Psychosocial aspects of Hansen′s disease (leprosy)

Singh, Gurvinder

doi:10.4103/2229-5178.101811

Cited by 51 publications

(58 citation statements)

References 15 publications

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“…Among chronic illnesses, studies show that from 20% to 30% of patients with hematological diseases 20 and diabetes mellitus 21,22 show significant depressive symptoms. Depression is very common with leprosy, 5,11,12 corroborating the results of this study in which the presence of moderate to serious symptoms of depression was relevant and can signal the possibility of having clinical depression.…”

Section: Discussionsupporting

confidence: 85%

“…5,6 It is treated as a chronic infecto-contagious disease that develops slowly, caused by the Myobacterium Leprae bacteria, which damages peripheral nerves causing sensory, motor, and autonomic alterations in the face (eyes and nose), hands, and feet. This disease affects people of all ages, especially those in the economically active age bracket.…”

Section: Introductionmentioning

confidence: 99%

“…6 Even when comparing leprosy with other dermatoses, such as tinea versicolor, 10 the literature indicates that depression is the most common psychiatric disorder among patients with this disease. 5,11,12 One study made in India showed that 55% of leprosy patients had depression. 13 In Ethiopia, depression is a frequent comorbidity in patients with neuropathy stemming from leprosy.…”

Section: Introductionmentioning

confidence: 99%

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Relationship between depression, work, and grade of impairment in leprosy

et al. 2014

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Depression is the most common psychiatric disorder in leprosy and with high depressive symptoms. Objective: The aim of this study was to determine the prevalence and frequency of depressive symptoms and their relationship to WHO impairment grading (IG), and sociodemographic variables. Method: We applied a survey containing sociodemographic, clinical aspects and IG. The original scale of the BDI was applied to identify the frequency of depressive symptoms (21 items), as well as the cognitive subscale BDI-Short Form-BDI-SF (items 1-13), recommended to assess depressive symptoms in individuals with defined pathologies. Descriptive statistical analysis was used, with the frequency distribution to characterize the sample, and to the intersection of the variables, the Chi-square Test-corrected (Yates) was applied, considering significant results p -value < 0.05. Results: 130 patients who have or have had leprosy were evaluated. The mean age of patients was 49.64 (SD = 14.04). There was a predominance of males (64.6%), those living with family (87.7%), with incomplete primary education (66.2%), stable civil union (61.6%), which did not work (75.4%) and receive retirement or health aid (63.9%). Regarding clinical aspects, 94.5% were multibacillary, 74.6% had multidrug therapy and most have loss of protective sensation and/or deformities (31.5% IG1; 37% IG2). Among the cases evaluated, 43.1% had depressive symptoms of moderate to severe intensity. There was no significant correlation between BDI-SF and IG (p -value = 0.950). However, the individuals without an occupation or job ("which did not work") were associated with depressive symptoms (BDI-FS; p -value < 0.05). Somatic apprehension was the most frequent symptom (80.7%), followed by difficulty with work (78.5%), irritability (68.5%), fatigue (67.7%), self-blame (62.3%) and tearfulness (60%). Conclusion: It is concluded that moderate and severe depressive symptoms assaulted 43.1% of the cases evaluated, regardless of whether or not physical disabilities (IG1 and 2). Individuals who did not work were the most affected by depressive symptoms compared to those who had some sort of occupation.Keywords: Disabled Persons, Leprosy, Depression, Work RESUMOA depressão é o transtorno psiquiátrico mais comum na hanseníase e com alto índice de sintomas depressivos. Objetivo: Verificar a frequência dos sintomas depressivos e sua relação com o grau de incapacidade (GI) da OMS e variáveis sociodemográficas. Método: Aplicou-se um questionário, contendo aspectos sociodemográficos, clínicos e o GI. Foi aplicada a escala original do BDI para identificar a frequência dos sintomas depressivos (21 itens) e a subescala cognitiva chamada BDI-Short Form -BDI-SF (1-13 itens), recomendada para avaliar sintomas depressivos em indivíduos com diagnóstico de alguma patologia. Foi utilizada análise estatística descritiva, com distribuição de frequência para a caracterização da casuística e para o cruzamento das variáveis, foi utilizado o Teste Chi-square-corrected (Yates), considerando resu...

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Section: Discussionsupporting

confidence: 85%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Relationship between depression, work, and grade of impairment in leprosy

et al. 2014

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“…Leprosy patients may face the effects of stigma and different forms of discrimination, such as rejection, abuse, divorce, or loss of employment, leading to reduced self-esteem and loss of respect from their communities [4–6]. Interpersonal relationships, social status, mobility, and dignity suffer [5, 6] and may cause anxiety, depression, emotional stress, isolation, and suicide or attempted suicide. Multiple studies found women to be more affected by leprosy and its stigma than men [3, 4, 6–9].…”

Section: Introductionmentioning

confidence: 99%

The Impact of Leprosy on Marital Relationships and Sexual Health among Married Women in Eastern Nepal

