KNOWN ON THIS SUBJECT: Diabetes-related distress (DRD), the common negative emotional reactions specific to managing diabetes, is associated with adolescents' type 1 diabetes outcomes. Yet little is known about stability or change in DRD longitudinally and what predicts these patterns in this age group. WHAT THIS STUDY ADDS: Although this study specifically sampled youth without diagnosed depression, one-third of participants experienced chronic, elevated levels of DRD over time. A sizable subset of youth may need more intensive intervention to address DRD and concomitant risk factors.

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“…The study did not include measurement of many other psychological variables that could mediate or moderate DA use such as health locus of control, 38 diabetes-related self-efficacy, 39 diabetes-related distress, 40 or family conflict. 41 By including measurement of such mechanisms, future studies of DA utilization could illuminate the psychological processes that influence individuals’ benefit from SDM interventions.…”

Section: Discussionmentioning

confidence: 99%

Electronically Verified Use of Internet-Based, Multimedia Decision Aids by Adolescents With Type 1 Diabetes and Their Caregivers

Wysocki

James

Milkes

et al. 2018

MDM Policy & Practice

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Decision aids (DAs) are central to shared decision making (SDM) interventions, yet little is known about patients’ actual DA use. Adequate utilization of DAs could optimize SDM effectiveness. Electronic DAs enable more objective tracking and analysis of actual DA utilization than do paper DAs. This report is part of an ongoing randomized controlled SDM trial enrolling adolescents with type 1 diabetes and their caregivers (n = 153) who were considering use of an insulin pump or continuous glucose monitor. Extensive stakeholder engagement guided creation of two online DAs. After completing baseline measures, 133 dyads were randomized to SDM (access to the pertinent DA) or Usual Care (clinic routines for preparing candidates for adopting these devices). Utilization data showed that 80% of caregivers and 66% of youths logged into a DA at least once; youths and caregivers, respectively, dedicated a mean of 44.7 and 55.0 minutes to website use and viewed 72.2% and 77.4% of the DA content. Median total duration from enrollment to last DA logout was 48.2 days for adolescents and 45.6 days for caregivers. Bivariate comparisons showed that non-Hispanic, Caucasian females from households with higher socioeconomic status were significantly more likely to login to the assigned DA at least once. Hierarchical multiple regression showed that adolescent males with lower levels of health literacy demonstrated fewer DA logins (F = 2.59; P < 0.009), but identified no significant predictors of adolescents’ or caregiver’ duration of DA use or proportion of DA content viewed. Future SDM trials should seek to promote DA use, especially by non-White adolescents, perhaps with direct assistance with the initial DA login. Trials employing electronic DAs should routinely report and analyze utilization data.

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Psychometric Properties of the Problem Areas in Diabetes: Teen and Parent of Teen Versions

Abstract: The PAID-T and P-PAID-T are valid, reliable, and useful measures of diabetes-specific distress for teenagers with type 1 diabetes and parents of teenagers.

Cited by 90 publications

References 40 publications

Evaluating a multidisciplinary inpatient program for youth with type 1 diabetes mellitus

Evaluating a multidisciplinary inpatient program for youth with type 1 diabetes mellitus

Diabetes-Related Emotional Distress Over Time

Electronically Verified Use of Internet-Based, Multimedia Decision Aids by Adolescents With Type 1 Diabetes and Their Caregivers

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