Psychosocial protocol for childhood cancer: A conceptual model

Lauria, Marie M.; Hockenberry-Eaton, Marilyn; Pawletko, Terese M.; Mauer, Alvin M.

doi:10.1002/(sici)1097-0142(19960915)78:6<1345::aid-cncr26>3.0.co;2-#

Cited by 26 publications

(9 citation statements)

References 60 publications

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“…Several published guidelines identified 'ideal' psychosocial care for a child with cancer [16][17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34]. None of these documents included all of the information necessary for the complete psychosocial care of a child nor are many explicitly evidence-based or up to date.…”

Section: Guidelinesmentioning

confidence: 99%

Pediatric psycho‐oncology care: standards, guidelines, and consensus reports

et al. 2014

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Objective To identify existing guidelines, standards, or consensus-based reports for psychosocial care of children with cancer and their families. Purpose Psychosocial standards of care for children with cancer can systematize the approach to care and create a replicable model that can be utilized in pediatric hospitals around the world. Determining gaps in existing standards in pediatric psycho-oncology can guide development of useful evidence- and consensus-based standards. Methods The MEDLINE and PubMed databases were searched by investigators at two major pediatric oncology centers for existing guidelines, consensus-based reports, or standards for psychosocial care of pediatric cancer patients and their families published in peer-reviewed journals in English between 1980 and 2013. Results We located 27 articles about psychosocial care that met inclusion criteria: 5 set forth standards, 19 guidelines and 3 were consensus-based reports. None were sufficiently up-to-date, significantly evidence-based, comprehensive and specific enough to serve as a current standard for psychosocial care for children with cancer and their families. Conclusion Despite calls by a number of international pediatric oncology and psycho-oncology professional organizations about the urgency of addressing the psychosocial needs of the child with cancer in order to reduce suffering, there remains a need for development of a widely acceptable, evidence- and consensus-based, comprehensive standard of care to guide provision of essential psychosocial services to all pediatric cancer patients.

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Section: Guidelinesmentioning

confidence: 99%

Pediatric psycho‐oncology care: standards, guidelines, and consensus reports

et al. 2014

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“…Guidelines for psychosocial services in pediatric oncology include presence of a psychosocial staff member when families are first told of their child's cancer diagnosis, early reliable and valid assessment of the presence of or risk for psychosocial problems, and routine provision of a basic level of psychosocial support and education for all families 2–10. Congruent with these guidelines are empirically validated approaches to psychosocial risk assessment and intervention 11–17.…”

Section: Introductionmentioning

confidence: 99%

Psychosocial services in the first 30 days after diagnosis: Results of a web‐based survey of children's oncology group (COG) member institutions

Selove¹,

Kroll²,

Coppes³

et al. 2011

Pediatric Blood & Cancer

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“…There may be difficulties, albeit non-pathological, which can be solved or improved relatively easily, making a dramatic difference on the quality of life for the individual family member. In order to assist children and parents to cope with their feelings and to return to normal life, several measures can be taken (43,44). For instance, for parents support may come in the form of advice on how to handle the difficulties encountered by re-entry into 'normal life', such as treating the former patient as normally as possible, finding a new equilibrium within the family as a spouse and parent, and addressing their relationship with siblings.…”

Section: Standard Psychosocial Aftercarementioning

confidence: 99%

“…In evaluating the outcome of psychosocial aftercare, it has been shown that subject characteristics can enhance or decrease the effects of the intervention, the so-called 'attribute-treatment interactions' (44). Studies suggest that several child and family characteristics or moderator variables are important in the outcome of psychological interventions, such as severity and duration of problems, comorbidity with other conditions, stressors within the family, coping strategies used by parents and children, absence of parental dysfunction and stability of home life (45).…”

Section: Is Psychosocial Aftercare Effective? the Need For Evaluationmentioning

confidence: 99%

Developing Psychosocial Aftercare for Children Surviving Cancer and their Families

2000

Acta Oncologica

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More children than ever are surviving childhood cancer. However, the medical and psychosocial consequences of their longer survival are becoming clear for former patients and their families, underlining the need for aftercare. Whereas the need for medical follow-up programs is widely recognized, psychosocial aftercare is still in its infancy. This paper presents a systematic approach to developing psychosocial aftercare based on evidence from research studies. First, the family member most in need of aftercare is identified. Research findings indicate that the child surviving cancer is most seriously affected by the cancer experience, followed by mothers and fathers, whereas siblings are least affected. Accordingly, former patients and parents should be the primary target groups. Second, different types of interventions need to be developed based on the nature of the problems of the target groups and the individual's level of adjustment. Finally, psychosocial aftercare programs need to demonstrate their effectiveness in reducing late effects and improving the quality of life after treatment ends. If our aim is to cure the child truly of cancer, than the development of psychosocial aftercare, its clinical application, and evaluation of its effectiveness will be the challenge for paediatric psycho-oncology in years to come.

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Psychosocial protocol for childhood cancer: A conceptual model

Cited by 26 publications

References 60 publications

Pediatric psycho‐oncology care: standards, guidelines, and consensus reports

Pediatric psycho‐oncology care: standards, guidelines, and consensus reports

Psychosocial services in the first 30 days after diagnosis: Results of a web‐based survey of children's oncology group (COG) member institutions

Developing Psychosocial Aftercare for Children Surviving Cancer and their Families

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