Psychosocial screening at paediatric BEEC clinics: A pilot evaluation study

Hurrell, Ruth; Fullwood, Catherine; Keys, Joni; Dickson, Alan P.; Fishwick, Janet; Whitnall, Beverley; Cervellione, Raimondo M.

doi:10.1016/j.jpurol.2014.10.013

Cited by 11 publications

(5 citation statements)

References 24 publications

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“…Eighty patients and their families (74% response rate) completed a questionnaire comprising HRQOL instruments. 36 The total scores fell within the average/normal range, showing better self-reported HRQOL in children with the BEEC than among other pediatric chronic health conditions. However, the study also showed a large variation in means and that older age groups, boys, and those with classic bladder exstrophy were at risk in some domains, such as social and school functioning.…”

Section: Generic Health-related Quality Of Life In Children and Adultsmentioning

confidence: 76%

“…Sixteen articles fulfilled inclusion criteria 14,15,20,[28][29][30][31][32][33][34][35][36][37][38][39][40] of which eight publications used a validated generic HRQOL instrument. 28,[30][31][32]36,[38][39][40] Five studies used instruments measuring symptom-specific HRQOL, or more precisely the impact of incontinence on HRQOL. 28,30,35,37,40 Eleven publications used self-designed questionnaires only or in combination with validated instruments to assess different aspects of HRQOL as psychosocial or psychosexual health.…”

Section: Resultsmentioning

confidence: 99%

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Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

et al. 2020

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The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015–2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.

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Section: Generic Health-related Quality Of Life In Children and Adultsmentioning

confidence: 76%

Section: Resultsmentioning

confidence: 99%

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

et al. 2020

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“…206 Finally, Hurrell et al, used responses from psychosocial questionnaires, including the Paediatric Quality of Life Inventory (PedsQL 4.0 Generic Core and Family Impact Module), the Strengths and Difficulties Questionnaire (SDQ), the Paediatric Index of Emotional Distress (PI-ED), and the Hospital Anxiety and Depression Scale (HADS) in conjunction with clinical psychology consultations to evaluate a range of psychosocial aspects in Bladder Exstrophy and Epispadias Complex (BEEC) paediatric patients. 239 Certain individual scores did fall within clinical ranges, highlighting a potential need for further assessment. 207 Making the connection: Effect of risk assessment on mental health outcomes…”

Section: Combinations Of Toolsmentioning

confidence: 99%

“…Four studies describe application of a combination of tools. 196,198,230,239 Laverty et al used a combination of The Revised Children's Anxiety and Depression Scale, the Obsessive Compulsive Inventory for Children, the Children's Revised Impact of Events Scale, the Columbia Suicide Severity Rating Scale, the KIDSCREEN-10 Index, the Children's Global Assessment Scale, and the Child Anxiety Life Interference Scale to create a behaviour profile assessment to enable clinicians to identify characteristics associated with persistent self-injury through the use of several measures. 196 Laverty et al reported on selfharm but specifically for individuals with autism.…”

Section: Combinations Of Toolsmentioning

confidence: 99%

Factors within the clinical encounter that impact upon risk assessment within child and adolescent mental health services: a rapid realist synthesis

Cantrell,

Sworn,

Chambers

et al. 2024

Health Soc Care Deliv Res

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Background Risk assessment is a key process when a child or adolescent presents at risk for self-harm or suicide in a mental health crisis or emergency. Risk assessment by a healthcare professional should be included within a biopsychosocial assessment. However, the predictive value of risk-screening tools for self-harm and suicide in children and adolescents is consistently challenged. A review is needed to explore how best to undertake risk assessment and the appropriate role for tools/checklists within the assessment pathway. Aims To map research relating to risk assessment for child and adolescent mental health and to identify features that relate to a successful risk assessment. Objectives To review factors within the clinical encounter that impact upon risk assessments for self-harm and suicide in children and adolescents: to conduct a realist synthesis to understand mechanisms for risk assessment, why they occur and how they vary by context to conduct a mapping review of primary studies/reviews to describe available tools of applicability to the UK. Data sources Databases, including MEDLINE, PsycINFO®, EMBASE, CINAHL, HMIC, Science and Social Sciences Citation Index and the Cochrane Library, were searched (September 2021). Searches were also conducted for reports from websites. Review methods A resource-constrained realist synthesis was conducted exploring factors that impact upon risk assessments for self-harm and suicide. This was accompanied by a mapping review of primary studies/reviews describing risk-assessment tools and approaches used in UK child and adolescent mental health. Following piloting, four reviewers screened retrieved records. Items were coded for the mapping and/or for inclusion in the realist synthesis. The review team examined the validity and limitations of risk-screening tools. In addition, the team identified structured approaches to risk assessment. Reporting of the realist synthesis followed RAMESES guidelines. Results From 4084 unique citations, 249 papers were reviewed and 41 studies (49 tools) were included in the mapping review. Eight reviews were identified following full-text screening. Fifty-seven papers were identified for the realist review. Findings highlight 14 explanations (programme theories) for a successful risk assessment for self-harm and suicide. Forty-nine individual assessment tools/approaches were identified. Few tools were developed in the UK, specifically for children and adolescents. These lacked formal independent evaluation. No risk-screening tool is suitable for risk prediction; optimal approaches incorporate a relationship of trust, involvement of the family, where appropriate, and a patient-centred holistic approach. The objective of risk assessment should be elicitation of information to direct a risk formulation and care plan. Limitations Many identified tools are well-established but lack scientific validity, particularly predictive validity, or clinical utility. Programme theories were generated rapidly from a survey of risk assessment. Conclusions No single checklist/approach meets the needs of risk assessment for self-harm and suicide. A whole-system approach is required, informed by structured clinical judgement. Useful components include a holistic assessment within a climate of trust, facilitated by family involvement. Study registration This study is registered as PROSPERO CRD42021276671. Funding This award was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (NIHR award ref: NIHR135079) and is published in full in Health and Social Care Delivery Research; Vol. 12, No. 1. See the NIHR Funding and Awards website for further award information.

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“…This can lead to deep depression, sometimes resulting in extreme acts such as suicide [8]. However, there are studies providing evidence of effective coping strategies and the capability of achieving good quality of life [9,10,11].…”

Section: Introductionmentioning

confidence: 99%

Psychosexual development management of bladder exstrophy epispadias in complex patients

Grazia

Pellizzoni

Tonegatti

et al. 2016

Journal of Pediatric Urology

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Psychosocial screening at paediatric BEEC clinics: A pilot evaluation study

Cited by 11 publications

References 24 publications

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

Factors within the clinical encounter that impact upon risk assessment within child and adolescent mental health services: a rapid realist synthesis

Psychosexual development management of bladder exstrophy epispadias in complex patients

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