Psychosocial Outcomes of Pain and Pain Management in Adults with Osteogenesis Imperfecta: A Qualitative Study

Shepherd, Whitney S.; Wiese, Andrew D.; Cho, Hannah E.; Rork, W. Conor; Baig, M. Usman; Kostick, Kristin M.; Nguyen, Dianne; Carter, Erin M.; ,; Sutton, V Reid; Nagamani, Sandesh C. S.; Rauch, Frank; Glorieux, Francis; Retrouvey, Jean-Marc; Lee, Janice; Esposito, Paul; Wallace, Maegen; Bober, Michael; Eyre, David; Gomez, Danielle; Harris, Gerald; Hart, Tracy; Jain, Mahim; Krakow, Deborah; Krischer, Jeffrey; Orwoll, Eric; Nicol, Lindsey; Raggio, Cathleen; Smith, Peter; Tosi, Laura; Murali, Chaya N.; Robinson, Marie-Eve; Schneider, Sophie C.; Lee, Brendan; Sutton, V. Reid; Storch, Eric A.

doi:10.1007/s10880-023-09991-z

J Clin Psychol Med Settings

2024

DOI: 10.1007/s10880-023-09991-z

|View full text |Cite

Psychosocial Outcomes of Pain and Pain Management in Adults with Osteogenesis Imperfecta: A Qualitative Study

Whitney S. Shepherd,

Andrew D. Wiese,

Hannah E. Cho

et al.

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...

Citation Types

Supporting

Mentioning

Contrasting

Year Published

2024

Publication Types

Select...

Preprint1

Relationship

Self Cite1

Independent0

Authors

Journals

Cited by 1 publication

References 89 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

Mindful self-compassion to reduce pain interference among adults with osteogenesis imperfecta

Sediqi,

Al-Khalili,

Dover

et al. 2024

Preprint

Self Cite

View full text Add to dashboard Cite

Background Between 60–80% of adults with osteogenesis imperfecta (OI) experience chronic pain and associated interference. Currently available pain therapies often provide marginal efficacy. Mindful self-compassion (MSC) has emerged as a promising intervention for coping with chronic pain. Methods We conducted a single center 8-week pilot intervention study to assess the feasibility and acceptability of a MSC program among adults with OI and co-occurring chronic pain. Individuals attended the validated MSC course consisting of 8 weekly virtual 2-hour sessions. Participants completed a battery of validated questionnaires assessing pain, various aspects of well-being, and physical function at baseline and post intervention. Participants wore the ActiGraph GT9X Link watch to measure sleep duration and sleep efficiency. Results Seven adults with OI and co-occurring pain participated in the MSC program. The program was feasible, as indicated by high attendance and high questionnaire completion rates. While our pilot study was not powered to show efficacy, we observed a decrease in pain interference on the PROMIS pain interference questionnaire (mean 55.9 ± SD 5.5 at baseline vs. 50.0 ± 7.3 at 8 weeks, Cohen’s d=-0.9, p < 0.05). Conclusions Implementation of the MSC program is feasible as a potential therapeutic option to address chronic pain in OI.

show abstract

Mindful self-compassion to reduce pain interference among adults with osteogenesis imperfecta

Sediqi,

Al-Khalili,

Dover

et al. 2024

Preprint

Self Cite

View full text Add to dashboard Cite

show abstract

scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.

Contact Info

customersupport@researchsolutions.com

10624 S. Eastern Ave., Ste. A-614

Henderson, NV 89052, USA

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.

Blog Terms and Conditions API Terms Privacy Policy Contact Cookie Preferences Do Not Sell or Share My Personal Information

Made with 💙 for researchers

Part of the Research Solutions Family.

Psychosocial Outcomes of Pain and Pain Management in Adults with Osteogenesis Imperfecta: A Qualitative Study

Cited by 1 publication

References 89 publications

Mindful self-compassion to reduce pain interference among adults with osteogenesis imperfecta

Mindful self-compassion to reduce pain interference among adults with osteogenesis imperfecta

Contact Info

Product

Resources

About