Psychosocial Well‐being of Siblings of Adolescents with Anorexia Nervosa

Langenberg, Tanja van; Sawyer, Susan Μ; Grange, Daniel Le; Hughes, Elizabeth K.

doi:10.1002/erv.2469

Cited by 14 publications

(21 citation statements)

References 51 publications

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“…In a study examining non-ED siblings' quality of life, while most subjects did not reach an "at risk" score on the quality of life measurement, 80% of siblings did report a decrease in quality of life brought about by the disorder (32). Non-ED siblings also described the physical effect the disorder has had on them, feeling sick more often, experiencing sleeping problems, having lower energy levels, and experiencing difficulties with attention and concentration (31,42,44). Siblings also reported a decline in scholastic functioning, and a decrease in motivation for social activities (28).…”

Section: Mental Health and Well-being Among Siblings Of Individuals Wmentioning

confidence: 99%

Siblings of Individuals With Eating Disorders: A Review of the Literature

2020

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Eating disorders (EDs) are serious psychopathologies characterized by a persistent disturbance in eating or eating-related behavior. Studies have shown EDs' detrimental consequences not only for patients, but also for their families. Nevertheless, a specific group that has so far been neglected, in both the research and clinical fields, are siblings of individuals with EDs. In an effort to identify this population's needs, and to facilitate effective prevention and treatment, this paper aims to review the existing literature on the subject, and examine siblings' personal experience, ways of coping, and levels of psychopathology. PubMed and PsycNet databases were searched with no publication date restrictions, yielding 26 relevant papers. Studies were categorized according to common themes they addressed, and subsequently summarized by highlighting common features, as well as information unique to each study. Several themes emerged, including emotional well-being, psychopathology, social consequences, family dynamics, and coping strategies. Results show that EDs experienced by one individual have significant effects on one's siblings, such as a decrease in quality of life, social isolation, and elevated familial strain. In several studies siblings were found to have elevated levels of psychopathology and EDs related symptoms. Nevertheless, findings' nature and magnitude were highly varied. The review indicates the need for further studies that will examine possible intra-and interpersonal moderating factors for EDs' impact on wellbeing among siblings, and take into consideration the substantial heterogeneity in studies conducted thus far. Additionally, this review highlights the need for novel and effective interventions, specifically targeting this at-risk group.

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Section: Mental Health and Well-being Among Siblings Of Individuals Wmentioning

confidence: 99%

Siblings of Individuals With Eating Disorders: A Review of the Literature

2020

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“…As discussed in Truth 1, an eating disorder represents a health crisis that affects every aspect of an individual's life. In addition to myriad psychiatric and somatic complications and comorbidities enumerated in Truth 1, eating disorders also lead to considerable psychological distress, as well as isolation, stigmatization, and difficulties with family and other interpersonal relationships (Ali et al, ; Caslini et al, ; Dimitropoulos, McCallum, Colasanto, Freeman, & Gadalla, ; van Langenberg, Sawyer, le Grange, & Hughes, ). Further, eating disorders are associated with financial burden, delays in healthy development, and functional impairment and may interfere with social role functioning including intimate relationships, reproductive health and parenting (see summaries in Tables S2–S4).…”

Section: Truth 3: An Eating Disorder Diagnosis Is a Health Crisis Thamentioning

confidence: 99%

The Science Behind the Academy for Eating Disorders' Nine Truths About Eating Disorders

Schaumberg

Welch

Breithaupt

et al. 2017

Euro Eating Disorders Rev

205

127

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Objective In 2015, the Academy for Eating Disorders (AED) collaborated with international patient, advocacy, and parent organizations to craft the “Nine Truths About Eating Disorders.” This document has been translated into over 30 languages and has been distributed globally to replace outdated and erroneous stereotypes about eating disorders with factual information. In this paper, we review the state of the science supporting the Nine Truths. Methods The literature supporting each of the Nine Truths was reviewed, summarized, and richly annotated. Results Most of the Nine Truths arise from well-established foundations in the scientific literature. Additional evidence is required to further substantiate some of the assertions in the document. Future investigations are needed in all areas to deepen our understanding of eating disorders, their causes, and their treatments. Conclusions The “Nine Truths About Eating Disorders” is a guiding document to accelerate global dissemination of accurate and evidence-informed information about eating disorders.

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“…Temperamental traits of harm avoidance ( 8 ) and shyness [e.g., Ref. ( 9 )] have been consistently identified, even by siblings ( 10 ). Adverse early interpersonal experiences, such as exposure to sudden death of a relative ( 11 ), poor communication and care within the family ( 12 , 13 ), and critical comments about the self {particularly regarding weight, shape and eating [e.g., Ref.…”

Section: Introductionmentioning

confidence: 99%

Social Difficulties As Risk and Maintaining Factors in Anorexia Nervosa: A Mixed-Method Investigation

et al. 2018

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Anorexia nervosa (AN) is a serious psychiatric disorder characterized by severe restriction of energy intake and dangerously low body weight. Other domains of functioning are affected, including social functioning. Although difficulties within this domain have started to be acknowledged by the literature, some important gaps remain to be filled. Do social difficulties predate the onset of the illness? What difficulties in particular are relevant for the development and maintenance of the illness? The aim of this study is to combine the use of quantitative and qualitative methods to answer these questions. Ninety participants with lifetime AN (88 women and 2 men) completed an online survey assessing memories of involuntary submissiveness within the family, fear of negative evaluation from others, perceived lack of social competence, feelings of social belonging, eating disorder symptoms, and work and social adjustment. Participants also answered three open questions regarding their experience of social relationships before and after the illness onset. The findings provided support for the hypothesized relationships between the study variables. Involuntary submissiveness and fear of negative evaluation predicted eating disorder symptoms and these associations were partially mediated by perceived lack of social competence. Two-thirds of the sample recalled early social difficulties before illness onset and recognized that these had played a role in the development of the illness. A larger proportion of participants stated that the eating disorder had affected their social relationships in a negative way. This study sheds some light on patients’ perspective on the predisposing and maintaining role that social difficulties play in AN and identifies key psychological variables that could be targeted in treatment.

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Psychosocial Well‐being of Siblings of Adolescents with Anorexia Nervosa

Cited by 14 publications

References 51 publications

Siblings of Individuals With Eating Disorders: A Review of the Literature

Siblings of Individuals With Eating Disorders: A Review of the Literature

The Science Behind the Academy for Eating Disorders' Nine Truths About Eating Disorders

Social Difficulties As Risk and Maintaining Factors in Anorexia Nervosa: A Mixed-Method Investigation

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