Psychosocial problems of family caregivers of palliative care patients and their spiritual coping styles

Özdemir, Fatima; Doğan, Sibel; Atayoğlu, Ali Timuçin

doi:10.1111/ppc.12479

Cited by 14 publications

(18 citation statements)

References 26 publications

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“…International research on spirituality in the context of palliative care increasingly includes FCs (Mok et al, 2003;Tan et al, 2011;Ross and Austin, 2015;Spitzer et al, 2016;O'Callaghan et al, 2020;Özdemir et al, 2020). However, the spiritual dimension often remains a subordinated focus of investigation, resulting in a limited understanding of the appearance and relevance of spirituality in the group of FCs (Buck and McMillan, 2008;Delgado-Guay et al, 2011;Harrington, 2012;Williams and Bakitas, 2012).…”

Section: Spirituality Among Fcs In Palliative Carementioning

confidence: 99%

“…Another study found spirituality to be used in resolving ethical dilemmas in the daily caregiving experience of female FCs (Koenig, 2005). Accordingly, authors found spirituality as a coping strategy used by FCs of patients undergoing palliative care (Paiva et al, 2015;Selman et al, 2018;Özdemir et al, 2020). Despite those findings, spirituality remains an oftentimes overlooked domain in supporting FCs, as shown by Sloss et al (2012), who quantified spirituality as a topic of discussion between healthcare professionals and informal caregivers of patients during the end of life at only 27%, while over 80% of those caregivers indicated the wish for a wider range of support regarding spirituality.…”

Section: Spirituality Among Fcs In Palliative Carementioning

confidence: 99%

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How does spirituality manifest in family caregivers of terminally ill cancer patients? A qualitative secondary analysis

et al. 2021

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Objective Considering the risk of spiritual distress among terminally ill patients, experts long agree that spiritual care has to be an integral component of palliative care. Despite this consensus, the role of spirituality among family caregivers remains largely unexplored. We aimed to describe how spirituality manifests in the lived experience of family caregivers (FCs) in a palliative care context. Method As part of a secondary analysis, data derived from two qualitative primary studies on FCs’ burdens and needs in the context of caring for a patient with a diagnosis of incurable cancer. Previously transcribed interviews were examined by means of a thematic analysis, transcending the focus of the primary studies to examine how spirituality arises and/or persists in the life of FCs from the time of diagnosis of incurable cancer up until bereavement. Results Twenty-nine narratives were explored and all included spirituality as a relevant theme. Analysis revealed four aspects associated with the presence of spirituality among FCs’ experiences: “Connectedness,” “Religious Faith,” “Transcendence,” “Hope,” and a fifth overarching aspect which we named “Ongoing integration of spiritual experience.” Spirituality appeared as a multilayered phenomenon and was shaped individually among FCs’ narratives. Significance of results In view of the results, exploring and discussing spirituality and underlying experiences in the situation as an FC seems likely to widen the perspective on FCs’ problems and needs. Further research on spiritual needs among FCs of patients with incurable life-limiting cancer is deemed necessary.

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Section: Spirituality Among Fcs In Palliative Carementioning

confidence: 99%

Section: Spirituality Among Fcs In Palliative Carementioning

confidence: 99%

How does spirituality manifest in family caregivers of terminally ill cancer patients? A qualitative secondary analysis

et al. 2021

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“…Another study investigating the cultural mourning ritual, the 'First Feast', found this tradition helped to ease the grief response of relatives and might be a useful auxiliary method for PC teams to help grieving families [255]. There are other studies that focus on the psychosocial and spiritual issues on caregivers [256][257][258].…”

Section: Public Awareness Psychosocial Support and End Of Life Ethicsmentioning

confidence: 99%

“…The nurses performed PC self-care needs, pain relief, prevention and management of pressure wounds. Özdemir et al [ 258 ] English Journal paper Cross-sectional Psychosocial problems and spiritual coping styles of the 78 family caregivers of patients receiving PC. The mean anxiety and depression scores using the Hospital Anxiety Depression Scale were 10.86 ± 4.30 and 9.38 ± 3.66, respectively.…”

Section: Supplementary Tablementioning

confidence: 99%

Progress in palliative care for cancer in Turkey: a review of the literature

Kutluk¹,

Ahmed²,

Cemaloğlu³

et al. 2021

ecancer

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Background:The demographic transition in Turkey is shifting the burden of diseases towards non-communicable diseases including cancer. Palliative care (PC) as a component of Universal Health Coverage assures patient and family-centred care provision throughout the spectrum of cancer.Objectives: This study aimed to make a detailed evaluation of the progress achieved since the mid-90s and the current situation of cancer PC in Turkey.Methods: A literature review was conducted in PubMed,

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“…A study had built a mediating effect model to explore the mechanism of hope for depression [ 10 ]. Researches on patients with cancer or palliative care showed that depression was negatively correlated with positive spiritual coping [ 11 ], and positively correlated with negative spiritual coping [ 12 ].…”

Section: Introductionmentioning

confidence: 99%

Hope and depression: the mediating role of social support and spiritual coping in advanced cancer patients

Tao

Liu

et al. 2022

BMC Psychiatry

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Background Depression is the most common mental disorder in patients with advanced cancer, which may lead to poor prognosis and low survival rate. This study aims to explore the serial multiple mediating roles of social support and spiritual coping between hope and depression among patients with advanced cancer. Methods A cross-sectional study was conducted in China between May and August 2020. A total of 442 advanced cancer patients were investigated by the following self-reported questionnaires: Herth Hope Index (HHI), Spiritual Coping Questionnaire (SCQ, Chinese version), Social Support Rating Scale (SSRS), Hospital Anxiety and Depression Scale (HADS). Results Depression was negatively correlated with hope, social support, and positive spiritual coping (P < 0.01), and positively correlated with negative spiritual coping (P < 0.01). Hope explained 16.0% of the variance in depression. Bootstrap analyses of the hope--social support--positive spiritual coping--depression showed that there were direct [B = -0.220, 95%CI(− 0.354, − 0.072)] and indirect effects of hope on depression mediated solely by social support [B = -0.122, 95%CI(− 0.200, − 0.066)] and positive spiritual coping [B = -0.112, 95%CI(− 0.217,-0.025)], or by both together [B = -0.014, 95%CI(− 0.038,-0.003)]. Similarly, the hope--social support--negative spiritual coping--depression showed that there were direct [B = -0.302, 95%CI(− 0.404, − 0.190)] and indirect effects of hope on depression mediated solely by social support [B = -0.126, 95%CI(− 0.205, − 0.071)] and negative spiritual coping [B = -0.033, 95%CI(− 0.080,-0.002)], or by both together [B = -0.010, 95%CI(− 0.030,-0.001)]. Conclusions This study proves the hypothesis that social support and spiritual coping play intermediary roles between hope and depression. Interventions established through hope, social support and spiritual coping can effectively prevent depression from occurring.

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Psychosocial problems of family caregivers of palliative care patients and their spiritual coping styles

Cited by 14 publications

References 26 publications

How does spirituality manifest in family caregivers of terminally ill cancer patients? A qualitative secondary analysis

How does spirituality manifest in family caregivers of terminally ill cancer patients? A qualitative secondary analysis

Progress in palliative care for cancer in Turkey: a review of the literature

Hope and depression: the mediating role of social support and spiritual coping in advanced cancer patients

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