Noordende

Brakel

Banstola

et al. 2016

Journal of Tropical Medicine

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Background. Leprosy is one of the most stigmatized diseases known today. The stigma surrounding leprosy can be a major burden and affects many dimensions of a person's life, including intimate relationships. We aimed to investigate the experiences of women affected by leprosy regarding marital life and sexuality, comparing these to the experiences of women with other physical disabilities and to those of able-bodied women in South-East Nepal. Methods. This study used a qualitative approach and a cross-sectional, nonrandom survey design. Thirty women underwent in-depth interviews about their marital and sexual relationship by means of a semi-structured interview guide. These thirty women included ten women affected by leprosy, ten women with other physical disabilities, and ten able-bodied women living in South-East Nepal. Results. We found that many women faced violence and abuse in their marriages. However, women affected by leprosy appeared to face more problems with regard to their marital and sexual relationships than women with physical disabilities and able-bodied women. Some of these related to the fear of leprosy. Conclusions. Further research is recommended to investigate the extent of this problem and ways to ameliorate the situation of the affected women. Education and counselling at diagnosis may help prevent many of the problems reported.

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“…O estigma não é um fenômeno único, possui vários componentes: o autoestigma (vergonha, baixa autoestima pelo portador da doença), o estigma público (por exemplo, o preconceito do público em geral), que também está associado à restrição da participação social e da discriminação da pessoa infectada 7 . No nível individual, como consequência do preconceito, os portadores da hanseníase também estão mais sujeitos à desagregação familiar, divórcio e desemprego 13 . O estigma, visto como um processo social, envolve não somente os indivíduos afetados, mas desempenha um papel em todos os aspectos do discurso da hanseníase, desde a organização dos cuidados de saúde e da identidade social dos trabalhadores, até a formulação de futuras intervenções 14 .…”

Section: Introductionunclassified

Preconceito e conhecimento sobre hanseníase: a situação do agente comunitário de saúde

Filho¹,

Gomes²

2014

Rev Bioethikos

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Resumo: O preconceito contra os portadores de hanseníase persiste, ainda hoje, na sociedade. Este estudo objetiva discutir, sob a ótica das situações persistentes e da vulnerabilidade, preconceito e conhecimento sobre hanseníase por Agentes Comunitários de Saúde. Trata-se de um estudo transversal, observacional e analítico, que teve como cenários os territórios da Estratégia de Saúde da Família (ESF) nos municípios de Pouso Alegre e Poços de Caldas. Foram entrevistados 153 sujeitos buscados nas Unidades Básicas de Saúde, sede de cada ESF. Utilizou-se de dois instrumentos para coleta de informações: um para dados sociodemográficos e outro que verificava preconceito, concepções e conhecimento sobre a doença. Realizou-se análise estatística pelo uso dos testes de Mann-Whitney e de Kruskall-Wallis. Por volta de 25% das respostas sobre conhecimento foram incorretas; 5% mostraram preconceito em todas as questões e 15% dos ACS afirmaram que nunca se relacionariam com hansenianos. Agentes comunitários de saúde sem filhos tinham menos preconceito do que os demais (p = 0,019), e os que atuavam entre 12 e 36 meses também eram os menos preconceituosos (p = 0,022). Os resultados obtidos indicaram a existência de preconceito em relação à hanseníase e a desinformação sobre aspectos importantes da doença. O agravo ocorre em população vulnerável e pode ser avaliado como uma situação persistente que não deveria acontecer até os dias de hoje. O desconhecimento e o preconceito contribuem para sua persistência. PalavRas-chave: Bioética. Preconceito. Hanseníase. Saúde Pública. Saúde da Família.abstRact: Prejudice against people having leprosy persists even today in society. The aim of this study is to discuss prejudice against and knowledge about leprosy by Communitarian Health Agents under the perspective of vulnerability and persistent situations. A cross-sectional, observational and individual study was developed in the territories where is set the family health strategy in the cities of Pouso Alegre and Poços de Caldas-MG. 153 workers were interviewed in Basic Health Units. Were used two instruments to collect information: one for social and demographic data and another who checked prejudice against, concepts about and knowledge on the disease. Statistical analysis was performed by using Mann-Whitney and Kruskal-Wallis tests. About 25% of responses were incorrect as regards knowledge; 5% showed prejudice in all matters approached, and 15% said they never would relate with people having leprosy. The communitarian health agents without children showed less prejudice than those having children (p = 0.019) and those who had worked from 12 to 36 months as agents showed less prejudice than those working for lesser periods (p = 0.022). The results obtained indicated the presence of prejudice and misinformation about important aspects of the disease. The disease affects mostly the vulnerable population and can be evaluated as a persistent situation that must not continue to happen until the present day. Lack of knowledge and prejudice co...

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Psychosocial aspects of Hansen′s disease (leprosy)

Cited by 51 publications

References 15 publications

Relationship between depression, work, and grade of impairment in leprosy

Relationship between depression, work, and grade of impairment in leprosy

The Impact of Leprosy on Marital Relationships and Sexual Health among Married Women in Eastern Nepal

Preconceito e conhecimento sobre hanseníase: a situação do agente comunitário de saúde

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