Psychosocial distress in women diagnosed with gynecological cancer

Warren, Narelle; Melrose, Dierdre M; Brooker, Joanne; Burney, Susan

doi:10.1177/1359105316640061

Cited by 19 publications

(25 citation statements)

References 21 publications

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“…We therefore believe that this study has a high likelihood of representing patient populations found in the average gynecologic oncology clinic. The high prevalence of moderate to severe symptomatology in our patient cohort is comparable to other studies assessing HRQL in patients with gynecologic cancer [9][10][11]. Gynecologic oncology patients experience a high burden of symptoms regardless of their stage or cancer type [12].…”

Section: Discussion/significancesupporting

confidence: 81%

Utilizing the Patient Reported Outcomes Measurement Information System (PROMIS®) to increase referral to ancillary support services for severely symptomatic patients with gynecologic cancer

Gressel

Dioun

Richley

et al. 2019

Gynecologic Oncology

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Section: Discussion/significancesupporting

confidence: 81%

Utilizing the Patient Reported Outcomes Measurement Information System (PROMIS®) to increase referral to ancillary support services for severely symptomatic patients with gynecologic cancer

Gressel

Dioun

Richley

et al. 2019

Gynecologic Oncology

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“…The report recommends that patients undergoing vulvectomy should receive detailed information before and after surgery, and psychosexual counselling should be offered to both patient and her sexual partner on a long-term basis. Psychosocial distress in women diagnosed with cancer is outlined in a study by Warren et al 8 Here researchers investigated the lived experience of patients in order to understand the underlying factors to psychosocial distress, using a qualitative research design to elicit and interpret women’s narratives of gynaecological cancer. The study revealed the role of social support, or its absence and recommends that interventions to address concerns may lead to improved quality of life.…”

Section: Resultsmentioning

confidence: 99%

The psychosocial issues of women with cancer of the vulva

Boden

Willis

2018

J Radiother Pract

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BackgroundCancer of the vulva is rare, it is a disease commonly diagnosed in elderly women, however, the incidence in younger women is rising. Many patients diagnosed and treated for vulval cancer face physical, social, sexual and psychological challenges. It is essential that therapy radiographers and members of the wider multidisciplinary team understand such challenges in order to provide patient centred care.AimThis review aims to highlight the key psycho-social issues experienced by patients with cancer of the vulva, identifying implications for practice in order to improve the holistic care for this patient group.MethodA search of English literature was performed using Medline, Pubmed, CINAHL and PsycINFO. Search terms included, vulva or vulval cancer, psychosocial, psychosexual impact and quality of life. Articles were excluded if they focussed on cancers other than gynaecological and vulval cancers.Results and ConclusionsAlthough there are numerous reports on the psychological and psychosocial problems faced by gynaecological cancer patients; there was a paucity of literature pertaining to patients with cancer of the vulva, this is consistent with previous research. Studies show a significant negative, psychosocial impact experienced by these women. Common themes being isolation, loneliness, stigmatisation and lack of information for patients and their carers, themes spanning over three decades. Nevertheless, it is important to be aware of the findings from recent studies consistent with patient’s needs, highlighting that listening to women’s narratives on living with cancer of the vulva is essential if we are to help with the psychosocial issues experienced by these women. They underline a necessity to raise awareness among healthcare professionals and the general public, to improve holistic support for this particular group of women. This is particularly important in the radiotherapy setting as many of these women undergo lengthy courses of treatment and the appropriately trained therapeutic radiographer can play a vital role in addressing the physical and psychosocial problems.

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“…Previous research, both quantitative and qualitative, has investigated distress and mental health disorders in gynaecological cancer patients (Reuter, Raugust, Marschner, & Haertner, 2007; Stewart, Wong, Duff, Melancon, & Cheung, 2001), as well as support (Beesley et al, 2008; Ussher, Kirsten, Butow, & Sandoval, 2006; Walton et al, 2010), informational (Booth, Beaver, Kitchener, O’Neill, & Farrell, 2005) and psychosocial needs (Miller, Pittman, & Strong, 2003; Warren, Melrose, Brooker, & Burney, 2016). Additionally, qualitative research has expanded to explore the experience of cancer, particularly in relation to topics such as hope (Hammer et al, 2013; Reb, 2007), meaning (Akyüz, Güvenç, Üstünsöz, & Kaya, 2008; Roberts & Clarke, 2009; Sekse et al, 2010), the impact of childlessness or loss of fertility for younger women (Molassiotis et al, 2002; Roberts & Clarke, 2009) and changing family roles (Akyüz et al, 2008).…”

Section: Introductionmentioning

confidence: 99%

“A peculiar time in my life”: making sense of illness and recovery with gynaecological cancer

Phillips

Montague

Archer

2017

International Journal of Qualitative Studies on Health and Well

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Purpose: Worldwide there are nearly 1.1 million new cases of gynaecological cancer annually. In England, uterine, ovarian and cervical cancers comprize the third most common type of new cancer in women. Research with gynaecological cancer patients within 6 months of diagnosis is rare, as is data collection that is roughly contemporaneous with treatment. Our aim was to explore the experiences of women who were, at study entry, within 6 weeks of surgery or were undergoing chemotherapy or radiotherapy. Methods: An interpretative phenomenological analysis (IPA) of data from 16 women in five focus groups was conducted in the UK, exploring women’s experiences of being diagnosed with and treated for gynaecological cancer. Results: Participants conceptualized their experiences temporally, from the shock of diagnosis, through their cancer treatment, to thinking about recovery. They tried to make sense of diagnosis, even with treatment being complete. In the context of the Self-Regulation Model, these women were struggling to interpret a changing and multi-faceted illness identity, and attempting to return to pre-illness levels of health. Conclusions: This study adds to this under-studied time period in cancer survivorship. The results suggest that survivors’ goals may change from returning to pre-illness status to reformulating goals as survival time increases.

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Psychosocial distress in women diagnosed with gynecological cancer

Cited by 19 publications

References 21 publications

Utilizing the Patient Reported Outcomes Measurement Information System (PROMIS®) to increase referral to ancillary support services for severely symptomatic patients with gynecologic cancer

Utilizing the Patient Reported Outcomes Measurement Information System (PROMIS®) to increase referral to ancillary support services for severely symptomatic patients with gynecologic cancer

The psychosocial issues of women with cancer of the vulva

“A peculiar time in my life”: making sense of illness and recovery with gynaecological cancer

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