Psychosocial issues in palliative care: A review of five cases

Onyeka, Tonia C.

doi:10.4103/0973-1075.73642

Cited by 19 publications

(22 citation statements)

References 29 publications

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“…Thus we had a final list of 90 articles for our analysis. [1112131415161718192021222324252627282930313233343536373839404142434445464748495051525354555657585960616263646566676869707172737475767778798081828384858687888990919293949596979899100]…”

Section: Resultsmentioning

confidence: 99%

An exploratory analysis of levels of evidence for articles published in Indian journal of palliative care in the years 2010-2011

Kumar¹,

Sisodia²

2013

Indian J Palliat Care

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Context:Indian Journal of Palliative Care (IJPC) provides a comprehensive multidisciplinary evidence base for an evidence-informed clinical decision making.Aims:To analyze the levels of evidence of articles published in IJPC in the years 2010-2011.Settings and Design:Systematic review of palliative care journals.Materials and Methods:Systematic review of articles was done and was scored according to Center for Evidence-Based Medicine levels of evidence into any of the five grades. The articles were categorized based upon article type, number of authors, study approach, age focus, population focus, disease focus, goals of care, domains of care, models of care, and year of publication.Statistical Analysis Used:All descriptive analysis was done using frequencies and percentiles, and association between all categorical variables was done using Chi-square test at 95% confidence interval (CI) using Statistical Package for Social Sciences (SPSS) version 16 for Windows (SPSS Inc, Chicago, IL).Results:There was a greater prevalence of low level evidence (level 4: n = 46, 51%; level 5: n = 35, 39%) among the 90 selected articles, and article type (original articles with higher level of evidence, P = 0.000), article approach (analytical studies with higher level of evidence, P = 0.000), domains of palliative care (practice-related studies with higher level of evidence, P = 0.000) and models of care (biological or psychosocial model with higher level of evidence, P = 0.044) had a significant association with the grade of levels of evidence. Association with other factors was not statistically significant (P < 0.05).Conclusions:The levels of research evidence for palliative care provided by articles published in IJPC were predominantly level 4 and level 5, and there is scope for more high quality evidence to inform palliative care decisions in the developing countries.

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Section: Resultsmentioning

confidence: 99%

An exploratory analysis of levels of evidence for articles published in Indian journal of palliative care in the years 2010-2011

Kumar¹,

Sisodia²

2013

Indian J Palliat Care

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“…Regarding inpatient social activities, we routinely hold multiple purposeful activities for patients, including patients' birthday parties, festival celebrations, and well‐wishing activities, because it has been found that these psychosocial care‐related activities can elevate the self‐esteem of patients, cultivate insight into adaptation to an illness and its outcome, and improve patients' relationships with their friends and families …”

Section: Discussionmentioning

confidence: 99%

Lots of little ones: Analysis of charitable donations to a hospice and palliative care unit in Taiwan

Hsu

Chu

Chen

et al. 2019

Health Planning & Management

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Summary Background Charitable donations play a major role in the provision of hospice and palliative care (HPC) services, most of which are not reimbursed by health insurance programs. A good understanding of the constitution and use of donations is thus conducive to maintaining a high‐quality HPC unit. Methods The data sources were the publicly available balance sheet, work report, and donor lists of a foundation exclusively supporting one of the best HPC units in Taiwan in the fiscal year of 2017. The analysis included the donation amounts and frequencies by donor type (individual, corporate, and group) and the categories of expenses. Results The foundation received 3033 donations worth a total of 7.8 million New Taiwan dollars (NTD) (approximately 258 thousand US dollars) in 2017. Two‐thirds of the donations were allocated to the provision of direct care services. Of the 3033 donations, only 11 (0.4%) were worth 100 000 NTD or more, while 108 (3.6%) were valued between 10 000 and 99 999 NTD, 1268 (41.8%) were valued between 1000 and 9999 NTD, and 1646 (54.2%) were worth less than 1000 NTD. Of 1051 donors, 974 (92.7%) were individuals, 378 (36.0%) donated more than once, and 106 (10.1%) donated 12 or more times in one year. Conclusion HPC services in Taiwan are sponsored by lots of individuals and small donations. For sustainability of standards‐based and quality HPC services, the benevolence of the public should be thus cherished and adequately responded to.

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“…Also, attention should be paid to the culture of parents as well (116). Raising public awareness concerning palliative care to overcome cultural and social barriers can also be an important factor in palliative care acceptance by parents (117). Public perspectives toward palliative care is complex (118) and its change requires relevant knowledge (119).…”

Section: -Providing Educational Programs For the Family Changing Thmentioning

confidence: 99%

Challenges of palliative care for children with cancer in Iran: a review

Rassouli

Salmani

Mandegari

et al. 2019

IJPHO

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Pediatric palliative care is a holistic caring approach for children and families that begins with diagnosis of a life-threatening illness and continues until death; it aimed to relieve pain and other symptoms in physical, mental, social and spiritual aspects. In spite of available evidence concerning optimal outcomes of the provision of palliative care, establishment of a palliative care system for children has hardly been feasible so far due to a number of challenges. Therefore, this review study aimed at identifying the challenges of the provision of pediatric palliative care along with the relevant solutions. The identified challenges were classified into two categories including structure-based challenges (i.e. lack of a clear structure in the health system and classification of services, shortage of specialized staff, insufficient home care services, absence of health care tariffs along with insurance coverage of palliative care services) and process-based challenges (i.e. absence of guidelines, lack of educational programs for family, family attitudes and beliefs, communication barriers, and lack of access to opioids). Thereafter, the solutions for each challenge are provided in accordance with the available literature separately. Given the significance of palliative care for children with cancer and in order to improve the quality of life of the children and the families, it appears necessary that policymakers and managers take account of the challenges as well as the feasibility and the implementation of provided solutions.

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Psychosocial issues in palliative care: A review of five cases

Cited by 19 publications

References 29 publications

An exploratory analysis of levels of evidence for articles published in Indian journal of palliative care in the years 2010-2011

An exploratory analysis of levels of evidence for articles published in Indian journal of palliative care in the years 2010-2011

Lots of little ones: Analysis of charitable donations to a hospice and palliative care unit in Taiwan

Challenges of palliative care for children with cancer in Iran: a review

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