Psychosocial impact of structured transfer of adolescents with kidney transplants to adult services: An interventional national cohort study

Abstract

Background Pediatric kidney transplantation entails a well‐timed transition from pediatric to adult medical care. We aimed to construct a structured transition protocol and evaluate its impact on transfer‐related psychosocial problems in Slovenian patients with kidney transplants. Methods Individual transition‐related perceptions of our patients and their parents were first assessed, and the gathered information was used to establish a country‐specific transition protocol. Eleven kidney transplant patients qualified for actual transfer and were considered for further analysis. Comprehension and attitude towards transfer, coping strategies, personality resilience, behavioral, and emotional problems were assessed using questionnaires and established psychological tools before and after the completed transfer. The results were compared and analyzed. Results Ten of the eleven eligible patients were transferred to adult services between April 2020 and January 2021. The median age at enrollment was 19.7 years (range: 18.2–22.8 years). The most frequent concerns regarding upcoming health care were worse accessibility (50%), less supportive and less committed healthcare providers (40%), and deterioration of medical condition (10.0%). After the completed protocol‐guided transfer, the patients declared to have no further concerns or worries. Before transfer, 28.9% of the patients' responses rated the amount and relevance of received information and counseling as “Adequate” or “Very adequate,” whereas, after the transfer, the proportion of positive responses increased to 48.9%. Anxiety and withdrawn depressive symptoms were the predominant emotional problems before transfer. Their prevalence decreased after the completed transfer. Conclusions Our results suggest that transfer‐related anxieties and concerns can be significantly reduced by applying a structured transition protocol in transplant patients.

Patient education interventions for adolescent and young adult kidney transplant recipients- a scoping review

“…Of the 29 articles included 14 articles had both adolescent and young adult participants [28][29][30][31][32][33][34][35][36][37][38][39][40][41], 13 were studies that only included adolescents [42][43][44][45][46][47][48][49][50][51][52][53][54] and only two studies exclusively recruited young adults [55,56]. Most of the studies were based in North America (17 studies) followed by Europe (10 studies) and a single study from both Israel [34] and Australia [36].…”