Psychosocial adjustment of siblings of children with cancer: a systematic review

Alderfer, Melissa A.; Long, Kristin A.; Lown, E. Anne; Marsland, Anna L.; Ostrowski, Nancy L.; Hock, Janet M.; Ewing, Linda J.

doi:10.1002/pon.1638

Cited by 364 publications

(506 citation statements)

References 83 publications

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“…Statistical significance was defined as p < 0.05 for acceptance in the enter model. were between 19 and 23 years (mean = 24.0, SD = 3.8, range [19][20][21][22][23][24][25][26][27][28][29][30][31][32][33] at the time of investigation. The average time since loss was 6.3 years (range 2-9, SD = 2.3).…”

Section: Discussionmentioning

confidence: 99%

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They still grieve—a nationwide follow‐up of young adults 2–9 years after losing a sibling to cancer

et al. 2013

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Objectives: The aims of this study were to assess the prevalence of unresolved grief in bereaved young adult siblings and examine possible contributing factors.Methods: The study was a Swedish population-based study of young adults who had lost a brother or sister to cancer, 2-9 years earlier. Of 240 eligible siblings, 174 (73%) completed a study-specific questionnaire. This study focused on whether the respondents had worked through their grief over the sibling's death and to what extent.Results: A majority (54%) of siblings stated that they had worked through their grief either 'not at all' or 'to some extent' at the time of investigation. In multiple regression analyses with unresolved grief as the dependent variable, 21% of the variance was explained by lack of social support and shorter time since loss.Conclusion: The majority of bereaved young adults had not worked through their grief over the sibling's death. A small group of siblings reported that they had not worked through their grief at all, which may be an indicator of prolonged grief. Lack of social support and more recent loss were associated with not having worked through the grief over the sibling's death.

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Section: Discussionmentioning

confidence: 99%

“…Siblings of children living with cancer have been observed to suffer characteristic patterns of psychological distress [21,22]. Studies have reported that the healthy siblings have more anxiety, depression and post-traumatic stress disorder, and a poorer quality of life than the normal population [22].…”

Section: Introductionmentioning

confidence: 99%

They still grieve—a nationwide follow‐up of young adults 2–9 years after losing a sibling to cancer

et al. 2013

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“…One cannot ignore all the therapeutic demands which lead the family to cut back on its social life [9]. This could result in the healthy siblings getting angry and turning against their sick sibling because the illness is conditioning their lives, and at the same time they may also experience guilt for having those feelings.…”

Section: Siblings Facing Illnessmentioning

confidence: 99%

Siblings of a Child with a Serious Disease: Educational Family Guidelines for Developing the Emotional Health of This Minority Group

Lizasoáin¹

2015

JSS

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Diagnosis of a serious disease in childhood is a traumatic experience, not only for the sick child but also for those living in the same environment. The family life changes drastically, and the family members go through a period of time which is both hard and full of the unknown. Fear, confusion, anger and sadness will be the principal feelings present in each one of the family members. The sick child becomes the central focus of attention at the expense of the other children in the family, children who now take a secondary role, shifting into the background. Therefore, it is very important to offer support and give special care to these other children, not excluding them from everything that is occurring in the family. This article focuses on the feelings experienced by these group of siblings. The adaptation process when facing this difficult situation will be analyzed and educational guidelines which can help the family manage the emotional impact made by the serious disease will be offered, putting special emphasis on communication.

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“…Reported symptoms in siblings are: anxiety, negative emotional reactions, behavioural problems, poor social adjustment self-esteem, and post-traumatic stress symptoms (17)(18). However, Buchbinder et al [19] found that siblings of childhood cancer survivors were generally psychologically healthy.…”

Section: Introductionmentioning

confidence: 99%

A literature Review of the Results from Nursing and Psychosocial Research within Swedish Pediatric Oncology

Enskär

Knutsson²,

Huus³

et al. 2013

J Nurs Care

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A literature review of the results from nursing and psychosocial research within Swedish pediatric oncology. Nursing & Care, 3(6) Journal of AbstractThe body of research-based knowledge in paediatric caring science has been increasing leading to dramatic improvements in treatment. The purpose of this manuscript was to analyze results as stated by the researchers', in recently published articles on nursing and psychosocial research, within Swedish pediatric oncology setting. This was done through a review of 137 published articles about paediatric oncology related to caring science in Sweden. The result shows that the illness has affected, in both positive and negative ways, the wellbeing of everyone coming into contact with the child. The cancer also causes distress related to all aspects of life including physical, psychological, existential and social. Mediating factors for the experience of distress and wellbeing are: disease and treatment severity, age, gender and ethnicity of the participant, time since diagnosis, the use of internal and external support, and the identity of the person reporting the data. Health promoting aspects frequently reported are: family togetherness, coping strategies, engaging in normal life and activities, and quality of care which includes emotional support, information and family participation in care. The hospital staff has to be aware of the psychosocial issues experienced by children with cancer and their families, and they have to acknowledge the value of formal interventions, reporting benefits for children, families, and themselves.

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Psychosocial adjustment of siblings of children with cancer: a systematic review

Cited by 364 publications

References 83 publications

They still grieve—a nationwide follow‐up of young adults 2–9 years after losing a sibling to cancer

They still grieve—a nationwide follow‐up of young adults 2–9 years after losing a sibling to cancer

Siblings of a Child with a Serious Disease: Educational Family Guidelines for Developing the Emotional Health of This Minority Group

A literature Review of the Results from Nursing and Psychosocial Research within Swedish Pediatric Oncology

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